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  1. Scott Adams

    Scott Adams

    Admin

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      28,442

  2. cristiana

    cristiana

    Moderators

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  3. trents

    trents

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  4. Jmartes71

    Jmartes71

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Popular Content

Showing content with the highest reputation since 01/01/2026 in Posts

  1. suek54
    Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later. The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied...
    2 points
  2. Theresa2407
    Our support groups in Iowa have tried for years to educate doctors and resource sites like this one. We have held yearly conferences with continued education classes. We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott. In those many years we may have had 2 doctors attend. We sent them information, with no response. I talked to...
    2 points
  3. cristiana
    Watch this space! 😊
    2 points
  4. RMJ
    If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
    2 points
  5. Mettedkny

    Mallorca Guide

    Scott Adams and one other reacted to Mettedkny for a topic

    You already got some great recommendations. Just want to second that Mallorca (and Spain in general) is one of the best and easiest places for celiacs to travel. I have been to Mallorca multiple times and have never experienced any cross contaminations and there are SO many easy to buy options in regular supermarkets. Hope you have a wonderful trip.
    2 points
  6. trents
    Welcome to the celiac.com community, @GlutenFreeChef! Your question begs an ongoing controversy in the celiac community and you are likely to get a variety of answers from different responders. It is true that we have gotten numerous posts from celiacs traveling in Europe who state that they could eat wheat products there without getting a celiac reaction...
    2 points
  7. cristiana
    That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection. If do see my gastroenterologist I'll mention it again. I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm...
    2 points
  8. Scott Adams
    I had double hernia laparoscopic surgery two months go to repair both an Inguinal hernia (a recent home project injury) and an umbilical hernia (which I had for many years, but fixing it at the same time made sense), and am now more or less fully recovered. Recently on the forum someone mentioned the idea of hernia induced IBS, which I now believe was a real...
    2 points
  9. Scott Adams
    I am so glad you found this forum and shared your journey. Hearing about your experience navigating those major food holidays so soon after your October diagnosis truly highlights your strength and resilience, even through the inevitable learning curves with cross-contamination. It's normal to feel isolated, especially when in-person support seems scarce...
    2 points
  10. cristiana
    Hi @tiffanygosci Well done for reaching out, fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier. I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be,...
    2 points
  11. cristiana
    Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...
    2 points
  12. Jmartes71
    I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    1 point
  13. Theresa2407
    I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    1 point
  14. Jmartes71

    Medications

    Scott Adams reacted to Jmartes71 for a topic

    Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    1 point
  15. trents
    Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but...
    1 point
  16. Scott Adams
    Celiac disease is the most likely cause, but here are articles about the other possible causes:
    1 point
  17. Scott Adams
    I agree, unfortunately a gluten challenge means intentional gut damage and inflammation to those with celiac disease, and taking lots of AN-PEP enzymes could potentially decrease this and skew the results, although I've not seen specific studies on this idea.
    1 point
  18. Midwesteaglesfan
    Her results only showed greater then 100 which over 10 is considered positive. But American standards still recommend the endoscopy to confirm. And the Dr explained to us both the European and American standards and asked us what we wanted to do. We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the fut...
    1 point
  19. Cecile

    Symptoms

    Scott Adams reacted to Cecile for a topic

    Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time.
    1 point
  20. Jmartes71

    New issue

    Scott Adams reacted to Jmartes71 for a topic

    I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I get the shakes...
    1 point
  21. Jmartes71
    I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY
    1 point
  22. Scott Adams

    Symptoms

    Barbra S reacted to Scott Adams for a topic

    Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten ...
    1 point
  23. Flash1970
    Try heallix solution. It's at heallix.com It's a silver and fulvic acid solution. I just put it on a cotton ball and wiped the shingles area. I also took a little internally once a day. I can't remember how many times a day I applied to the area. Probably 3-4 times a day. It was the only thing that stopped the nerve pain. I don't know if the vaseline is...
    1 point
  24. Sue7171
    My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral. Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every...
    1 point
  25. Greymo
    https://celiac.org/glutenexposuremarkers/ yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    1 point
  26. jenniber
    same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    1 point
  27. knitty kitty

