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Showing content with the highest reputation since 01/02/2026 in Posts
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Awaiting dermatitis herpetiformis confirmation following biopsy
knitty kitty and one other reacted to suek54 for a topic
Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later. The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied...2 points -
Doctors and Celiac.com
Jmartes71 and one other reacted to Theresa2407 for a topic
Our support groups in Iowa have tried for years to educate doctors and resource sites like this one. We have held yearly conferences with continued education classes. We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott. In those many years we may have had 2 doctors attend. We sent them information, with no response. I talked to...2 points -
Increased intraepithelial lymphocytes after 10 yrs gluten-free
knitty kitty and one other reacted to cristiana for a topic
Watch this space! 😊2 points -
If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.2 points
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Mallorca Guide
Scott Adams and one other reacted to Mettedkny for a topic
You already got some great recommendations. Just want to second that Mallorca (and Spain in general) is one of the best and easiest places for celiacs to travel. I have been to Mallorca multiple times and have never experienced any cross contaminations and there are SO many easy to buy options in regular supermarkets. Hope you have a wonderful trip.2 points -
Blood Test for Celiac wheat type matters?
Scott Adams and one other reacted to trents for a topic
Welcome to the celiac.com community, @GlutenFreeChef! Your question begs an ongoing controversy in the celiac community and you are likely to get a variety of answers from different responders. It is true that we have gotten numerous posts from celiacs traveling in Europe who state that they could eat wheat products there without getting a celiac reaction...2 points -
Healthy diet leading to terrible bloating
knitty kitty and one other reacted to cristiana for a topic
That sounds very hernia inducing work! You confirm what I have suspected, I get pain just to the right of the umbilical hernia, I am sure there is a connection. If do see my gastroenterologist I'll mention it again. I can't help thinking I've also got an issue in my groin, perhaps a hernia threatening, I guess an ultrasound would be needed to confirm...2 points -
Healthy diet leading to terrible bloating
knitty kitty and one other reacted to Scott Adams for a topic
I had double hernia laparoscopic surgery two months go to repair both an Inguinal hernia (a recent home project injury) and an umbilical hernia (which I had for many years, but fixing it at the same time made sense), and am now more or less fully recovered. Recently on the forum someone mentioned the idea of hernia induced IBS, which I now believe was a real...2 points -
Celiac support is hard to find
tiffanygosci and one other reacted to Scott Adams for a topic
I am so glad you found this forum and shared your journey. Hearing about your experience navigating those major food holidays so soon after your October diagnosis truly highlights your strength and resilience, even through the inevitable learning curves with cross-contamination. It's normal to feel isolated, especially when in-person support seems scarce...2 points -
Celiac support is hard to find
tiffanygosci and one other reacted to cristiana for a topic
Hi @tiffanygosci Well done for reaching out, fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier. I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be,...2 points -
Doctors and Celiac.com
Scott Adams reacted to Jmartes71 for a topic
I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...1 point -
Doctors and Celiac.com
Scott Adams reacted to Theresa2407 for a topic
I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...1 point -
need help understanding testing result for Naked Nutrition Creatine please
Scott Adams reacted to TheDHhurts for a topic
I wrote them back seeking clarification on their testing. The response was that they test to ensure the product is 5 ppm or under. So far no trouble with the product but I hate to see these companies drop the outside certification.1 point -
Medications
Scott Adams reacted to Jmartes71 for a topic
Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.1 point -
Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but...1 point
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Increased intraepithelial lymphocytes after 10 yrs gluten-free
cristiana reacted to Scott Adams for a topic
Celiac disease is the most likely cause, but here are articles about the other possible causes:1 point -
Going for upper endoscopy today
Scott Adams reacted to Midwesteaglesfan for a topic
Her results only showed greater then 100 which over 10 is considered positive. But American standards still recommend the endoscopy to confirm. And the Dr explained to us both the European and American standards and asked us what we wanted to do. We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the fut...1 point -
Symptoms
Scott Adams reacted to Cecile for a topic
Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time.1 point -
New issue
Scott Adams reacted to Jmartes71 for a topic
I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I get the shakes...1 point -
Doctors and Celiac.com
Scott Adams reacted to Jmartes71 for a topic
I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY1 point -
Symptoms
Barbra S reacted to Scott Adams for a topic
Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten ...1 point -
Shingles - Could It Be Related to Gluten/ Celiac
Scott Adams reacted to Flash1970 for a topic
Try heallix solution. It's at heallix.com It's a silver and fulvic acid solution. I just put it on a cotton ball and wiped the shingles area. I also took a little internally once a day. I can't remember how many times a day I applied to the area. Probably 3-4 times a day. It was the only thing that stopped the nerve pain. I don't know if the vaseline is...1 point -
Shingles - Could It Be Related to Gluten/ Celiac
Scott Adams reacted to Sue7171 for a topic
My husband just had shingles going on 7 weeks now. We had been putting Vaseline on the blisters and lidocaine cream and he was prescribed an antiviral. Also he still has the nerve pain it was bad and is getting better it is his upper left torso. His dr prescribed gabapentin 300mg 3x a day and he's also taking naproxen 500ng 2x a day and tylenol 1000mg every...1 point -
Violent reaction to gluten after going gluten-free?
