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Takala

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Latest Celiac Disease News & Research:

Everything posted by Takala

  1. Takala
    I left a longer comment under that, but it is not showing up. Von Spakovsky is completely off the wall here and omits key scientific and medical information about celiac disease, which does not act the same way as a severe food allergy, which can cause an immediate and life threatening reaction. The speed of the reaction to gluten proteins in celiac disease...
  2. Takala
    Probiotics are like seeds.... you plant 'em and they multiply and grow under the right conditions, so you try to provide an environment to make them happy. Ideally you can get balanced, and not need them daily and wouldn't get worse than when you started. You're naturally introducing bacteria to yourself all the time, accidentally....
  3. Takala
    So we creep forward in baby steps.... they're admitting that there is such a thing as NCGI, non celiac gluten intolerance, but still sticking to that "it" (the whole gluten reaction syndrome) effects 1 in 100 number. Wonder if they'll ever get off the starts from infancy, have to have loose poopies bandwagon ?
  4. Takala
    I am in the "self- diagnosed" category because the doctors did not recognize my symptoms are classic for the neurological form of the disease. I did have, after a huge, huge struggle and lots of wasted time, scans which show brain damage and damage to the bone in my spine. Doctor at that time still refused to consider celiac, told me diet had nothing to...
  5. Takala
    Ditch the millet ! Ditch the millet ! Cross contamination city, and it can be as bad as oats for some of us. You need more good fats- LOTS of fats - from coconut milk or oil, lard, bacon, vegetable or olive oils, nuts, avocado, etc, and some natural carbohydrates in the form of starchy vegetables and fruits, if you are going to eat like this ("sugarless...
  6. Takala

