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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    We've never tried this, but at the very least you should be able to make it ahead of time, then refrigerate it until you eat it.
  2. Scott Adams
    Yes, good point. Get another blood test in 6 months or so after going gluten-free. If gluten is your issue, then the levels should go lower.
  3. Scott Adams
    I think you should keep a food diary so you can pin down any additional food intolerance issues that you might have.
  4. Scott Adams
    I'm not sure which frozen fries you mean here, but if it is the Ore Ida you mentioned in another thread, it was labelled gluten-free right? Is it possible you ate something else? It sounds like it could also be food poisoning, but I don't know your typical symptoms when you accidentally eat gluten, for some it is vomiting. If you could explain more,...
  5. Scott Adams
    I agree.
  6. Scott Adams
    You can simply go to your followed content here: https://www.celiac.com/followed/ and then unfollowing the topics there.
  7. Scott Adams
    Given your extremely high tTG test for celiac disease that you mentioned here: I think you should assume that you have celiac disease and/or non-celiac gluten sensitivity, and go 100% gluten-free. If your symptoms go away, then you have your answer.
  8. Scott Adams
    @Jojo7 your situation is unusual, and it would be a great question to ask your gastroenterologist. Why would they tell you it looks like celiac disease as you were recovering from your biopsy, then change this on the report? I can't think of any reason at all. If your tTG blood test result was positive, then you likely have celiac disease--especially...
  9. Scott Adams
    So to get an endoscopy to confirm celiac disease would require you to go on a regular gluten diet for at least 2 weeks beforehand, and eat at least 2 slices of wheat bread daily. I'm not sure if your comment "waiting to get scoped" was referring to a celiac disease biopsy, but if so, I just wanted you to know this. You lymph nodes could be swollen for...
  10. Scott Adams
    As long as you don't need a piece of paper from the doctor to keep you on a 100% gluten-free diet for life, then an official diagnosis certainly isn't required for any reason. For those who have symptoms (not all celiacs do), I almost believe that the diagnosis protocol should be change--if someone has a positive blood test for celiac disease, they...
  11. Scott Adams
    It would be a good idea for you to search your prescription at that link and verify that it's gluten-free, especially since you have DH.
  12. Scott Adams
    This is a related thread that may be helpful.
  13. Scott Adams
    Although they don't say "gluten-free" on their packaging it looks like they are naturally gluten-free, and don't list wheat as an allergen: https://www.hersheyland.com/symphony I could not see the ingredients on this bar, so I'm not sure: SYMPHONY Milk Chocolate with Almonds & Toffee Chips Candy Bar
  14. Scott Adams
    If you can't get an endoscopy soon then I think you should go gluten-free for now, and you can go back on gluten at least 2 weeks before if you should decide to get an endoscopy. If the diet relieves your symptoms you may not want to bother with the endoscopy, as this would be your 2nd confirmation that you have celiac disease. You could also pursue...
  15. Scott Adams
    Welcome to the forum! Feel free to share your test results here if you like, and if you do please include the reference ranges for positive test results. I mention this because in Europe strong positive results 10x the level for celiac disease mean that you can be diagnosed without an endoscopy, however, doing the biopsy is still considered the best overall...
  16. Scott Adams
    I believe that both of you should be gluten-free. Feel free to ask your doctor what else would explain both of you having a strong, very specific, autoimmune reaction to gliadin? Does your doctor recommend that you continue to eat gluten? If so, I'd switch doctors.
  17. Scott Adams
    In Europe if you have extremely high levels of 10x TtG level for celiac disease, they diagnose it without a biopsy. Feel free to share your exact test results here if you like, along with the reference ranges, but to me it sounds like you need to be on a gluten-free diet.
  18. Scott Adams
    Welcome to the forum @Jbartels, could you please clarify what you mean here?
  19. Scott Adams
    Yes, as mentioned in the very first sentence! 😉
  20. Scott Adams
    Yes, and they are allowed to be labelled gluten-free now, including foods made from Codex quality wheat-starch which has gluten removed to below 20ppm, as the scientific evidence shows that they are not harmful to a vast majority of celiacs. In Europe Codex wheat starch has been used in gluten-free foods for decades, as the quality of the products have been...
  21. Scott Adams
    I would only add to what @trents has mentioned and say that even if your celiac blood test turns out negative you should still consider trying a gluten-free diet for several months. This is because around 10x more people have a condition called non-celiac gluten sensitivity, and unfortunately there currently aren't any tests for this. If a gluten-free diet...
  22. Scott Adams
    Is the Doxycyxline gluten-free? Some meds use wheat starch in the pill, you can check this here: https://dailymed.nlm.nih.gov/dailymed/ Although some foods at Taco Bell may be gluten-free, the risk of cross-contamination is still high. If you must eat out consider GliadinX (a sponsor here) or another AN-PEP based enzyme as they've been shown to...
  23. Scott Adams
    Nice! Did you use a mix, or a recipe where you put together all the ingredients yourself?
  24. Scott Adams
    You can search for your medication at this site, and see the ingredients section: https://dailymed.nlm.nih.gov/dailymed/
  25. Scott Adams
    Given that your son has it, at least one Mayo Clinic study indicates that you have a 44% chance of also having it, and given your symptoms it does seem likely.
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