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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    I'm not sure if there are local cattle ranchers near you, but at my local farmer's markets there are a couple of local ranches that sell organic, grass-fed beef. I suspect that I could arrange with them to buy bones for bone broth, but I've never tried to do that. Perhaps search for a local rancher that sells beef directly?
  2. Scott Adams
    I agree with @knitty kitty, and low genetic risk does not equal zero risk of developing celiac disease. In your case the positive blood test should have been followed up with an endoscopy, but if many of your symptoms went away after going gluten-free, then it was likely the correct diagnosis.
  3. Scott Adams
    Another interesting article and a reminder about why it is so important for those with celiac disease to take supplements: https://www.medscape.com/viewarticle/988049
  4. Scott Adams
    It wouldn't be a common symptom, but as @trents mentioned, if your sore throat is caused by GERD then there could be a celiac disease/gluten sensitivity connection, as there is a higher incidence of GERD in those with undiagnosed celiac disease. You may want to look into getting a blood test for celiac disease:
  5. Scott Adams
    I'm not sure if that site is up to date, but you may want to search the drugs here, and if you know the manufacturer you can view its inactive ingredients: https://dailymed.nlm.nih.gov/dailymed/
  6. Scott Adams
    If you can't find them at a local store, they are available here: https://www.glutino.com/english-muffins
  7. Scott Adams
    Vaccines have not been shown in scientific studies to increase the incidence of celiac disease, however, there are links to certain viruses and medications, for example antibiotic use in children. It might be more productive to do more studies like this to find links to known triggers. It's possible that children in the Finish population had more exposure...
  8. Scott Adams
    There is some info here on the blood tests, but I agree, that a positive test may indicate celiac disease, or at least NCGS. It's unclear if your upper GI included a full endoscopy for celiac disease, but if not, that would likely be your next step after a positive blood test, and you would need to keep eating gluten daily until all celiac disease tests...
  9. Scott Adams
    As @trents mentioned, be sure not to eliminate gluten until all tests for celiac disease have been completed.
  10. Scott Adams
    The tTG test panel is very accurate for celiac disease, over 98% accurate in adults, and more on this is here: More genes are being associated with celiac disease, so there may be newer known genetic markers that were not included in your gene testing.
  11. Scott Adams
    Unfortunately the site that makes it does not say whether or not it is gluten-free, so you may need to contact them about this: https://www.justformen.com/product/mustache-beard In general, skin contact with gluten should not be an issue unless you are in the super sensitive category, or have dermatitis herpetiformis.
  12. Scott Adams
    In older children and adults, when done with a full celiac blood panel, the tTG test is around 98% accurate, but in younger children the DGP test should also be given. More on this is at:
  13. Scott Adams
    It certainly could be, especially in celiacs who haven't gone gluten-free, but this can also happen in those without celiac disease.
  14. Scott Adams
    I know that some people with DH can have flare ups for weeks after having incredibly tiny amounts of gluten. I think for most people the gluten would pass though your system in a few days, but could trigger an autoimmune response that could go on for a week or even several weeks.
  15. Scott Adams
    Welcome to the forum. If you are sure about her diet being 100% gluten-free, then I wonder if she has some vitamin/mineral deficiencies? Have you noticed if her eating a banana helps at all? Sometimes potassium a deficiency can cause muscle cramping, and low magnesium as well. You may want to haver her vitamin/mineral levels checked, which, unfortunately...
  16. Scott Adams
    Interesting, I wonder if they have a contamination issue going on? Note that it does now say "gluten-free" on the packaging, and it is fairly common that spices can be contaminated (I ordered some turmeric online that did not say gluten-free, but listed only pure ingredients, but it tested positive for gluten using my Nima device): https://www.stashtea...
  17. Scott Adams
    The DH rash can take weeks to go away, and come back with even trace amounts of gluten. Also, iodine can trigger the rash in many with DH, so you may need to cut out seafood, seaweed, and dairy for a while to see if that helps.
  18. Scott Adams
    I've had issues with toe cramping in the morning, which, in my case, was likely a magnesium deficiency, as it went away when I began taking magnesium citrate daily.
  19. Scott Adams
    It can be very tough for teenagers to maintain a 100% gluten-free diet. I had issues with my daughter who would cheat on her diet when she was with her high school friends, but luckily she's learned to be more strict and just say no when offered foods with gluten in them. Is it possible your son is not 100% gluten-free? A follow up celiac disease blood...
  20. Scott Adams
    I like dark chocolate, and Lindt is a good one, but it seems that many dark chocolates contain too much heavy metals, at least according to recent news reports.
  21. Scott Adams
    More information about "Celiac Disease Blood Antibody Tests"
    Celiac.com 02/05/2023 - If you have celiac disease symptoms, for example chronic diarrhea, anemia, bloating, abdominal pain, rashes, are in a higher risk group, etc., your doctor may order a blood test for celiac disease. Note that before...
  22. Scott Adams
    The anti-DPG test should be done in children, and should be done as part of a full celiac disease blood panel: Also be sure she's been eating around 2 slices of wheat bread's worth of gluten daily in the 6-8 weeks leading up to the test. She may also have non-celiac gluten sensitivity, and if so there currently isn't a test for this condition, so in...
  23. Scott Adams
    Unfortunately rice would not be the first choice for those who are pre-diabetic, as it converts quickly to sugar in your blood. You may want to explore the low carb, high protein products, and there are many, including crackers.
  24. Scott Adams
    If you do a search for that drug here: https://dailymed.nlm.nih.gov/dailymed/search.cfm?labeltype=all&query=Protonix you will see many results. You need to know the manufacturer of yours to know which to look at. For example, if I look at the first one there: https://dailymed.nlm.nih.gov/dailymed/drugInfo.cfm?setid=08098cb2-c048-4640-f...
  25. Scott Adams
    The last time I had this done was at Kaiser and the results came back in around 3 days.
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