Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Family Have Different Symptoms?

kittty

Recommended Posts

kittty Contributor
kittty
Posted

Now that I know what has been causing all of my medical problems, I want to encourage my family to get tested. My grandparents all died quite young, but I'm pretty sure my paternal grandmother had obvious celiac symptoms (edema, chronic diarrhea, arthritis from a very young age, muscle cramps, depression). But no one else in my family has symptoms like mine. All except for my immediate family live in Europe, and I've heard that there is less gluten in flour over there. Could that mean less possibility of developing symptoms?

Is it possible for family members to have celiac, but have very different symptoms from each other?

My brother has always been pale, with a flushed face and eczema-like rashes on his skin. He's also had problems with fatigue and depression, but no GI issues as far as I know. I've never had any of the skin-related symptoms though. I'm definitely going to suggest he get tested.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

Now that I know what has been causing all of my medical problems, I want to encourage my family to get tested. My grandparents all died quite young, but I'm pretty sure my paternal grandmother had obvious celiac symptoms (edema, chronic diarrhea, arthritis from a very young age, muscle cramps, depression). But no one else in my family has symptoms like mine. All except for my immediate family live in Europe, and I've heard that there is less gluten in flour over there. Could that mean less possibility of developing symptoms?

Is it possible for family members to have celiac, but have very different symptoms from each other?

My brother has always been pale, with a flushed face and eczema-like rashes on his skin. He's also had problems with fatigue and depression, but no GI issues as far as I know. I've never had any of the skin-related symptoms though. I'm definitely going to suggest he get tested.

YES! we are unique genetic beings, and our experience in the world is also unique to each of us. Your brother may have a celiac gene (or not) from the other parent, may have it in combo with a different nonceliac gene, than you do, so may exhibit different sx. all your sibs and your parents need to be tested, and if neg, retested every few years. good luck

bartfull Rising Star
bartfull
Posted

Absolutely! My sweet mother had the classic D. My digestive symptoms were very mild compared to hers. While we both had psoriasis that cleared up on the gluten-free diet, and we both suffered from insomnia, her insomnia never resolved but mine has.

Also, Mom never developed other intolerances. She could and did eat corn in some form every day with no problems. I on the other hand, had more trouble with corn for the first year than I did with gluten. Mom could and did take asperin. I developed a strong sensitivity to it and other high salicylate foods.

GottaSki Mentor
GottaSki
Posted

Absolutely - without a doubt. Myself, three kids and two grands all had/have different symptoms - even our reactions to CC or accidental glutening are different.

mamaupupup Contributor
mamaupupup
Posted

Yes! Ditto what Gottaski said!

Me: GI (although I didn't really notice...I didn't know what "normal" was!)

DD1: Neurologic (irritable)

DD2: Itchy skin/muscle/joint pain

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748
    bostonbell
    Newest Member
    bostonbell
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.