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Latest Celiac Disease News & Research:
Everything posted by mushroom
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ARCHIVED Sprueberg-- A Gluten Free City
mushroom replied to Lisa16's topic in Introduce Yourself / Share Stuff
And everything would be "normal" priced. -
ARCHIVED Vitamin B12 Tablets Hurt!
mushroom replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Riceguy is the one to tell you about the sublinguals. Basically, any B12 in a swallowed tablet is pretty much bio-unavailable to your body. So they make sublingual tablets which are very small and good tasting which dissolve under the tongue. The other way to get your B12 is through injections, which I am currently getting because I had a strange reaction... -
ARCHIVED Can You Lose Hair
mushroom replied to UnhappyCoeliac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Heck yes, it sure can. I was becoming practically bald at the front--hair all over the bathroom and clogging up the shower (it was longer then). Good news is, it can grow back too. Much more hair now. -
ARCHIVED Sprueberg-- A Gluten Free City
mushroom replied to Lisa16's topic in Introduce Yourself / Share Stuff
And there will NEVER be a diagnosis of irritable bowel syndrome or fibromyalgia. And there will be a phyllo pastry factory. -
ARCHIVED Vitamin B12 Tablets Hurt!
mushroom replied to S-J-L's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Were you taking the sublinguals? -
ARCHIVED New Here And Have Questions
mushroom replied to razberrykisses's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, and welcome to the forum. It sure sounds like you are in the right place--your symptoms are littered all over this forum. Why on earth won't he do the blood tests now, instead of in two months. This is your life that is passing you by while you are suffering. Sure, it's no skin off his nose, but come on--just ask him to order the complete celiac... -
My D level has been low normal for ages. Finally talked my PCP into a prescription, but it was onlly 50,000iu once a month. My rheumatologist and another of my docs (who believes low vitamin D is behind lots of stuff) said that is just a maintenance dose, you have to fill the tank up first and then keep it topped up. Rheumatologist prescribed once a week...
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ARCHIVED Pro-gest A Progesterone Cream_
mushroom replied to one more mile's topic in Related Issues & Disorders
I used Pro-Gest for a while when trying to get away from HRT. Finally decided to heck with it all, and sweated it out for a while until it went away . Family history of breast and ovarian cancer--can't be too careful. Some say it helps, some say it hurts--changes from month to month, yes or no, so I decided to avoid the whole issue . -
Soy makes me itch like this; I was three months gluten free before I figured it out. There is a lot of soy added to many gluten free foods; you have to be just as thorough in your label reading as for gluten if that is your problem.
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ARCHIVED Trouble With Gluten Free Diet
mushroom replied to luna12's topic in Coping with Celiac Disease
It's not necessarily that the 'shroom is "nice"; just that she had such a hard time quitting smoking 'cos she was so addicted, and understands the difficulty of quitting an addictive habit. I don't have enough fingers and toes to count the number of times I "tried" to quit smoking, and the thing that actually made me do it was my chronic bronchitis when... -
ARCHIVED Trouble With Gluten Free Diet
mushroom replied to luna12's topic in Coping with Celiac Disease
Others have reported on here how highly addictive gluten is, how it occupies certain opioid receptors in the brain and gives you a strong craving. It sounds as though, if you are to give up gluten, you will need the diagnosis to give you the motivation. The first two weeks are the worst to get through, and you will just have to eat lots of fruits and veggies... -
ARCHIVED Questions About Adhesive.....
mushroom replied to Gen's topic in Coping with Celiac Disease
I react to paper tape with a systemic hive-type reaction. Don't know why. -
ARCHIVED I Sure Hope It's Not The Chocolate That's Bothering Me.
mushroom replied to wild fisher's topic in Coping with Celiac Disease
I can't eat any chocolate that has soy lecithin in it. However, I don't get the bloating, gluten-type symptoms. Soy makes me itch like crazy. I don't know that there is a blood test for it; I tested positive to it on a scratch test years ago, and mostly avoided soy but not fanatically like I avoid gluten. Since going gluten free, the smallest amount of... -
ARCHIVED Very Discouraged
mushroom replied to trents's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Gastro Esophagal Reflux Disease -
:lol: Don't you just love the people who figure that if it is "all natural" or "organic" it couldn't possibly hurt us. They just don't seem to understand that one man's meat is another man's poison.
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ARCHIVED Endo And Colonoscopy This Week, But Gluten Free...
mushroom replied to dizzygrinch's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My rheumatologist told me that if you are really deficient in D, taking 50,000iu/mth which my PCP prescribed is just maintaining; that you need to fill up the tank first by taking that dosage every week for four weeks, then you can do the top-up every month. (with follow-up tests of course) -
ARCHIVED Finding A Good Doctor....scary Stuff
mushroom replied to GlutenGuy36's topic in Coping with Celiac Disease
True. I just wish they would run them from a greater knowledge base! -
I have no idea if there is any connection. I am self-diagnosed gluten intolerant 16 mos ago, and at about the same time I discovered that late in life I have developed scoliosis. Interesting. Can't imagine the connection except perhaps for my low Vitamin D.
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ARCHIVED Wondering If Someone Here Can Help Me
mushroom replied to woolwhippet's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Lenore: Many of us discover other food intolerances once we get rid of the gluten. Corn, soy, dairy, eggs, nuts, nightshades are common--it can run the whole gamut. Fortunately, most of us don't have all of them, but any are possible. Mostly we find out by eliminating what appear to be the worst offenders. It is a good idea to keep a food diary... -
ARCHIVED Lingering Problems, Don't Know What To Do!
mushroom replied to runnerkat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Some people find apple skins and the cruciferous vegetables like broccoli hard to digest, some have problems with quinoa (I have problems with spinach--it passes straight through). I was having a similar problem last summer; part of it I think was cross-contamination from Dh's sourdough french bread, and the rest was that my pancreas was not putting out... -
ARCHIVED Is Diagnosis Possible
mushroom replied to StephanieM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In order for the celiac blood test to be accurate you have to have been eating gluten for 2-3 months prior to the test. Same goes for the biopsy. This is because significant healing takes place in the absence of gluten and the small mistakes we make along the way are not significant enough to show up on testing (even though they can still do us harm). The... -
Sure couldn't think of a better time to learn I know, a whole lotta learnin' going on already, but just think of it as the one extra class you need to graduate--literally!
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ARCHIVED Self Diagnosed/brand New Here
mushroom replied to Leiana's topic in Coping with Celiac Disease
Welcome to the forum, Leiana. It does feel a bit like coming home when you start reading about people who have been going through exactly what you are going through. You think, hey, I'm not crazy. A good many of us have been through the whole gamut of false diagnoses before someone, or we ourselves, finally hit upon the idea that it is the gluten!!! ... -
ARCHIVED How Quickly Did Your Symptoms Go Away?
mushroom replied to Tim86's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe you are not getting the number of responses you hoped for because our symptoms were different from yours, and you specifically told us not to respond IBS - don't believe in this; had gas and bloating, which is different Acid Reflux - didn't have Sleep problems - depends on the gas and bloating; still get sometimes Lack of energy - didn't... -
ARCHIVED Digestion Of Fats
mushroom replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ahh, the million dollar question! All I know is that my stool chymotrypsin value was low (6), normal over 9, and the comment from the lab was that "A low chymotrypsin value is suggestive of poor pancreatic output of all enzymes." And yes, I had been continuing to have digestive problems (not nearly as bad as when gluten-eating) but enough for me to consult...