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Gemini

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Everything posted by Gemini

  1. Gemini
    Hi Lucy, While I cannot help out with a specific place to stay, I will say that Boston is an extremely progressive city when it comes to Celiac Disease so wherever you book, just tell the waitstaff or manager about your dietary needs and I am positive that they will accommodate you. Boston is filled with many excellent restaurants which cater to Celiac...
  2. Gemini
    I use these in baking all the time, Jason, and as an extremely sensitive Celiac, have had zero issues with them. They add a nice crunch to cookie recipes! I am not allergic or intolerant to anything but gluten and dairy so I guess the only way you will know if they are safe for you to use is to give them a whirl. They are gluten-free, though, no doubt on...
  3. Gemini
    The information that Pantene replied with is 100% correct. I don't know about you but I do not make a habit of ingesting beauty products. Why do you assume that these products will end up in your mouth? There are many, many Celiacs who do not screen their topical products, except for lip balms, and never have a problem. It is a choice issue and not mandatory...
  4. Gemini
    Brooke...one of the biggest causes for headaches, and one that is never addressed by any doctor, is dehydration. If you don't drink enough water and load up on coffee or tea in the morning, then a headache will set in by the time you mentioned in your post. I had the same problem a few weeks back and by coincidence, it was during a very cold and dry snap...
  5. Gemini
    I agree with this and the AGA tests are used for dietary compliance testing after a diagnosis. Many doctors make the mistake of only running the Ttg after a diagnosis and this is not correct....other autoimmune problems can cause elevated Ttg. There may be more, newer tests for diagnosis but the AGA remains the best test for finding out whether you are ingesting...
  6. Gemini
    larry mac gave an excellent post on your question and I'll add my 2 cents worth.....people constantly confuse a Celiac reaction to an allergic reaction and there is a huge difference. You absolutely have to ingest wheat into your gut for a Celiac reaction to occur. As your question was concerning hair dye, I HIGHLY doubt you have ingested that because you...
  7. Gemini
    Type 1 diabetes AND Celiac Disease will both raise Ttg levels, along with other autoimmune diseases. It could be from one or both but since your son had a lot of inflammation in his gut on scoping, it sounds like he has Celiac also. The inflammation stage occurs before actual villi flattening. A doctor will only diagnose Celiac if the villi are flattened...
  8. Gemini
    Like yourself, I wash all my towels together and don't worry too much about separating bathroom stuff from kitchen stuff. They are being washed, after all, and a good washing with soap will clean everything just fine. You cannot get sick from a towel unless someone wipes their gluteny mouth all over one and then you put that into your mouth......which is...
  9. Gemini
    The only fault I could find with this letter is that you apologize too much for the way you live your life. I, too, have written letters to my father but mine were about his alcoholism and it's effects on me. I will tell you that letters are a good thing....they allow you to communicate your feelings without making people uncomfortable by addressing the...
  10. Gemini
    I never said that drug companies were monsters. If you re-read my post, I said their selling tactics weren't on the up and up. They absolutely try to convince doctors and patients that only Synthroid works the best and Levoxyl should not be used. The vast majority of doctors that I went to pushed Synthroid over everything else.....especially the more natural...
  11. Gemini
    This is pretty good advice.....jury duty can be easily accommodated for almost anyone. Cold packs can be used in a lunch bag so there should be no problems bringing good food into the courthouse. In fact, your lunch will be far healthier than what most jurors get stuck eating.....sandwiches or pizza in my state. As for being sequestered, that rarely happens...
  12. Gemini
    Bear......I am happy to hear that your WBC has gone up! With all of the symptoms and health issues you describe, it sounds like you have Celiac and the doctors have just not been able to diagnose you. The rise in your counts could very well be from eating gluten-free. I have 4 autoimmune issues in total so I am not so sure if mine will ever rise up to a...
  13. Gemini
    On your income taxes, you can deduct the difference in cost between gluten-free food and non-gluten-free food but that pretty much only covers processed foods like bread, boxed stuff and not fruits and veggies or meat. You also have to have it exceed 7 1/2% of your adjusted gross income. Good luck with that. I am not sure how it works with the HSA but...
