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GFinDC

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Everything posted by GFinDC

  1. GFinDC
    Hi RN, You can ask him about the Marsh scale rating for your villi. Could ask if there are any celiac aware nutritionists around too. Are there any other tests they recommend? Often a bone density test is done. Many celiacs have lower bone density when diagnosed. But that should improve by itself after you have been gluten-free for a while. How...
  2. GFinDC
    What's the brand name of the crackers Joe? Have you checked their website to see what the ingredients are and if they have any info on the gluten-free status?
  3. GFinDC
    You can gluten-free pizza at Z-Pizza also. Chex cereals are gluten-free and so are Pebbles. I think Rice Krispies are gluten-free now too. They should be marked gluten-free on the box. Gorilla Munch is another gluten-free cereal. And there are others too. Check the local health food or organic grocers gluten-free section. Most of the food he eats...
  4. GFinDC
    Hi Bekkaz, There are some natural medicines you can try for stomach issues. DGL (mostly natural) and mastic gum are both good for some things. They won't hurt you and might help. Celiac disease is not an allergy, so skin prick testing won't detect it. People can have both allergies and celiac disease at the same time though, that does happen sometimes...
  5. GFinDC
    Hi RLAZ, It sounds like you made breading to coat the chicken. Are you sure any spices you used were gluten-free? Another possibility is the rice flour itself. Just because it is rice flour doesn't mean it is safe. Tricia Thompson did some testing on various flours that would normally be thought of as gluten-free, like rice flour, corn flour etc....
  6. GFinDC
    Pepto Bismol and aspirin. Lots of water and pro-biotics. Maybe some peppermint tea.
  7. GFinDC
    Right, the body makes several different types of antibodies cells. Having a positive reaction on one test is a solid positive result. You don't need a positive on all the tests to prove there is an immune reaction. A reaction is a reaction. Your body is doing something in response to eating gluten that is not normal. It is not real uncommon for us...
  8. GFinDC
    Hi Leis, This page link to Livestrong.com has a list of various conditions / symptoms in the tongue. I didn't see where it talked about tongue swelling for MS. But there are quite a few conditions listed that can cause tongue symptoms. Open Original Shared Link The ataxia lesions in celiac disease are sometimes called UBO's (unidentified bright...
  9. GFinDC
    Hi Sarah, I've had some problems with heat also. And other things for that matter. For me my worst symptoms were resolved by eliminating various foods from my diet. I went gluten-free when I found out about my celiac disease. But over the years since then I found out I have reactions to otoer foods besides wheat, rye, barley and oats. I found out...
  10. GFinDC
    That's great they can get you in sooner Sarah. How about the blood antibodie tests? Will they do those also? If they can test you for vitamin and mineral levels that would be good. Celiac damage to the gut can make it hard for the body to absorb vitamins and minerals. So that is another indicator of possible gut damage. Plus you will know what is missing...
  11. GFinDC
    Hi CE, Welcome to the forum! Doctors used to think children "grew" out of celiac disease because they sometimes had a "honeymoon period" where they had reduced symptoms and improved health. That turned out to be wrong, as did a lot of other things doctors believed about celiac disease. People don't outgrow celiac disease. The symptoms may be less...
  12. GFinDC
    Hi Sarah, the University of Chicago celiac center is another option. It might be a closer trip? There are celiac disease centers IN other parts of the country too. Weight gain may not be the typical celiac presentation, but there have been more than a few people who had weight gain with celiac post on the forum. Your doctor should be able to order...
  13. GFinDC
    Hi Jamie, The other part of celiac testing besides the endoscopy is blood anitbodie tests. So, if you haven't had those done yet I'd suggest waiting until those are done before starting the gluten-free diet. If you stop eating gluten before all the testing is done it can negatively affect the test results. One other thing that is common enough with...
  14. GFinDC
    Thanks Lisa. Very interesting documentary.
  15. GFinDC
    That's great that you made it to the dinner Diana. And it wasn't as bad as you thought it might be either? Picking a place that doesn't do baking or make pasta from scratch should go a long way toward avoiding cc. Many restraunts have their bread delivered, including buns. So they don't bake them from scratch. They sometimes just warm them up.
  16. GFinDC
    Yep, things do change. Some of the celiac centers sponsor conferences on celiac disease. I suppose a patient could suggest their doctor go to one. Another thing that was a clue I missed is lactose intolerance. I developed lactose intolerance years before finding out I had celiac disease. It's probably one of the most common early signs that people...
  17. GFinDC
    If you have problems with raisins then you should be careful of wine, grape jelly, or jam, and things sweetened with grape juice. Some gluten-free products use grape juice as a sweetner. And yep, it is an old thread, and the OP never replied. but welcome to the forum! feel free to ask questions. We might be able to help.
  18. GFinDC
    Hi Txplowgirl, Your improvement when gluten-free plus villi blunting sure seem like strong indicators of celiac to me. Not having total villi destruction as a criteria for celiac is wrong. The Marsh scale rates villi damage at various levels, and not just as the worst damage. Your GI doc should be able to tell you your Marsh scale rating. For that...
  19. GFinDC
    Ya know, once you get up on one of these soap boxes it's really too high to come down quickly. I don't agree with the argument that other people are making restraunt workers screw up gluten free orders. If the restraunt staff does something wrong, that is their responsibility. It;s not the responsibility of a third party, who probably isn't even there...
  20. GFinDC
    Hi Afterall, For ulcers you can try DGL and mastic gum. Blessed thistle may help too. Betaine HCL makes stomach acid and that can help also.
  21. GFinDC
    I actually think it's great when other people try the gluten-free diet. There are so many of us undiagnosed because of medical incompetence it seems likely at least a few real celiacs will discover their issue that way. Heck, we know there are people walking around with silent celiac too, who might never be diagnosed if they don't get the idea in their...
  22. GFinDC
    Hi Ali, Try following the tips below for a few months and see if things improve. It can take quite a while for the gut to heal and anything we can do to help the process along is good. Personally I wouldn't use soy and there are several other people on the forum who react to it. If you do some reading on soy and intestine issues it isn't real good...
  23. GFinDC
    Hi Home22, Your symptoms could be related to celiac disease. There are many celiac disease symptoms, and many of them are not in the gut. Some people have no gut symptoms at all in fact. They call that "silent celiac". You can get an endoscopy with 6 or so biopsy samples to test for villi blunting in the small intestine. You can also get blood...
  24. GFinDC
    After a doctor visit the office staff called and said they were worried about my cholesterol levels. They said my tests showed my HDL / LDL was way off and the LDL was too high. A few days later they called back and said oops, we goofed. Actually my cholesterol was great, they had read the test results wrong. They said my cholesterol ratio was one...
  25. GFinDC
    Great article, very helpful. Now if we can just get the beer makers to confirm they use the competitive Elisa vs the sandwich Ellsa testing...
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