Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I

Mr Happy

By Mr Happy
in Coping with Celiac Disease

Recommended Posts

Mr Happy Newbie
Mr Happy
Posted

Hello Guy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Reading your post makes me feel happy! I hope it will continue at this level, but if not, that this good time will inspire you to hope for more. I don't blame you a bit for not wanting to ever eat gluten again.

Diana

bartfull Rising Star
bartfull
Posted

Mr. Happy, I'm so happy for you! Isn't it great that with an adjustment in our diets we can cure most of what has ailed us for so long?

I suggest you go to the thread, "Newbie 101" to learn more about cross-contamination and what to expect down the line. I imagine you will have some setbacks as you learn about being gluten-free (we all do), but I also know that you will most likely discover an improvement in symptoms you didn't even know were symptoms.

Oh yeah, and get some nettle tea. :lol: (There is a thread on it here.)

Welcome to the forum. And before I forget, you should have your kids tested. This lovely disease runs in families. (If they had suggested testing for me when my Mom was diagnosed, I could have avoided so much trouble!)

Hope the improvements keep coming!

DavinaRN Explorer
DavinaRN
Posted

Very happy for you, currently eating gluten for test on 19th, then I'm done. It only took four days off for me to confirm what I suspected. I had already decided I didn't need diagnosis when my endocrinologist answered my plea to add the blood work to my other tests. My PCP said you need a GI consult (like I have tons of money for tests). Btw your vision improvement is your body is now absorbing vit A :-)

JNBunnie1 Community Regular
JNBunnie1
Posted

Yay!!!!

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

I love a happy ending (or maybe beginning).

Delighted for you.

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. Great to hear you have had such a great response to the diet. Do follow up with your doctor on the chance that with the resolution of so many issues they may go ahead and give you a 'diagnosis' without putting you through the hell of a gluten challenge. If you have only been gluten free for a couple of weeks you might even still have a positive blood test. The reason why I encourage this is because celiac is strongly genetic and you will want to keep an eye on your children to make sure the disease isn't triggered in them at some point.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Believe it or not, the gas is normal rofl your supposed to go about that much every day.

The rest, however, is something that would probably have a gluten cause.

So you won't test mmm? It can be genetic, ya know. Just a tidbit of info.

GottaSki Mentor
GottaSki
Posted

Welcome Mr. Happy!

I'd second the suggestion of getting blood tests done ASAP. Your primary doc can order a full celiac panel.

I am not suggesting that you resume eating gluten...only that the tests still may be positive and the information in those tests may become useful to you in the future.

If you haven't had them I'd urge you to add nutrient blood tests to the list. Celiac Disease prevents absorption of many nutrients so you may need some supplementation while healing. Especially all Bs and D. Others that my celiac doc monitors are K, Iron, Ferritin, Copper and Zinc.

Congratulations on putting the puzzle together - it is frustrating that doctors were not looking for celiac in cases like yours (& mine), but I am very happy that you figured it out.

Read the "Newbie 101" section and ask any questions that may pop up.

Happy healing to you :)

Gemini Experienced
Gemini
Posted

This post made me laugh out loud! I felt the same way when I got my blood work back....could have danced for joy! I wasn't crazy, like so many doctors suggested.

Good for you, Mr. Happy....things only get better from now on!

nvsmom Community Regular
nvsmom
Posted
:) Congratulations on your awesome recovery! I'm very happy for you. And thanks for sharing your story; it was wonderful to read such an upbeat and positive story. Thank you! :lol:
NightOwl Newbie
NightOwl
Posted

Great story Mr. Happy, thanks for sharing it! And congratulations on your many improvements in such a short time, it's very likely that the rest will follow as time goes by.

I feel exactly like you, no way I want to put my body through more suffering (now that I finally "got it") just to get tested. I don't know if all my problems will resolve in time since I'm older AND for years played the "game" of "resting" from gluten, or mainly wheat, and then even when I did try going gluten-free I was not always careful about cross-contamination and sometimes did cheat in small amounts thinking what I had was more of a wheat "allergy", and all that probably caused a lot of unseen damage over time. When my gut began to react and my liver function got worse,because my father was a diagnosed celiac I figured I probably inherited the genes from him but I still was in denial for a good while, it took my having some very scary episodes this year to realize this is nothing to play with.

