Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are You Beyond Your Past Intolerances? Needed Answers For How To.


1desperateladysaved

Recommended Posts

1desperateladysaved Proficient

I am hearing so many that are struggling with intolerances and having extreme difficulty. They seem to need to avoid everything in their diet.

I am here to ask to hear from someone who has been there done that. We need to know how you did it.

Sometimes I am feeling so well lately, I am wondering if I have done it, but I want someone gluten free longer than 7 months.

I hope all will get there one day: Beyond intolerances.

If you are still in the process, you might describle how you are trying to overcome it.

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chaff Explorer

Diana, once again, we are totally on the same wavelength. Just sayin'. :rolleyes:

mushroom Proficient

Four that I am beyond: can eat all dairy now; can eat things with corn starch in them now; can eat things with potato starch now; can eat things with soy lecithin now. Small but significant steps in what can be added back into the diet. Pamela's baking mix, anyone? Udi's bread? Chocolate?

GottaSki Mentor

Took me a very long time to find all mine, but I can do small amounts of cocoa and I had a slip up a week ago and ate dairy - no reaction! I'm staying the course on my current list of foods since I've only been vertical again for a little over a month.

Mid-May I plan to trial many of my problem foods with the exceptions being gluten and histamine containing and histamine inducing foods.

Hang in there Diana - it really does get better and going without many foods doesn't bother me now that I'm feeling better - you will get here too :)

Edited to add...just read your tag -- sorry guess I should not have responded as I have not overcome many intolerances -- I just have every reason to believe I will.

bartfull Rising Star

Got corn starch back. Seem to have gotten nightshades back. Although I haven't tested ASPERIN yet, I seem to do OK with the salicylates in most fruits and veggies now. I can eat chocolate again too. :wub: There are a bunch of things I haven't tested yet.

How did I do it? By sticking to nothing but whole foods for a year. Then I added back one thing at a time, and only trying a new food once a month. And I really think that the fact that I went totally organic for the first six or eight months really helped.

JNBunnie1 Community Regular

I have been gluten free for 8 years, I developed a (likely stress-related) intolerance

of all things tomato a couple years ago. Gave myself a year off, tried it again, was good.

Sometimes, you just have no idea.....

Gemini Experienced

I have been gluten-free almost 8 years and the only other intolerance I have is to dairy. I haven't gotten that back so it's doubtful I will at this point.

I can eat small amounts like milk in my tea but can't eat ice cream, drink a glass of milk or eat anything with a big dairy hit. However, I am not too bothered by this because dairy isn't always the best thing to go heavy on. If you have asthma, which I don't, or have allergies where you can develop congestion from time to time, dairy is something to be avoided as it's very mucous producing. I feel clearer in my lungs and head when I don't eat dairy. Besides, there are alternatives like soy milk and almond milk, which I like so it's not a problem for me.

Other than that, I have healed to the point where I am doing well and rarely get sick from GI issues anymore.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Had to go grain- free in the beginning, did everything with nuts I ground myself, and at first dairy free, then a tiny bit of hard cheese, but after a nearly week - long storm damage power outage around 2008(?), realized that it would be easier in an emergency if I could tolerate some sort of packaged foods, so I gradually added in things like rice cakes and peanut butter. Finding an agreeable p-b was entertaining ("here, honey, could you finish this jar while I open a new one :rolleyes: ") but I got there. Was really amazing the first time I ate gluten-free pizza out and didn't suffer, took a while. Had to go back to avoiding cc in many gluten free grains with commercially prepared products because I can't do soy flour, flax or oats, but, fortunately I have the "baking gene" :D , got to taste what is possible, and I just make my own stuff, using the gluten-free Chebe tapioca as a base product, because at least that's in the hf stores around here.

I don't think of this as being "restrictive," because it certainly beats being crippled by neurological problems, so much as it is just being time consuming. I have family members who have actual food allergies and who must avoid other categories, which I can eat, so I think I'm fortunate, and I think that is actually a bigger problem, a sort of mental trick. They probably think the same thing. To each their own... B)

GottaSki Mentor

How could I forget.....I got almonds back - was nut free for over a year - still can't do cashews - haven't tried others yet. Almonds were a fantastic addition - I use whole raw almonds to make milk, flour, butters and the best thing is my cocoa "mousse" - yum!

cahill Collaborator

I have been gluten free for over 3 years , soy free over 2 years. I has taken me a very long time to identify all my intolerances.

I fought very very hard to keep corn ( that did not work out so well :blink: I am grain free ( with the exception of rice , which I limit ) Xanthum gum is totally of limits :ph34r: . Legumes and nuts I rotate in/out of my diet .Potatoes are not happening for me but now I can rotate tomatoes and peppers in /out of my diet.I have a lot of foods that I still rotate in/out of my diet .

The key to getting "past" your intolerances? I would think it would be identifying them. Then eliminating them to allow your body to heal, then reintroducing them ( one at a time) to judge your reaction to see if it is now something your body can tolerate.

