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Gemini

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Everything posted by Gemini

  1. Gemini
    Hi Elle......do you think you would have better luck obtaining a full Celiac panel from your GP or a gastro doc? You really need to be tested for Celiac because of all your symptoms. Many other people probably thought they were dying of some horrible disease because they had so many symptoms that docs ignored. Very common problem for us. Plus, your Mom...
  2. Gemini
    For dining out, check out the website: http://Www.findmeglutenfree.com. They list restaurants with gluten free menu's and options in your area and there are reviews from other celiacs on there to help you figure out the better, safe places to eat. Great web site! Although it is optimal to not dine out at first, reality sometimes gets in the way....
  3. Gemini
    If your son had a full Celiac panel done and more than 1 test was very positive, and taking into account he has Down's, I would be feeding him gluten free regardless of what the medical profession had to say about it. Kareng is correct...those with Down's have higher rates of celiac. I know a family whose son was misdiagnosed for YEARS and he has Down's...
  4. Gemini
    To be honest, I never ate bone broths and sauerkraut while healing and didn't notice I needed to. However, the probiotics are something that should be taken forever because our guts, or Microbiome as they so fancily call it nowadays, has been compromised so badly by Celiac, that I feel its a win-win thing to do. I always run smoother when using them....
  5. Gemini
    Actually, for adults, this is not true. If you have a full blood panel and test positive on the IgA/tTg and the EMA, that is a slam dunk for Celiac and no biopsy is needed....unless you want to have one. There is also the criteria that is used in adults if biopsy is not possible or wanted. Open Original Shared Link This rule does not apply to...
  6. Gemini
    Please remind of how long you have been gluten-free? If you are still fairly new to the game, then it could be just one too many biscuits or processed foods right now and that will get better as you heal. I also have a dairy intolerance that never completely went away. I can do dairy lite but some times, I guess I have just enough extra dairy in my diet...
  7. Gemini
    Dr. Rodney Ford's viewpoint is not accepted by mainstream medical establishments. I am in no way defending the mainstream guys because they kept me sick for years. However, there is no test for gluten sensitivity that is specific or sensitive enough to use as a diagnostic tool. People without Celiac but have an obvious reaction to gluten do better figuring...
  8. Gemini
    I would say that this shows you have Celiac Disease...with a tTg/IgA that high and the corresponding numbers for your DGP, that is more than just a little positive! To answer your questions as best I can......the older versions of the testing for dietary reaction to gluten, gliadin IgA and IgG, do not test for gluten sensitivity. There is no test...
  9. Gemini
    While it is less likely someone without either of the 2 Celiac genes actually has Celiac, it is not impossible. She may be gluten sensitive but you should make the effort to find out if it is Celiac vs. gluten sensitivity because with Celiac, damage occurs to the small intestine. That is really important to know. As far as being protected in school...
  10. Gemini
    I think that is a good plan. You may as well do the EGD to see how you are doing for the reasons you stated. Once that is done, then you can decide what to do next, as far as having a GI or not. Unless other symptoms or issues arise, just following the gluten-free diet will keep you in better health. Honestly, in 11 years gluten-free, I have never needed...
  11. Gemini
    Boar's Head anything are gluten free and can be completely trusted. Great company!
  12. Gemini
    Just a heads up.......cardiac problems like the ones you have experienced are VERY COMMON with Celiac Disease. I had an abnormal EKG once when I was still recovering from Celiac but my doc did not send me to a cardiologist because my weight was still very low and having low weight can exacerbate/cause cardiac problems. My cardiac work-up in her office...
  13. Gemini
    Yup...I know the feeling. Since I started working out to combat the osteoporosis, I eat sandwiches as snacks...LOL! I lose weight very quickly but a lot of that is due to the weight training. I am telling all those who want to lose weight and keep it off? Weight train. Once you have more lean muscle as opposed to fat, you burn calories like a trooper...
  14. Gemini
    Hello Carie.......just something to think about here. Scalloping of the duodenum can occur with undiagnosed Celiac. The duodenum changes shape because villi are blunted or destroyed and that can change the surface tension, causing the scalloping. It sounds like they missed the damaged spots in your intestine, which is another common problem with diagnostic...
  15. Gemini
    You know, Courtney.......you have a great sense of humor! That last line really made me laugh!
  16. Gemini
    I do have one thing to add to this already great thread of help for Courtney.....I know some of you advise no carbs or sugar or dairy in the beginning but when some of us have dramatic weight loss, they will need the carbs to stabilize their weight. I was not absorbing much of anything at diagnosis and weighed 92-94 pounds, which was 20 pounds underweight...
  17. Gemini
    I hope you will bear with me on my opinion because I do things differently than many. The reason for that is because my experience years ago when trying to find out why my gut hurt so bad was every bit as annoying and frustrating as yours, so I do understand how you feel. I do not have and never did have after diagnosis, a GI doctor. Maybe if I had...
  18. Gemini
    Did they do a complete Celiac panel or just the tTg? If you had the complete panel and had more positives other than just the tTg, then that would be a diagnosis without the biopsy. The tTg plus a positive EMA is a slam dunk for Celiac. Otherwise, it will be harder to have a definitive diagnosis. Bear in mind that you could still have a negative biopsy...
  19. Gemini
    I, too, have been thinking about Barty lately and it was hard not knowing how she was doing. This is still a shock and difficult to hear, knowing how hard she worked to recover from Celiac. Her presence is sorely missed on here but I know I will never forget her. Rest in peace, dear Lady. You made quite an impression on us all.
  20. Gemini
    I have had Warburton's bread when on vacation in the UK and it is delicious! Their wraps are the best I have ever had anywhere. I do not have a problem with their products but I have been diagnosed for 11 years now. I think they are a dedicated facility, if I remember correctly. You have quite a few intolerances right now so that probably plays into it...
  21. Gemini
    There is so much incorrect information in this post, I felt the need to respond. My intention is not to ruffle any feathers so bear with me. The word is not still out on whether gluten is absorbed into your skin. Everything that you put on your skin does not enter your system. You cannot compare essential oils and plant essences to gluten. The Mayo...
  22. Gemini
    I think this is a good approach to solving your problem of employment and recovery. You can work while recovering but it needs to be a more sedate job with regular hours. Trying to sell your house and car for something more affordable is going to create more stress for you. I view those things as last resort measures because if you are able to find another...
  23. Gemini
    Low body temps are pretty standard with low thyroid. Mine is still low after using thyroid hormone for years but I feel fine. My thyroid numbers are good. Like others have said, you are driving yourself too hard. Getting that little sleep and traveling while trying to recover from Celiac damage is almost impossible. I doubt you have something else...
  24. Gemini
    It can be how you look at yourself too. I have 4 AI diseases, osteoporosis and right now, due to allergy season, am having a Sjogren's flare. But if you ask me, I will truthfully tell you that I am fine....because I am. It's going to take a lot more than this crap to pull me under......I just won't let these problems win. I do feel extra pain for...
  25. Gemini
    This is so true. While gluten can directly cause severe depression, that should improve with healing on the gluten-free diet. However, life can throw us curve balls which may make us depressed also. That doesn't mean you are unknowingly ingesting gluten or not healing. It can be so tough to figure out sometimes.
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