    Insomnia help

    cristiana reacted to knitty kitty for a topic

    @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    1 point
  28. Jmartes71

    New issue

    Scott Adams reacted to Jmartes71 for a topic

    Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local...
    1 point
  29. Lkg5

    Severe severe mouth pain

    knitty kitty reacted to Lkg5 for a topic

    My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    1 point
  30. Charlie1946
    @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor. I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle
    1 point
  31. Caligirl57
    Thank you Knitty Kitty, I will get this checked out. kind Regards, Caligirl57
    1 point
  32. trents
    From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound...
    1 point
  33. trents

    Severe severe mouth pain

    cristiana reacted to trents for a topic

    But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary.
    1 point
  34. Scott Adams

    Celiac for dummies

    pothosqueen reacted to Scott Adams for a topic

    This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
    1 point
  35. Caligirl57
    Hi Charlie, I was living in Harrogate, UK when I was diagnosed with lichen planus in my mouth. They are very painful sores in the mouth.The dentist there told me I should get tested for celiac disease as she said there is a strong correlation between the two. I also had stomach issues. I had an endoscopy and it confirmed I have celiac disease. I have...
    1 point
  36. trents
    I would note that the article linked here is putting forth a hypothesis, not presenting a scientific conclusion. And the one about zinc as a treatment for shingles is careful to say that the evidence is weak. It gets a "Source of validity" science rating of 2 out of 5.
    1 point
  37. Wheatwacked
    When I had my Shingles attack in 2019 my vitamin D was at 49 ng/ml. Doctor gave me an antiviral shot and 2 tubes of lidocaine. Sufficient intake of vitamin D and the antiviral essential mineral Zinc can help reduce risk of viral infections. I've been taking Zinc Glyconate lozenges since 2004 for airborne viruses. I have not had a cold since,...
    1 point
  38. Churro

    Celiac disease symptoms

    Scott Adams reacted to Churro for a topic

    I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    1 point
  39. tiffanygosci
    Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.
    1 point
  40. knitty kitty

    Positive biopsy

    Scott Adams reacted to knitty kitty for a topic

    In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    1 point
  41. hjayne19

    Insomnia help

    cristiana reacted to hjayne19 for a topic

    Thank you so much @knitty kitty I really appreciate this information. I’m so thankful to have found this forum and this community. After reading the book “at last a life” that @cristiana recommended, I have been experiencing a lot more anxiety than I thought I was. This book really helped me put things into perspective. In terms of the B com...
    1 point
  42. Scott Adams
    For the Inguinal hernia I could definitely feel it, and it came with an obvious bulge that appeared soon after doing a project where I was drilling holes on concrete using a very old school regular hand drill with mason bit, instead of a hammer drill with mason bit--this left me squatting over the drill putting my weight on it for several hours (the hammer...
    1 point
  43. Scott Adams

    Mallorca Guide

    cristiana reacted to Scott Adams for a topic

    Mallorca sounds like a great travel destination! This article may also be helpful--it contains a gluten-free restaurant card that might be handy when eating out:
    1 point
  44. cristiana

    Mallorca Guide

    Scott Adams reacted to cristiana for a topic

    Forgot to add... Quite a lot of 'tapas' are gluten free. Ones to look for: Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish. Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which...
    1 point
  45. cristiana

    Mallorca Guide

    Scott Adams reacted to cristiana for a topic

    Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about. I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type. There seems...
    1 point
  46. cristiana
    Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...
    1 point
  47. Aretaeus Cappadocia
    I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality...
    1 point
  48. Aretaeus Cappadocia
    fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    1 point
  49. Scott Adams
    If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.
    1 point
  50. Jmartes71

    Disregarded

    jenniber reacted to Jmartes71 for a topic

    Im beyond frustrated on so many levels. I have always checked labels , have to read everything. Allergic to everything foods and medications. My skin has sores, my body aches my eye is effected, im actively dealing with all these lovely issues, sibo positive, ibs, high blood pressure now dealing with depression because my new doctors after 25 years of many...
    1 point

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    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Gut nutrition supplements?

      By xxnonamexx · Posted

      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      Gluten free Yogurt suggest

      By Jane07 · Posted

      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
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