Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Did You Come To Realize You Had A Dairy Issue?


mommyto2kids

Recommended Posts

mommyto2kids Collaborator

My dh and I are wondering if we should cut out dairy and are wondering what led to your decision if you have cut it out. Please explain your symptoms that led to your decision. Thanks so much. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

Stuffy nose. Ear and sinus infections. The big D.

ncdave Apprentice

For me it was the bloated belly, all i could wear was sweat paints or a bathing suit. (elastic wastband) It was very painful an unsightly. GFINDC yep ole hosehead recommended i try an give up dairy. I did give up dairy an it went completly away!!! Now even a trace amount of dairy an it comes back within 5-10 mins. extremly painful for 3-4 hours just with a trace amount of dairy. If you think dairy might be giving you a problem try an give it up for a month, when you try an reintroduce it i recommend only use a teaspoon an see what happens.

SMDBill Apprentice

I've had it my entire life, but I know when I consume milk or ice cream that there will be a lot of payback in the form of diarrhea, stomach pain, bloating and internal hemorrhoids. Sometimes even a bit of oily stool. It's rough, it hurts and it's never worth it.

I switched to Lactaid milk and I take a dietary enzyme (lactase) - 2 pills of 9,000 units each - when eating cheese or other dairy. I drink the milk nightly (well, it's Lactaid and Hershey's syrup) and that helps because the lactose is removed. The cheeses seem to be fine with the enzyme.

Lactose intolerance is fine with an enzyme for many with intolerance like myself. They're cheap as well. Target brand Up & Up pack of 12 was less than $3. Worthy investment for lactose intolerance.

GottaSki Mentor

Dairy was the toughest for me to figure out. I removed it once shortly after gluten and did not notice a difference so added it back in.

Much later I removed it along with many other foods during a strict elimination diet for several months. When I trialed each dairy item separately I was able to tolerate butter, some cheese and cooking with milk/cream. Was not able to tolerate yogurt at all. When I completed the elimination and added butter, cheese and milk back into my cooking on a regular basis I became consistently bloated -- removed those items and bloating went away.

I remain hopeful that I will get dairy back once my stubborn digestive system heals.

GFinDC Veteran

..GFINDC yep ole hosehead recommended i try an give up dairy...

:D Hah Hah Dave, you caught me! :) We hoseheads have to stick together I guess. :)

My lactose intolerance started after a virus went around. After i got over the virus I got bloated and D every time I ate dairy. Stupid virus hit most everyone in the office but I don't remember anyone else having that happen. That was 7 years before gluten-free.

I did use lactase for quite a while and it helped. Lactase is the enzyme that breaks down dairy sugar in the gut. After going gluten-free I thot things would improve and they did. But I still had symptoms and finally cut diary out completely. Cow dairy has a protein called casein in it and lactase doesn't do anything for that. So if you are intolerant to casein you just have to stop eating it. I've tried it a few times the past several years. Things start not too bad but get worse every day. Gut pain, C, D etc. I start getting bloody stool after 3 days or so and wise up. So I don't think dairy likes me much.

AnnJay Apprentice

My problems with dairy started about 10 years before I stopped eating dairy. My arms developed itchy red bumps. Then more. Then it started on my tummy. It kept getting worse, not better, so I finally realized it was something I was consuming daily. The bit of milk in my morning cappuccino was the culprit. For a while I could still tolerate ice cream but that soon stopped. I went off dairy for years. Then I started with little bits of dairy (meals at others' houses, for example) and took lactaid. That seemed to help.

Once becoming gluten free I started eating more dairy, mostly in the form of yogurt and with lactaid, as I thought it would help heal my guts. The itchy rash came back. So I'm back to dairy free, though if there's absolutely nothing else to eat that is the one from my list that I can tolerate a bit of, as in, better dairy than the 3 day misery called gluten, or the migraine headache called corn, of the headache stomach ache called soy. The stomach ache from nightshades isn't so bad either, but probably not conducive to healing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



love2travel Mentor

It became obvious that dairy was bothering me a few months after cutting out gluten. Within about 15 minutes after ingesting dairy, my stomach began to cramp and I became very bloated. Then the diarrhea began. I went off lactose for a few months which helped and re-introduced it. At first it was fine for several months but the last three months or so whenever I ingest dairy the same thing happens nearly immediately. So, now I eat very little cheese (unless it will be worth it to me and then I take Lactaid, i.e. when in Paris recently) and drink/cook with Lactaid milk. I really hoped this would not happen again but it is. :(

srall Contributor

I was so sick for awhile that I cut gluten and dairy at the same time out of desperation. So when i added dairy back in (for a split second) I realized that dairy was actually what was giving me the severe diarrhea. I think gluten was doing a lot of things to my body, but the dairy was what chained me to the bathroom. My daughter (child) also gets those itchy rashy bumps from dairy. I don't seem to get that.

mushroom Proficient

A co-worker suggested it when I would run to the restroom half an hour after eating frozen yogurt. Long before gluten was realized as a problem, I might add.

