Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Something For Inflammation


AVR1962

Recommended Posts

Adalaide Mentor

I totally LOOKED at my teapot tonight! I almost even put water on to boil. :lol: Maybe later, when I'm not trying to cook 600 things.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 137
  • Created
  • Last Reply
IrishHeart Veteran

I totally LOOKED at my teapot tonight! I almost even put water on to boil. :lol: Maybe later, when I'm not trying to cook 600 things.

600? babes, how many burners does your stove have?? :lol: take care of you right now. xx

Adalaide Mentor

Okay okay, I was cooking 3 things. Taters, green beans and a burger. But it felt like a 600.

JNBunnie1 Community Regular

Started my nettle tea today! Will see what sorts of things happen.

Dejibo Newbie

I will have to add this to my cabinet. Thanks for the tip.

AVR1962 Collaborator

Tomorrow will be two weeks of drinking a cup per day, some days two. Positive things that I cannot prove are connected to the tea, but I am hopeful.

Accidental glutening symptoms were less severe than in the past. The gluten was from almonds packaged on the same lines as gluten and was obvious within half hour of ingestion. My symptoms are usually severe for five days. This time they were slightly less severe and lasted for 3 or 4.

I have had far more "vertical" time over the past two weeks. I was feeling quite ill one day and skipped the tea - the following day my joint/muscle pain was much worse.

Again, nothing conclusive - but everything promising. Off to drink my morning tea biggrin.gif

AWESOME!!!!!

AVR1962 Collaborator

No supplements, teas, or herbs (or making sacrifices to the gods) seem to help me.

I have decided to just do it full throttle --after doing is "sort of", I went full paleo 4 days ago.

No grains, dairy, legumes, sugar , soy (those last three were easy--I don't eat soy at all, sugar whips me up like a 3 year old

on Christmas Eve and causes insomnia and except for chili and soups, beans are not a big part of my diet. Hate peas. Peanuts are not a big deal to me either). Cheese, rice, white potatoes--these are tough to sacrifice. sigh.

But anyone who has gone full paleo --AVR included--has reported a reduction in inflammation, so I have to do it. The pain is maddening.

I'll keep you posted. (..........but cavemen drank gin, right? :unsure: )

Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Yes, grains and sugar are culprits for my inflammation and so staying away from them has done wonders for me. I do however eat aged cheese and white potatoes but very limited on the potatoes. The potatoes don't seem to give me issues.

This is very encouraging, A--thanks. Actually, anyone I know who has gone paleo says they feel great for doing so.

I'll stick with it--- and let you know. I appreciate you telling us how well you are doing. I remember when you first came on and

at the time, we both still felt so poorly. We have made great strides!

Healing happens. :)

Edited to add:

I have to correct myself. I am not "paleo", I am PRIMAL.

I have done more research and apparently, there are a few distinctions.

Primal it is.

AVR1962 Collaborator

IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years. My husband even mentioned he sees a huge difference in me.

Wanted to share this link also. I have been doing yoga and have finally got rid of the nerve pain (pins and needles) in my feet due to 2 bulging discs in my back but I was also having a different type of nerve pain in one of my feet...podiatrist said the nerves were inflamed....he tried various treatments including a cortizone shot to the foot which lasted about 6 months and then the pain came back. I am also finally noticing a difference in this pain and I don't think it is from the yoga, I could be wrong. I think it is from the nettle tea. Open Original Shared Link

IrishHeart Veteran

IrishHeart, you are so correct about the pain I was in, it was terrible! I feel for all of the newbies with the same issues. What I can say is 'don't give up, don't stop trying, continue to find what works for you body.' I think people thought I had lost my mind, a real freak but I had to do what made me feel better. I have learned an awful lot in the last 2 years. Feel better now than I have in many years.

I say the same: never give up. Stay the course. I am slowly coming back from the walking dead and I have learned an awful lot in the last 2 years, too. :)

I am still drinking the nettle tea. Maybe it takes longer for me to see results. I do some yoga as well -- and like you, I feel better--- and I will continue to try anything to reduce inflammation and get out of this pain. Thanks for all the encouraging words. I am thrilled for you!!

kareng Grand Master

I stopped the tea. I was having stomach issues. I don't think the tea was the issue, butn I stopped it. My joints are hurting today, but I did a lot of UP and down these bleachers (first step at 2 foot off the ground) and no back rest, etc. Might try to find the tart cherry stuff Patti mentioned.