Pegleg84 Collaborator
Pegleg84
Posted

Congratulations Mr Happy! I've never seen anyone so elated to find out they can't eat gluten. I know I felt much better after a week on the diet, but this is amazing! So wonderful.

That said, you should get testing done asap (bloodwork and endoscopy/biopsy). If you don't go back on Gluten for it the results won't be reliable (but don't put yourself through that. I certainly wouldn't), but it's quite possible that you haven't healed enough yet that antibodies and damage will still show up on tests. If nothing else, get blood tests done for nutrients and such so you'll know whether you have any deficiencies, and can see if they get better in a few months. That'll be a sign that your body is absorbing nutrience again and healing.

And get your kids tested. Pronto. Also, suggest your parents and siblings get tested too, just in case.

Now comes the life-long process of gluten avoidance. It's a sneaky bugger. But good luck! So glad you're doing better all ready.

Peg

Mr Happy Newbie
Mr Happy
Posted
  • Author

Thank-you so much for the replies, it means a lot to have support

Mr Happy Newbie
Mr Happy
Posted
  • Author

Hi guys,

Just a quick question...

I don't know if it is related but everyone of my knuckles have become red/sore and two are cracking (not bad)and bleeding a little.

Anyone have any thoughts???

Thanks

Mr Happy

nvsmom Community Regular
nvsmom
Posted

Hi guys,

Just a quick question...

I don't know if it is related but everyone of my knuckles have become red/sore and two are cracking (not bad)and bleeding a little.

Anyone have any thoughts???

Thanks

Mr Happy

That happens to me in the autumn. I'm in a really dry climate though; semi arid. Plus I have Hashimoto's hypothyroidism so that makes my skin much drier than most people's I always have cracked fingers, feet or knuckles. My husband told me I could never be a foot or hand model... Oh darn! LOL

If it continues, you could have your thyroid tested. I'm really not sure if dry skin is a celiac symptom. Hmmm.

Good luck.

Pegleg84 Collaborator
Pegleg84
Posted

I get that too, somewhat, and figure it's more of a dry air/hard water problem than a Celiac thing. If it doesn't go away with moisturizing, etc, get it checked as it could be Dermatitis Herpetiformis (sp?), which is a skin problem associated with Celiac.

Oh, and even from my trip there earlier this year, the UK seemed pretty good in the gluten-free dept. I even got some nice bread at the supermarket! Fresh! Every B&B I stayed at was super accomodating, and found lots of gluten-free options at restaurants and such. So, it's a good place to be. I'm going back this Nov and will be self catering for a few days, so kind of excited to load up with stuff.

You might want to go easy on the breads and other processed stuff for a while though. Give yourself time to heal first. Our damaged guts can have trouble processing grains and processed stuff for a while. Good idea to cut out milk for a while too, as I think you said you're doing.

hope you can get in for tests quickly.

Cheers

Peg

IrishHeart Veteran
IrishHeart
Posted

Okay, I have to say it.

The name "Mr. Happy" gave me pause yesterday when I saw you listed under New Members. But I see it is not necessarily

a name for someone who appears in adult films, but rather a man who has indeed, become happier off gluten. :)

Here's a "whoohoo" !! and good for you!

Healing speaks volumes.

JNBunnie1 Community Regular
JNBunnie1
Posted

Okay, I have to say it.

The name "Mr. Happy" gave me pause yesterday when I saw you listed under New Members. But I see it is not necessarily

a name for someone who appears in adult films, but rather a man who has indeed, become happier off gluten. :)

Here's a "whoohoo" !! and good for you!

Healing speaks volumes.

HAHAHAHAHA!!!! you dirty girl you...

Mr Happy, you probably just have dry skin. Maybe your system is using up all your fluids to heal, who knows. Try to eat more salt, drink more water, and try Neutrogena Norwegian formula hand cream. Only thing that didn't hurt my skin when it was cracking and bleeding from working a housekeeping job.

Mr Happy Newbie
Mr Happy
Posted
  • Author

My secrets out,the adult films were a long time ago... ;)

Just a quick update, just had a battle with my doctor but they finally have given the go ahead for the celiac and mineral test at the hospital... Have also got the forms for my children to have them to.

Always the same at my doctors, they make you feel your making it up... I wasn't backing down though.

Do I still feel good? Yes I do and feel better everyday... Eating loads and have now nearly shed a stone in weight...

All the best everyone...

Keep it up

Mr Happy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748
    bostonbell
    Newest Member
    bostonbell
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.