Pegleg84 Collaborator

I cut out dairy last year after struggling with sinus problems and dizziness. After all the inner-ear tests came back clear and the doctor looked at me like I was nuts, I read that salt and dairy can contribute to sinus problems, so I cut back on salt, then cut out milk (well, milk, then ice cream, then yogurt, then cheese ---i miss cheeeeese!--- and finally anything with dairy in it).

May I note that there's a difference between lactose intolerance, which is a reaction to the sugars in cow's milk, and casein intolerance, which is a problem with the milk protein. Casein is similar in structure to gluten, so one theory is that for people with Celiac, our bodies can think casein is gluten and have a similar reaction to it. Also, unlike lactose that can be removed, casein is in ALL milk products, and in smaller amounts in goat and sheeps milk as well.

i'd say at first you should try lactose free and/or lactose digesting aids and see if that helps. If not, it might be casein and you're going to have to cut dairy completely.

I'm still clinging to hope that I'll be able to go back to eating some cheese eventually. Butter and ice cream I have good substitutes for, but cheese cannot be replaced.

Good luck figuring it out!

Peg

burdee Enthusiast

I cut out dairy last year after struggling with sinus problems and dizziness. After all the inner-ear tests came back clear and the doctor looked at me like I was nuts, I read that salt and dairy can contribute to sinus problems, so I cut back on salt, then cut out milk (well, milk, then ice cream, then yogurt, then cheese ---i miss cheeeeese!--- and finally anything with dairy in it).

May I note that there's a difference between lactose intolerance, which is a reaction to the sugars in cow's milk, and casein intolerance, which is a problem with the milk protein. Casein is similar in structure to gluten, so one theory is that for people with Celiac, our bodies can think casein is gluten and have a similar reaction to it. Also, unlike lactose that can be removed, casein is in ALL milk products, and in smaller amounts in goat and sheeps milk as well.

i'd say at first you should try lactose free and/or lactose digesting aids and see if that helps. If not, it might be casein and you're going to have to cut dairy completely.

I'm still clinging to hope that I'll be able to go back to eating some cheese eventually. Butter and ice cream I have good substitutes for, but cheese cannot be replaced.

Good luck figuring it out!

Peg

Have you tried Daiya Cheese? I can't eat dairy or soy. Daiya is gluten, dairy, soy free cheese and as good as any regular dairy cheese I've eaten. BTW, I've been dairy free (after dx of IgA mediated casein allergy) since 2004. I've found good replacements for all my former dairy favorites (yogurt, cheese, milk, ice cream, margarine, etc.) I know I can't ever return to eating dairy w/o bad reactions, because I had a few accidental consumption incidents over the past 8 years. Each one was more severe and more lengthy recovery time. If you're doing well w/o dairy, I would not advise returning to eating dairy, unless you really enjoy your reaction symptoms.

gatita Enthusiast

I am one of the rare folks who was born with lactose intolerance -- couldn't even tolerate mother's milk! Parents went crazy until they figured out I could only handle goat's milk. (I was 6 weeks preemie, apparently that goes with being lactose intolerant).

Later it went away, but in recent years it has come to rear its ugly head again (I'm 55). Symptoms are extreme gas and bloating very soon after drinking milk or eating ice cream, most yogurts and some cheeses.

Hard cheeses like cheddar are fine, thank goodness. I love my cheese.

I swear by chewable Lactaid tablets (2 at a time) but I still have a hard time remembering to take them!

Pegleg84 Collaborator

Burdee, yep, I've had Daiya. It's ok but just not the same. I've used it for pizza and mac-and-cheese(like substance), but mostly it's gone untouched in my fridge.

However, as an experiement, (and also to make sure I won't keel over in the UK next week, where gluten-free is easy, but dairy free is pointless) I had a few small pieces of hard, aged cheese and, aside from a rather mild, temporary headache, I was fine!! No problems later either! YAAY! Of course, I tried a bite of soft cheese and immediately my body said No. No way. So: hard and old, ok for a little bit. No binging. Not often. But now I know it won't kill me. (maybe it is lactose and not casein after all... or maybe all the digestive enzymes and general caution has helped. Either way, it's promising)

Of course, you're going to have to figure out what/how much you're still ok with. I'd say cut it all out for now, and try it again in at least 6 months.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.