Scott Adams reacted to Greymo for a topic
https://celiac.org/glutenexposuremarkers/ yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.1 point -
Celiac support is hard to find
Scott Adams reacted to jenniber for a topic
same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)1 point -
Insomnia help
cristiana reacted to knitty kitty for a topic
@cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...1 point -
New issue
Scott Adams reacted to Jmartes71 for a topic
Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local...1 point -
Severe severe mouth pain
knitty kitty reacted to Lkg5 for a topic
My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.1 point -
Severe severe mouth pain
knitty kitty reacted to Charlie1946 for a topic
@knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor. I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle1 point -
Severe severe mouth pain
knitty kitty reacted to Caligirl57 for a topic
Thank you Knitty Kitty, I will get this checked out. kind Regards, Caligirl571 point -
But for someone with Barrett's like @Charlie1946, long term PPI therapy might be necessary.1 point
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Celiac for dummies
pothosqueen reacted to Scott Adams for a topic
This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):1 point -
Severe severe mouth pain
cristiana reacted to Caligirl57 for a topic
Hi Charlie, I was living in Harrogate, UK when I was diagnosed with lichen planus in my mouth. They are very painful sores in the mouth.The dentist there told me I should get tested for celiac disease as she said there is a strong correlation between the two. I also had stomach issues. I had an endoscopy and it confirmed I have celiac disease. I have...1 point -
Shingles - Could It Be Related to Gluten/ Celiac
cristiana reacted to Wheatwacked for a topic
When I had my Shingles attack in 2019 my vitamin D was at 49 ng/ml. Doctor gave me an antiviral shot and 2 tubes of lidocaine. Sufficient intake of vitamin D and the antiviral essential mineral Zinc can help reduce risk of viral infections. I've been taking Zinc Glyconate lozenges since 2004 for airborne viruses. I have not had a cold since,...1 point -
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Celiac support is hard to find
Scott Adams reacted to tiffanygosci for a topic
Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for.1 point -
Positive biopsy
Scott Adams reacted to knitty kitty for a topic
In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/1 point -
Thank you so much @knitty kitty I really appreciate this information. I’m so thankful to have found this forum and this community. After reading the book “at last a life” that @cristiana recommended, I have been experiencing a lot more anxiety than I thought I was. This book really helped me put things into perspective. In terms of the B com...1 point
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Healthy diet leading to terrible bloating
cristiana reacted to Scott Adams for a topic
For the Inguinal hernia I could definitely feel it, and it came with an obvious bulge that appeared soon after doing a project where I was drilling holes on concrete using a very old school regular hand drill with mason bit, instead of a hammer drill with mason bit--this left me squatting over the drill putting my weight on it for several hours (the hammer...1 point -
Mallorca Guide
cristiana reacted to Scott Adams for a topic
Mallorca sounds like a great travel destination! This article may also be helpful--it contains a gluten-free restaurant card that might be handy when eating out:1 point -
Help understand results
knitty kitty reacted to Aretaeus Cappadocia for a topic
tldr: "we tested your daughter with one test and that result does not suggest Celiac. However, the test we used should not be used as the initial screening test for celiac (like it appears they did) because it misses a lot of cases ("low specificity"). No further testing is scheduled or pending" We eat "gluten" and our bodies digest part of it into ...1 point -
Mallorca Guide
Scott Adams reacted to cristiana for a topic
Forgot to add... Quite a lot of 'tapas' are gluten free. Ones to look for: Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish. Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which...1 point -
Mallorca Guide
Scott Adams reacted to cristiana for a topic
Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about. I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type. There seems...1 point -
Newly diagnosed mam to coeliac 11 year old
knitty kitty reacted to cristiana for a topic
Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK. Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs. If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend...1 point -
Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...1 point
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Severe severe mouth pain
knitty kitty reacted to cristiana for a topic
Hi @Charlie1946 You are very welcome. I agree wholeheartedly with @knitty kitty: "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis. I noticed it after standing in cold wind, affecting...1 point -
Disaccharide deficient, confusing biopsy results, no blood test
jenniber reacted to Scott Adams for a topic
If your tTg-IgA was 28 and positive is at 3, you are nearly 10x over the positive marker, so the most likely explanation by far would be celiac disease. I also do not understand why your doctor would not want to run the blood test, which is the normal first step in the diagnosis process.1 point -
So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...1 point
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Thoughts? Non-endoscopic Celiac diagnosis in two year old
Scott Adams reacted to Russ H for a topic
The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much...1 point -
Im beyond frustrated on so many levels. I have always checked labels , have to read everything. Allergic to everything foods and medications. My skin has sores, my body aches my eye is effected, im actively dealing with all these lovely issues, sibo positive, ibs, high blood pressure now dealing with depression because my new doctors after 25 years of many...1 point
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Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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By Scott Adams · Posted
What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response. -
By Scott Adams · Posted
Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
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