Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello Everyone!

jswog

By jswog
in Coping with Celiac Disease

Recommended Posts

jswog Contributor
jswog
Posted

Hi! I'm sure many of you are new enough to not remember me. I've lurked a bit, but haven't really posted much for quite a while now. I've been busy visiting the boards at Babycenter.com! I'm now 36 weeks pregnant and give all the credit to going gluten free (and, thereby, to you all here as well for all of the help and support you gave me in doing so). If anyone is interested, I can share the whole testimonial (I have posted it on the pregnancy board here...), but there are definately too many things to think it's coincidence. Hubby and I have a little boy due August 19 who looks to be developing 100% perfectly, despite my age and a few other potential issues. I'm also maintaining iron and other levels even throughout the pregnancy better than I have at any other point in my life. I have had severe morning sickness and am still on prescription meds to keep it under control. We're totally looking forward to meeting our new little man in just a few short weeks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

Congratulations and welcome back!! I do remember you. I'm so happy for you and your husband. You are going to be so busy now you won't believe it! But feel free to post your testimonial because you had quite a road as I recall and it may be of help to someone who is struggling like you did. Hope all continues to go well for you and thanks for letting us know how you are doing!

lynnelise Apprentice
lynnelise
Posted

I do remember you being on the boards! Congrats on your pregnancy! :)

1974girl Enthusiast
1974girl
Posted

Congratulations! Fertility issues is the main reason that keeps me going gluten-free with my silent celiac dd. So glad it all is working out. I hope you will try to breast feed. There is a lot if research that shows that may help protect the development of celiac and type 1 diabetes. I did not do it with my 1st and she got celiac. I did for a year with #2 and she is fine despite still having the genes. So just try! No regrets like me!

Jestgar Rising Star
Jestgar
Posted

Yay!!!!

We really should have a bulletin board or sumpin' of all 'our' babies. :huh:

GottaSki Mentor
GottaSki
Posted

Thanks for sharing your great news.

Welcome Back and Congratulations!

IrishHeart Veteran
IrishHeart
Posted

I remember you very well --and I am so very happy for you, J!!!

yaaaay!! Congrats!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Yay!!!!

We really should have a bulletin board or sumpin' of all 'our' babies. :huh:

I second that!

Roda Rising Star
Roda
Posted

I remember you too. I was wondering when the baby would come. He'll be here before you know it!! So happy for you.

Roda Rising Star
Roda
Posted

Congratulations! Fertility issues is the main reason that keeps me going gluten-free with my silent celiac dd. So glad it all is working out. I hope you will try to breast feed. There is a lot if research that shows that may help protect the development of celiac and type 1 diabetes. I did not do it with my 1st and she got celiac. I did for a year with #2 and she is fine despite still having the genes. So just try! No regrets like me!

I'm very pro breastfeeding and think it was the best choice for both of my boys. I cherrish the times we had alone bonding. My youngest son would nurse and play with my hair. To this day when he is tired or not feeling well he plays with it. So sweet.

Well, I breast fed my celiac son for 16 months. In hindsite I think he had celiac as a baby but didn't show positive on blood work until he was almost 6 years old. He was first tested when he was 3 after I was diagnosed. All his symptoms as a baby and toddler make sense now. I was unknowingly gluten light while breastfeeding for the first 10 months. I avoided dairy, rice, oats, and tree nuts. He reacted to all of those. I ate a lot of fresh fruit/veggies and meat but was not gluten free. I also fed him barley cereal.

Oldest son was breastfed for 14 months. He is not celiac but is non celiac gluten intolerent.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      You're right, doctors usually only test Vitamin D and B12. Both are really important, but they're not good indicators of deficiencies in the other B vitamins. Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer. The other B vitamins can only be stored for much shorter periods of time. Pyridoxine B 6 can...
    2. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron. I wondered how it was possible that I had celiac disease...
    3. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    4. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
    5. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,366
    • Most Online (within 30 mins)
      7,748
    Matt3179
    Newest Member
    Matt3179
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.