IrishHeart Veteran

I stopped the tea. I was having stomach issues. I don't think the tea was the issue, butn I stopped it. My joints are hurting today, but I did a lot of UP and down these bleachers (first step at 2 foot off the ground) and no back rest, etc. Might try to find the tart cherry stuff Patti mentioned.

Man, bleacher seats are the worst!

I got the Knudsen brand Tart Cherry, K -- I found it in the grocery store in the "natural" aisle.

I throw it in my smoothie or as Patti suggested, it's good in some seltzer with lime. I'm sore from stacking wood, so I hear ya on the "squawking joints". Damn you, inflammation!! (picture me with my fist raised dramatically to the sky....)

GottaSki Mentor

I'm holding solid at two cups per day - last week went 1.5 days without and ended up with very stiff, achy and sore for a few days...can't prove it was lack of tea...but I am much improved since I've been back on two cups per day. Tuesday will be four weeks on tea and 5 or 6 with no other supplements. Hard to know it's the tea as it may just be the length of time since my diet was tightened up - still promising.

Teen son with sinus and gerd issues that were improved gluten-free, but have never cleared - he's been permanently stuffy for years...is claiming very, very minor improvement at one cup per day and wants to continue for now. I do hear less morning hacking cough from him :)

Adult daughter with very serious AI symptoms from five AIs will be joining our experiment this week.

JNBunnie1 Community Regular

I've been brewing the tea in the morning, and then a few hours reusing the teabag.

Does this have any value or should I be getting a new tea bag each time?

Adalaide Mentor

I don't use teabags, I just buy dried nettle. Unless it isn't available as an herb I don't commonly buy tea bags, although I do keep some around the house of my favorite bedtime tea out of sheer laziness. Anyway, in both cases, with bags and herbs I always use them twice. I just leave it in a little longer the second time around. Omg, if I ever threw out a teabag or herbs after one steep and my grammy found out? She'd disown me!

GottaSki Mentor

I use tea bags...have tried making a second cup with them and it was pretty light -- I do let mine steep for a long time with the initial use, so not much left for the second round. My son's lets his steep for only a couple minutes....his may be able to make it for a second round.

JNBunnie1 Community Regular

i just leave the tea bag in the cup until it's cool enough to drink, then I drink it, and brew another. It

definitely gets just as dark the second time around for me. And it tastes the same.

GottaSki Mentor

If it is just as dark...I'd say you are good to go :)

JNBunnie1 Community Regular

I've been mixing the nettle tea with chamomile, as I've needed the relaxing effects

as of late, and there's only so many cups of tea I need to be drinking in a day. Is

that ok to do? So many questions...!

GottaSki Mentor

Chemistry according to G :blink: :blink: gle says it goes great together and the combo is suggested as a remedy for hay fever :D

JNBunnie1 Community Regular

LOL, thanks Leeser!

IrishHeart Veteran

Chemistry according to G :blink: :blink: gle says it goes great together and the combo is suggested as a remedy for hay fever :D

yes, but will it cure my addiction to Ba--CON!?

(see what I did there? that's a cross-over thread right there! ta da. Nailed it.)

I am drinking my nettle tea right now because you all are saying it helped. I will keep at it..

IH waves at Bunz!! let's sip our tea together.

Celiac Mindwarp Community Regular

IH, are you sure you are not back on the tonic today?

A friend got me some nettle and peppermint so I'll give that a spin I think :)

JNBunnie1 Community Regular

She's been drinkin somethin'..... :ph34r:

IrishHeart Veteran

IH, are you sure you are not back on the tonic today?

A friend got me some nettle and peppermint so I'll give that a spin I think :)

what's tonic? tonic water? blech....nope.

She's been drinkin somethin'..... :ph34r:

I told you...tea. Just tea.

Could I multi - quote otherwise? ;) You all know I am mutli-quote challenged.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.