    ARCHIVED Corn

    Takala replied to designerstubble's topic in Coping with Celiac Disease

    I thought I might have a corn problem at one time, but it turns out that I just have a "pretty sensitive to any sort of cross contamination in the corn product problem." The way I tested it was to remove corn products, then reintroduced it by taking a fresh ear of corn, shucking it, and then slicing off the kernels and whirring them in a magicbullet with...
  7. Takala
    Gelato! Husband is making chile for dinner, because we finally ran out of the Indian curries we made last thurs/friday. Our 14 year old microwave is not wanting to start anymore, so we are having to boil water on the stove for coffee.... I managed to set off the smoke alarm doing this. I would like to get a new mic just like the old one, and of...
  8. Takala
    Did something else Sunday afternoon, not involving food, and thanks to the lack of crowds, had a great time ! Over a decade ago, this would not have been possible as I was too screwed up physically. Last year I was still struggling because I could not get along with my ski boot, but I modified it, and added an orthotic, lost some puffiness around my lower...
  9. Takala
    "Thyrofem" is a vitamin and herbal over the counter supplement, NOT medication for thyroid disease for low hormone levels, and will not treat that. "Adren- all" is an herbal supplement containing rhodiola, ginseng, schizandra, and licorice root. All of these supplements can have side effects, especially heart fluttering, nausea, and sleeplessness. Open...
  10. Takala
    Not if it is your thyroid gland which is messed up. Eating gluten when you should not, because of celiac, causes an all over the body auto immune reaction which does not discriminate as to what part of the body it is going to attack next. You want a visible skin rash to come back to prove to yourself that gluten is a problem. If only we could order up...
  11. Takala
    Here is the original link to the article in Psychology Today by Allen Frances, MD DSM5 in Distress, the impact on mental health practice and research, mislabeling medical illness as a mental disorder 12/8/2012 Open Original Shared Link This is about how the American Psychiatric Association (APA) which is working on its 5th version of a new Diagnostic...
  12. Takala
    There's more. Sora has this up: Mislabeling Medical Illness as a Mental Disorder Here is the original link to the article in Psychology Today by Allen Frances, MD DSM5 in Distress, the impact on mental health practice and research, mislabeling medical illness as a mental disorder 12/8/2012 Open Original Shared Link This is...
  13. Takala
    This is why we moved to another state finally, so we could just visit cold, and then come home an hour and a half later to where it may frost but seldom snows. It wasn't just the cold, it was the cold, the freezing rain ice storms in November-December that coated everything with a half inch of ice so you had to open every latch and gate with a propane...
  14. Takala
    Make a little bun in a cup in the microwave, that way, if you are a person who can taste bean flour, you will not be looking at an entire loaf of bread- work, and regretting it. Also, putting a pinch of cumin, a pinch of a sweet spice, and a little vinegar helps with the bean taste if you are a "bean-taste reactor." If the all -purpose mix succeeds, then...
  15. Takala
    You have passed the first apprentice test. We will have to initiate you into the Secret Recipe Reader's Club. Once you have the password, you can activate the app for the secret decoder ring, which you wave above the recipe- if it glows red, take out the gum. Green, you're okay. Tapioca is this weird stuff, and I say this having used it...
  16. Takala
    Did they perform blood tests for the rheumatoid arthritis diagnosis, and did she test positive for it on those tests for C reactive proteins and rheumatoid factor ? Is your daughter living in an area with a lot of deer ticks and Lyme disease, and has she been tested for that, as well ? Sometimes Lyme triggers an arthritis which is very much like it. As...
  17. Takala
    I was so dairy-reactive 10 years ago, I remember being annoyed at all this stuff on the Specific Carbohydrate Diet boards with the recipes using yogurt, and yogurt, and more yogurt and saying how wonderful the probiotics were in it. This is when I discovered one could bake grainless without it, by using almonds and eggs, if one didn't obsess over the end...
  18. Takala
    I am not complaining about the "fad" dieters because it is the bureaucrats in the Federal Government, who are there (appointees or political patronage) because of their financial ties to the established, industrial food and pharmaceutical lobbies, which are DEFINING, erroneously, that this gluten free diet is a fad. They have no right to do that. If...
  19. Takala
    From the UK Daily Mail, after the ridiculous story in the Daily Beast earlier this week, "When Going Gluten Free is Dangerous" Open Original Shared Link comes yet another one of these slams on the necessity of a gluten free diet for those with gluten intolerance, even if one has not been formally diagnosed with celiac disease, claiming that it is the equivalent...
  20. Takala
    Speechless. Please do not eat anything that causes you to break out in hives or causes facial swelling. Please continue to keep a food diary, unless you have a death wish. Please check this dietician's professional credentials via whatever the rules are where you located, and consider filing a complaint. Please work with a professional medically...
  21. Takala
    As long as your insurance holds out, they'll find ways to harvest it...... At some point, some of us just give up on this growing rows of dollar bills for the tropical vacations, and get on with doing a real, careful gluten free diet, and see what happens. Worst possible scenario is that you learn to cook and bake creatively with new ingredients. ...
  22. Takala
    Testing for food allergies will not pick up a celiac auto immune reaction, nor a n/c gluten intolerance reaction. They are not the same thing. I really don't understand this going on gluten supposedly for testing, and then not getting the testing, and then going off again to start with another doctor. I have had a doctor perform in an unprofessional...
  23. Takala
    Take the test results from the other doctor, too, so he doesn't try starting some Wild Goose Chase.
  24. Takala
    The Daily Beast article is awful, and tries to portray gluten intolerance as a variation on an eating disorder, but most of the comments are funny and righteously indignant. Oh, Rachel Krantz is an "editor" at Newsweek & the Daily Beast now, is she ? Earlier this year she wrote for Jezebel "Check out my article on what OCD has taught me about love...
  25. Takala
    Can you contact the place or the doctor's office which issued the results, and get the rest of the missing numbers that should go along with what you have ? Each lab uses a different range to compare scores. For example, it should say something like "your score = 40, where 1 to 10 is negative, 11 to 20 is mild (maybe, or equivocal) , and over 40 (greater...
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