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Curious...

Skittles

By Skittles
in Coping with Celiac Disease

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Skittles Enthusiast
Skittles
Posted

How long do your symptoms last when you are glutened?

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1desperateladysaved Proficient
1desperateladysaved
Posted

For sure until I stop eating whatever got me. It took weeks before I figured out the buckwheat being cross contiminated.

Adalaide Mentor
Adalaide
Posted

Four to six weeks. It is positively awful, it's like being drunk for a month or more. I'm slurring words, bumping into things, losing my balance, can't carry on a conversation because I forget I was having one (sometimes mid sentence) and have the memory of a goldfish. That is without the pain and exhaustion. I think I'd rather be on the toilet for 6 weeks tyvm.

NorthernElf Enthusiast
NorthernElf
Posted

Somewhere in the area of a week - depending on how much gluten I ate - ie. cross contamination versus having a meal where the waitstaff erroneously told me it was gluten-free, the latter taking longer to get over.

For me, it also depends on what I do. My best plan is to eat very light, very safe (nothing that coud have any gluten), drink lots of water (lots), and rest. If I am feeling better, physical activity seems to help get me back on track. When I am "down" I also avoid all dairy and soy and graze because it almost seems to affect me like everything has gluten in it - my stomach gets pretty touchy.

srall Contributor
srall
Posted

Most of the time it's just a few days. Two times it's been about 3 weeks of pain pain pain. I think in those cases it was cumulative gluten over the course of days. Both times I was on trips out of the house.

gatita Enthusiast
gatita
Posted

Four to seven days, depending on the amount. When I did a mini-gluten challenge (small amount of pasta at one meal), it was more than a week.

bartfull Rising Star
bartfull
Posted

Gut symptoms: two or three days.

Psoriasis: two or three weeks

Jaw pain: Three to six weeks

Brain fog: The way I've been the past couple of days, I think that has moved in permantently! :lol:

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Adalaide Mentor
Adalaide
Posted

Brain fog: The way I've been the past couple of days, I think that has moved in permantently! :lol:

Are you sure that you aren't confusing your glutening symptoms with plain old.... well old age? :P

bartfull Rising Star
bartfull
Posted

Are you sure that you aren't confusing your glutening symptoms with plain old.... well old age? :P

Old? ME?! Well, yeah, I've got that. Or, I had that but I seem to have misplaced it. Um, what were we talking about anyway? :blink::lol:

Adalaide Mentor
Adalaide
Posted

Old? ME?! Well, yeah, I've got that. Or, I had that but I seem to have misplaced it. Um, what were we talking about anyway? :blink::lol:

I'm not sure I remember. One of those young whipper-snappers will be along shortly to get us back on track. :D (There is something magical about the day your child becomes an adult that just pushes you off that age cliff.)

CaliSparrow Collaborator
CaliSparrow
Posted

Somewhere in the area of a week - depending on how much gluten I ate - ie. cross contamination versus having a meal where the waitstaff erroneously told me it was gluten-free, the latter taking longer to get over.

For me, it also depends on what I do. My best plan is to eat very light, very safe (nothing that coud have any gluten), drink lots of water (lots), and rest. If I am feeling better, physical activity seems to help get me back on track. When I am "down" I also avoid all dairy and soy and graze because it almost seems to affect me like everything has gluten in it - my stomach gets pretty touchy.

Ditto so far. I'm a newbie with little experience but Northern Elf's response rings true for me. I'm on day four after being glutened in a restaurant eating gluten-free food. Although it started out pretty intense, this afternoon, my outlook on life became better which is one of the first signs of "the road back". There are symptoms going down the road and symptoms coming back. Today, I literally had no appetite and when I drank hot water with bitters, lemon & ginger syrup, it comforted me. Here is something I found and it seems to help on those days when my body is saying, "uh, no. No. Please don't put that in my stomach...":

Open Original Shared Link

Skittles Enthusiast
Skittles
Posted
  • Author

Thanks for the link CaliSparrow :)

CaliSparrow Collaborator
CaliSparrow
Posted

:-)

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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