Not to be a downer but, I do not expect to " get beyond" most of my intolerances. I was undiagnosed for an extremely long time. There was a lot of damage . I have A LOT of intolerances. Most of them are here to stay.I live with that every day and I am OK with that because for the first time ( probably ever in my life ) I am healthy :D And I am good with that :D

I did get dairy and eggs back :D ( two biggies to me :D )

  • 5 weeks later...
designerstubble Enthusiast

Just found this thread, been looking for some inspiration! It's a great topic (for me!), as I am SO struggling with just eating fruit & veg. It's so good to hear that some of you are actually getting a few foods back. I'd be happy with dairy, eggs, and corn. Life would be soooo much simpler. And happier.

pricklypear1971 Community Regular

I got back high iodine foods (egg yolks, potato, asparagus, dairy, sea fish, etc) after my DH cleared. Weaned back on them slowly. Took about 4-5 months total.

Can have more sugar now that adrenals have improved: that includes fruit and processed sugar. Drastically reduced it for months.

Have discovered sugar delivered with starch/grain is not good. I have no "stop" button. Sugar with coconut/nut flour hits the stop button. Problem solved.

My gut is much better, energy better, no rash (unless I get a virus then it seems to flare just a tad, but nothing that stops me). I attribute the bulk of "feeling better/energy" to time, healing, and finally being able to work out. That said, working out has been an adventure with a few setbacks. But overall, I move forward.

I've been gluten-free almost2 years.

  • 2 weeks later...
1desperateladysaved Proficient

I have a concern that  eliminating food could be conterproductive..  Someone might get malnourished as a result.  That is why I was wondering if anyone recovered when they had very few things left in their diet.  The whole thread has been interesting for me, though.  I was intolerant to some degree to most things I was eating.  Rather then just eat the ones Ihat I had left, I began a rotational diet.  I was puzzling which way to go, to take out every food that I had antibodies for, or the rotational diet.  The rotational diet has done well.  I didn't have  an IgE reaction to anything, so that is why I was allowed to eat all of the foods.  If a person has an allergic reaction, they would not have it in their rotation.

 

Any thoughts in these directions I would appreciate.

dilettantesteph Collaborator

My experience seems different from others here.  It has been close to 6 years now.

 

I hadn't been eating dairy for years when I was diagnosed, but I was able to add it back after about a year.  Then I started reacting to it again.  I found some grass fed milk locally and I can drink that, but when winter comes, the cows get wheat and I can't drink it anymore.  The same thing happened with eggs.  I was told that I must be intolerant of nightshades because I reacted to tomatoes.  Then I found someone at the market whose tomatoes I could eat.  Unfortunately she wasn't there the next year, but I had planted some of my own by then.  Same thing happened with rutabega, squash, potato, etc.  I would get quite sick sometimes from other sources, but when I grew my own I was good. 

 

As far a your questsion goes, I did seem to be able to heal with a limited diet.  I paid careful attention to getting all necessary nutrients and that can be difficult with a limited diet.  My diet is still pretty limited in the winter.  It would sure be a lot easier if I could find more sources of food that I could trust. 

 

It is really nice feeling this healthy.

cahill Collaborator

I found going organic resolved a lot of my issues . Meaning that it was the pesticides  ,waxes  ,additives and fertilizers  I was reacting to rater then the food its self .

Buying local organic fresh foods has made alot of foods tolerable.  Winter is tough but we deal :)

 

** just to add ** certain foods are off my consumable list permanently,,, meaning even if  organic  they are  NOT something my body tolerates .   Soy,Gluten,Sugar/Artificial sweeteners  and grains are OUT of my diet .

cahill Collaborator

I have a concern that  eliminating food could be conterproductive..  Someone might get malnourished as a result.  That is why I was wondering if anyone recovered when they had very few things left in their diet.  The whole thread has been interesting for me, though.  I was intolerant to some degree to most things I was eating.  Rather then just eat the ones Ihat I had left, I began a rotational diet.  I was puzzling which way to go, to take out every food that I had antibodies for, or the rotational diet.  The rotational diet has done well.  I didn't have  an IgE reaction to anything, so that is why I was allowed to eat all of the foods.  If a person has an allergic reaction, they would not have it in their rotation.

 

Any thoughts in these directions I would appreciate.

 

 

The malnourishment I suffer before my elimination diet was killing me. So eating foods that my body could  actually absorb ,, even though very limited in my selection ,, saved my life .

Removing those foods I was intolerant  of allowed my body to utilizes the foods it could actually absorb and allowed my body   to heal so that I could eventually add some foods back into my diet

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Theresa2407 replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    3. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Have Tru Joy Sweets Choco Chews been discontinued??

    4. - Scott Adams replied to chrish42's topic in Doctors
      6

      Doctors and Celiac.com

    5. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,261
    • Most Online (within 30 mins)
      7,748

    Joanne Ham
    Newest Member
    Joanne Ham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.