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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. I believe taking high thiamine level is generally safe, but not so with B6, so perhaps after your levels return to normal you may want to cut this back. I believe @knitty kitty or @Wheatwacked could provide more insight on this.
  2. I wish I could recall the study I saw some ~20 years back, but essentially it said that even though only 1% of the population has celiac disease, something like 15-20% of patients who had been seeing a gastroenterologist for more than 6 months had undiagnosed celiac disease. In other words, most people who visit a gastro doctor should simply be screened for...
  3. On the tTG test it would be very doubtful that it would show a false positive. I would go with possible non-celiac gluten sensitivity, and go gluten-free for a few months to see if it helps with your symptoms.
  4. So did you test positive for celiac disease on your blood test, and you are now awaiting an endoscopy? Feel free to share your blood test results with us if you would like to, and be sure to eat at least 2 slices of wheat bread daily for at least 2 weeks before an endoscopy.
  5. Lots of people with celiac disease also have certain environmental sensitivities to things like you mentioned. I am not sure whether these would be caused by celiac disease though. Have you been tested for celiac disease?
  6. Let us know what you think about their mix!
  7. Since you have an upcoming blood test, have you been eating gluten, at least 2 slices of bread's worth, daily for the past few weeks? For the tests to be accurate you must do this for 6-8 weeks before the blood test, and for at least 2 weeks before an endoscopy.
  8. This is probably one of the best available: https://gfjules.com/
  9. 14 year old boys who are picky and going gluten-free...if you can afford it: http://jpspastry.com
  10. Welcome to the forum @LaLeoLoca, and that is quite a story! Hopefully you will see even better health improvements going forward, and this article might be helpful:
  11. People with an allergy or severe sensitivity to Wheat run the risk of serious or life-threatening allergic reaction if they consume this product. The product was sold in the produce department and distributed in the states of Illinois, Indiana, Kentucky, Michigan, Ohio, Wisconsin. No illnesses have been reported to date. Melissa’s Pasta Para Duros c...
  12. Scott Adams

    A new journey

    I know dealing with health issues is always an ongoing process, but it sounds like you're on the mend, which is great. Your hookworm treatments are especially interesting, as we've done articles in the past on this, but you're the first person here who has actually tried the treatment. I hope it continues to go well for you!
  13. I wonder if an egg-replacer blend would work? The article below includes a substitute for eggs:
  14. It took me only a few weeks for my worst symptom--chronic diarrhea--to nearly go away, but since I didn't have a good understanding about how to maintain a 100% gluten-free diet (for example I ate at restaurants and tried to get gluten-free food), I definitely had recurring bouts in the 1-2 years after going gluten-free. I also had to eliminate several other...
  15. There have been past reports of those with celiac disease who went gluten-free and saw improvement in their asthma symptoms. You can find those with a search: https://www.celiac.com/search/?q=asthma&quick=1&type=forums_topic also, you may want to study gluten-free, rather than only wheat-free.
  16. So those are high levels of tTg, one is nearly 5x the marker for celiac disease, so it is very likely that they both do have celiac disease. It is also possible that their biopsies could be normal, or only show slight villi changes, as children's bodies repair themselves much faster, and this includes any villi damage. There have been members here who...
  17. Steatorrhea and fat malabsorption are common symptoms of untreated celiac disease. It can take up to a year or more for your villi to recover, and this can only happen if your diet is 100% gluten-free. Do you ever eat outside your home? I ask because this is a common source of contamination. Also, is it possible that you have other food intolerance...
  18. Welcome to the forum! I've not had swollen lymph nodes with a DH rash, but one of my symptoms was a chronic DH rash on the back of my thumb. May I ask how you self-diagnosed? Have you had a blood panel yet for celiac disease? Have you noticed a connection with the rash and your diet?
  19. Welcome to the forum! Would you also be able to share the test's reference level for a positive result? The tests can vary depending on the manufacturer. Are the boys experiencing any symptoms? February is not too far off, a bit over a month from now, so if going out of network would mean extra costs it might not be worth it.
  20. Have you tried duck eggs? I had issues with chicken eggs but could tolerate duck eggs, which can be found at farmers markets and Asian markets.
  21. Criticizing this study still does not provide real scientific support to the claim that hookworm treatments can allow celiacs to eat a regular gluten diet again. In science it is up to those who make such a claim, which could be dangerous, to provide the evidence that supports it. So far it seems like it is just a few people who are doing this, and you...
  22. I suppose some celiacs who don't recover via a gluten-free diet may want to try hookworm infection, but for most celiacs, including myself, a gluten-free diet is a much better choice. You've implied that going back in time when humans were regularly infected by hookworms we were somehow healthier than we are now, which is just not supported by any evidence...
  23. I'm not sure if taking tramodol or morphine is a good idea, especially long-term, as opiates are well-known to cause digestive issues like severe constipation. Clearly going gluten-free and tapering off these drugs would be a good idea, but talk to your doctor about this.
  24. That's great news, and keep up the fight to stay gluten-free, as it is an ongoing daily battle!
  25. Yes, skin contact with gluten means getting it on your skin. For most celiacs this is not an issue, but for those who are very sensitive it can be an issue. Of course, consuming any gluten should be avoided by all celiacs, so you should do what is necessary to avoid this, for example not using shared toasters, ovens, etc.
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