Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Something For Inflammation

AVR1962

By AVR1962
in Coping with Celiac Disease

Recommended Posts

AVR1962 Collaborator
AVR1962
Posted
  • Author

Just wanted to add something else benficial I found that I am relating to the tea. I have tight muscles and connective tissues in my legs and shoulders. My physical therapist keeps telling me I need to find the reason. I get a deep tissue massage 1-2 times a month and every time is painful, to a the point of near tears....not something I look fwd to but understand it is needed. Last Fri was my first massage since drinking the tea.....amazing, seriously amazing, only a little tightness in left calf and right shoulder. I contribute the difference to the tea. No change in my nerve pain or the pain in my low back from my bulging discs but I am not expecting that either.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 137
  • Created
  • Last Reply
JNBunnie1 Community Regular
JNBunnie1
Posted

Hey, take what you can get, right?

Glad your massage was pleasant for once! Aren't they nice when they don't hurt?

bartfull Rising Star
bartfull
Posted

Well, I finally got around to trying it. I thought it tasted pretty good. I bought loose tea and made it in my french press.

And this morning I woke up to a psoriasis flare! :angry: Probably salicylate related. This really stinks. Every time I find something good for me, I find out it's bad for me.

Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...

GottaSki Mentor
GottaSki
Posted

Well, I finally got around to trying it. I thought it tasted pretty good. I bought loose tea and made it in my french press.

And this morning I woke up to a psoriasis flare! :angry: Probably salicylate related. This really stinks. Every time I find something good for me, I find out it's bad for me.

Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...

That stinks :angry:

Hope you are feeling much better very soon!

Coryad Rookie
Coryad
Posted
Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...

What??? How did I not know this? :o

And I also suffer from inflammation so I will get some nettle tea this week... this board is so helpful :)

Oscar Apprentice
Oscar
Posted

Being that today is "National Grouch Day", I must say I am in the spirit for it. GRRRR...

Bring it on!

Harumph!

IrishHeart Veteran
IrishHeart
Posted

Bring it on!

Harumph!

I love you, Oscar, you trashy thing you!!!.

Even I feel a tad grouchy today. :unsure: Must be the "weather".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Here's my unscientific results so far:

I have had 1 cup a day (from tea bags). I was noticing that some stiffness in joints seemed less. Yesterday, I didn't have any. Woke up several times with pain in hips and shoulders. My feet and fingers are stiff this morning.

I'm drinking some right now!

jerseyangel Proficient
jerseyangel
Posted

For the past week, I have added 2 tablespoons of tart cherry juice concentrate in addition to the tea. Too early, probably, to tell if that is going to have an effect but the tea seems to ease the stiffness a bit.

Roda Rising Star
Roda
Posted

I bought some but haven't tried it yet. Will soon.

GottaSki Mentor
GottaSki
Posted

Tomorrow will be two weeks of drinking a cup per day, some days two. Positive things that I cannot prove are connected to the tea, but I am hopeful.

Accidental glutening symptoms were less severe than in the past. The gluten was from almonds packaged on the same lines as gluten and was obvious within half hour of ingestion. My symptoms are usually severe for five days. This time they were slightly less severe and lasted for 3 or 4.

I have had far more "vertical" time over the past two weeks. I was feeling quite ill one day and skipped the tea - the following day my joint/muscle pain was much worse.

Again, nothing conclusive - but everything promising. Off to drink my morning tea :D

IrishHeart Veteran
IrishHeart
Posted

I have had a cup a day for 10 days and did not notice any significant reduction in

the joint pain as yet.

I always remain hopeful, however, and will continue. It may kick in eventually!

jerseyangel Proficient
jerseyangel
Posted

For the past week, I have added 2 tablespoons of tart cherry juice concentrate in addition to the tea. Too early, probably, to tell if that is going to have an effect but the tea seems to ease the stiffness a bit.

Quoting myself, but last night was the first time I could lay down comfortably without my knees/legs aching. This morning, I was able to go outside and rake/spot seed the front lawn. The stairs are easier too today. Compared to just yesterday, I would say my pain/stiffness went from an 8 to a 2.

I think the tart cherry juice is having an effect--my eczema is also calmer today.

If the tea isn't quite cutting it, the juice might be worth a try. I use 2 tablespoons tart cherry juice, club soda, and ice. You can also just take it off the spoon, as you would cough medicine.

IrishHeart Veteran
IrishHeart
Posted

Compared to just yesterday, I would say my pain/stiffness went from an 8 to a 2.

I think the tart cherry juice is having an effect--my eczema is also calmer today.

This is really interesting, Patti! A few years ago, I had my Dad drinking tart cherry juice for gout which developed with his kidney disease as it helps to flush out uric acid (which of course, causes major pain in the joints). A study out of OSHU in Oregon says it helps with inflammation in muscles of runners/athletes--and you are living proof.

Going from a pain level of 8 to a 2 sounds amazing. Thanks for the suggestion.

jerseyangel Proficient
jerseyangel
Posted

You're welcome :)

kareng Grand Master
kareng
Posted

I think the tart cherry juice is having an effect--my eczema is also calmer toda

If the tea isn't quite cutting it, the juice might be worth a try. I use 2 tablespoons tart cherry juice, club soda, and ice. You can also just take it off the spoon, as you would cough medicine.

I think you forgot the vodka in this recipe! :D

Is this something you get at WF?

jerseyangel Proficient
jerseyangel
Posted

I think you forgot the vodka in this recipe! :D

Is this something you get at WF?

wodka <snort>

You can get it at WF, I got mine at my lil' local health food store. It's quite tasty :)

IrishHeart Veteran
IrishHeart
Posted

I think you forgot the vodka in this recipe! :D

:lol: I'm glad you said it......

GottaSki Mentor
GottaSki
Posted

I can see this statement in my future.

"Really Hon, I'm drinking this tart cherry martini to reduce inflammation!"

Thanks for the idea Patti - I am going to try adding to the tea soon :)

jerseyangel Proficient
jerseyangel
Posted

"Really Hon, I'm drinking this tart cherry martini to reduce inflammation!"

:lol: Certainly couldn't hurt!

IrishHeart Veteran
IrishHeart
Posted

.....and if you're bombed, you don't notice the pain as much. :D

GottaSki Mentor
GottaSki
Posted

.....and if you're bombed, you don't notice the pain as much. :D

Tried and true ;)

mushroom Proficient
mushroom
Posted

.....and if you're bombed, you don't notice the pain as much. :D

Tsk, tsk, docs do not approve of self-medication you know :PB)

IrishHeart Veteran
IrishHeart
Posted

Tsk, tsk, docs do not approve of self-medication you know :PB)

:lol: perhaps not, but do I seem like I give a rat's butt what docs think-- because they've been so helpful up to now...??

mushroom Proficient
mushroom
Posted

:lol: perhaps not, but do I seem like I give a rat's butt what docs think-- because they've been so helpful up to now...??

SUCH lack of respect :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.