  14. Gemini
    I am so sorry you are having to deal with this BS! It's one of the reasons I do not go to endocrinologists...they tend to make you wait until you are half dead before they treat symptoms. I go to a functional medicine MD and she has been a lifesaver for me. Your TSH is high and out of range. Anything over 2.5 is considered hypo-thyroid, according to...
  15. Gemini
    I went on a candida diet years ago, twice for a period of 1 year each time, to treat a candida problem. I think it was a result of undiagnosed Celiac Disease and my insides were all messed up. It helped tremendously and curbed some of the Celiac symptoms also. This was before I knew I had celiac disease and when you think about it, much of the diet is gluten...
  16. Gemini
    This is a bunch of baloney perpetrated by drug companies to keep people on Synthroid and paying more money for their meds. I have been hypo-thyroid and on thyroid hormone for close to 20 years and refused Synthroid in the beginning because of the cost difference. Levoxyl is the same med as Synthroid, only it's generic form and works extremely well for most...
  17. Gemini
    The correct test for monitoring dietary compliance is not the tTg test but the AGA IgA and AGA IgG blood tests. This happens all the time and I cannot figure out why so many doctors make this mistake. The reason why they should not use the tTg is because there are more autoimmune issues which may cause a high reading, like Hashimoto's thyroid disease, autoimmune...
  18. Gemini
    Your Gliadin antibody test (IgA) was high, meaning your are producing antibodies to gluten in your blood. This is a pretty reliable test for those who are serio-positive. A low tTg may possibly mean that you haven't had enough damage done to your intestinal tract to show damage in blood work....yet. So, having a high AGA IgA and negative tTg means you are...
  19. Gemini
    All of your symptoms are indicative of a possible hyper-active thyroid problem so I would advise you to go and get tested for that, with a FULL thyroid panel done. I went seriously hyper last spring because I have healed so well on the gluten-free diet and started to absorb my nutrients again so the dose I had been taking for years was suddenly too much....
  20. Gemini
    This is partly correct information, except for it being normal for anything to pass through opened junctions. That is Celiac Disease and we know that is not normal bowel function. However........the GI tract is a closed loop system. When healthy, nothing should get in or out by any other means than your mouth and your bum. The process which takes place when...
  21. Gemini
    I was also diagnosed with Hashi's way, way before the Celiac diagnosis and if you have very high TPO numbers for your thyroid, something is aggravating your system and preventing that number from falling back to normal(or near to normal). For me, it was gluten. By the time I was tested for celiac disease, I failed all the panel tests BUT many people have...
  22. Gemini
    I'm going to add my 2 cents in here because some of the information you have been given differs greatly from what I have learned about Celiac Disease. I would first suggest you read the book: Celiac Disease: The Hidden Epidemic because it explains the disease process and how you can actually become glutened....fact vs. fiction, so to speak. Any true Celiac...
  23. Gemini
    I also suffer from on and off again anemia but I have linked it to my thyroid. Hypo-thyroid will cause anemia and I am trying to adjust to a new thyroid supplement (Rx) that I have switched to. I have a compounded form done at a compounding pharmacy to ensure the med is gluten-free. I also do this because I need both T3 and T4.....my thyroid was trashed by...
  24. Gemini
    It really depends on how well you feel you are doing. I was not diagnosed by a GI doc and never went to see one. There was too long of a wait for an appointment so I relied on my thyroid physician for diagnosis and I got that via blood work....I failed all of the panel tests by huge numbers. I also was textbook Celiac, as far as symptoms went, so it was a...
  25. Gemini
    Yes, all my numbers are in the normal range now and my repeat testing measuring for gluten ingestion are on the low end of normal. At the time I had the ridiculous IgA numbers, I was totally messed up, my allergies were out of control, I was sick all the time and when the blood testing came back, the doctors were dumbfounded and didn't know what to do to...
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