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lizard00

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Everything posted by lizard00

  1. lizard00
    My doctor did the genetic test on me, and we discovered that I carried a double copy of the gene most commonly associated with celiac disease. I, too, wondered why my mom (I'm actually wondering if my dad is just undiagnosed) has never developed it. She had 4 babies, has had 2 surgeries, and more than her fair share of stress. I think that if the gene were...
  2. lizard00
    Seriously Peter, send me some! That sounds delish! I'm going to have to store this one away. I'll have to figure out an egg free way to make it though.
  3. lizard00
    I would also say go for the elimination diet. I initially did this because I was having a heck of a time with my asthma, and by accident discovered that I was celiac. Through another process of elimination, I discovered that I can tolerate small amounts of dairy (I really shouldn't eat it at all, but I seem to have no dairy will power), but soy will make...
  4. lizard00
    I don't obsess over wine either. Not that I can drink it right now... I know with certainty that I react to sulfites. There are some wines that I can drink 1/2 glass of, and feel like I am going to crawl out of my skin for the next few hours, which usually includes a pretty nasty headache, stuffiness and sometimes airway restriction. I have been known...
  5. lizard00
    I felt that since this was worded so nicely, it was worth repeating. Thank you We are members here just like everyone else; doing our best to manage our health and learning as much as we can.
  6. lizard00
    I LOOOOVVVEE Kona coffee... in NC it runs around $20-30/pound.
  7. lizard00
    Plain coffee is not usually a problem, although you have to check on flavored coffees. My last glutening was from a flavored coffee... the last place I suspected. I drink plain coffee every morning with no problems at all
  8. lizard00
    I'm assuming your quoting Dr Green there. While he has made incredible strides in the field of Celiac research/awareness, I don't put faith in any doctor who makes a blanket statement. I am not about to argue with people who say they react to gluten topically, as there is no research to state otherwise. The opinions of a few quoted doctors doesn't make it...
  9. lizard00
    LOL That gave me quite a chuckle. I find this topic to be fascinating, as there are two definite groups of people are believe they are right. I personally stay away from topical gluten as well. I threw away a face cream that someone gave me because it had wheat germ in it. I am certainly not going to ingest it, but I can assure you that I would've...
  10. lizard00
    My doc told me that while we are all intolerant, we have different levels of sensitivity. Which basically I took to mean that since some people are asymptomatic, but still doing damage, those of us that are much more sensitive aren't necessarily doing any more damage than the asymptomatic person. We just have a stronger reaction, or react to much less, than...
  11. lizard00
    Eating soy initially gives me somewhat of a similar gluten reaction. I get really nauseous, get a headache, feel overall icky. BUT, the difference between the two is that a true gluten reaction takes me a week and a half to get over. Once the soy passes through my system, I'm ok. So, it's just a matter of hours. It's a rough few hours, but at least it doesn...
  12. lizard00
    I don't like Dasani either, it makes my tummy unhappy,too. Though, I am a bit of a water snob. My favorite is Le Bleu, which is a local company. They are as close as I get to distilled water, which I grew up drinking. Most other bottled waters taste like they came straight from the tap- which they probably did.
  13. lizard00
    Ok, I have to say Why wouldn't IBS be food related? That doesn't make sense to me. I completely agree with ravenwoodglass, I think that docs use IBS when they can't figure anything else out. It's a lazy diagnosis. Different specialists choose to be more open minded than others and stay more up to date with medical advances. Because some doctors...
  14. lizard00
    I saw this article back in Jan and it made me pretty upset. I had my vit d checked last April through Quest, and it came back "perfect." This year I had it redone and it was on the low side of normal. In hindsight, I should've been taking vit d last year, which would have helped me feel much better a lot faster. I'm sure that last year it would have been...
  15. lizard00
    No problem That's why I stay around here. I had the very same questions and many of the people that are still here helped me out, and I am happy to pass on anything that I know. I am mildly allergic to egg whites, so I rarely eat eggs. However, I can eat them in something if they are down on the list of ingredients. I eat eggs occasionally...
  16. lizard00
    It's hard to know without the specific tests they did. Hopefully, they did the complete celiac panel. If you could get the actual results to the tests, that would be very helpful. But, if your doctors are saying celiac because of your blood work, they are probably right. There's not much incidence of false positives. You should still get a copy of your blood...
  17. lizard00
    You've gotten some great ideas already, but thought I'd give you another one. This is one of my favorites: Open Original Shared Link
  18. lizard00
    Xanthan gum is a corn derivative, so if you have corn problems, that could be the culprit. You could try guar gum to see if there's any difference. Or maybe it's one of the flours in the mix.
  19. lizard00
    I was 26 when I was 'officially' diagnosed; 24/25 when my symptoms first appeared. I imagine many doctors share your thinking that celiac is a pediatric disease, in fact, my GI told me that he only studied celiac during pediatric rotations. He also said that this thinking is rapidly changing, as they are diagnosing many more adults, who often are not displaying...
  20. lizard00
    It sounds like he may also have a gluten allergy. Has he been anywhere where there may have been wheat flour floating around in the air? That's the first thing that popped in my mind, I'm sure others will have suggestions. Hope he feels better soon! edit: Have you had him checked for asthma? The wheezing and the coughing sound very much like asthma, and...
  21. lizard00
    Gotcha The first time I ever looked in IUC/IUD was last year when my son was almost 3 and I didn't want to be on the pill because of the hormones. I read about it, but would have no reason to know otherwise. I'll put that in the "file".
  22. lizard00
    Hello. I think out stories are pretty similar... even down to being about 8 weeks pregnant, too. This time has been a little more difficult for me, too. It's hard for me to eat in the morning, so I eat a little bit, like a Lara Bar or something small... then wait for my stomach to calm. I try to just eat little bits during the day, which is what I...
  23. lizard00
    I thought Z was the best of what I had tried. I thought it was pretty good, although I don't do soy, so maybe that was the difference.
  24. lizard00
    I believe that Mirena is for use after you've a baby, not before. You need to recheck that with your doctor. I was considering it last year, but decided not to do, although I think it would have been my choice. From their website: Open Original Shared Link
  25. lizard00
    Of great importance, CMG, is that you were gluten-free for a year before the challenge. You may have been healed, and then did the challenge. So walk through this: You have 22 ft of small intestine. Let's assume for the moment that you DO, in fact, have celiac. In that year of being gluten-free, you could have potentially erased the effects of gluten...
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