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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    That is an interesting symptom, and I wonder how common it is?
  2. Scott Adams
    I can't answer the doctor question, but did want to comment on your ongoing symptoms. I think you're getting good advice about supplements to heal the gut, and hopefully your are taking broad vitamin and mineral supplements as well. If your hip issue is related to malabsorption caused by untreated celiac disease, it could take months to years to recover,...
  3. Scott Adams
    From the blood test results alone I would say that you very likely have celiac disease and should be on a gluten-free diet. The "patchy discontinuous erythema of the mucosa was noted in the duodenal bulb and second part of the Duodenum" may also be indicative of celiac disease, but of course your doctor would need to confirm this.
  4. Scott Adams
    I've had their older bottled versions, and am sorry they apparently discontinued them, but haven't yet had their canned beers. I'd be interested in the Carlsburg beer. Here is a list of gluten removed and gluten-free beers--see the comments below as well:
  5. Scott Adams
    Some super sensitive celiacs, and those who have dermatitis herpetiformis, have reported symptoms with skin contact. I don't doubt this, but for most celiacs skin contact would not be a trigger for celiac disease symptoms. We've had members here who have worked as bakers, at pizzerias, etc., which make regular wheat products who didn't have issues, but we...
  6. Scott Adams
    Can you get a copy of her blood test results and share them here along with the reference ranges for positive results? Also the biopsy results if possible. For a doctor to say her antibody results were "high but not through the roof," is very strange indeed. A year in the life of a child represents a great deal of developmental time, so if she...
  7. Scott Adams
    Garlic can cause bloating and indigestion in some people. If it was labelled gluten-free then it likely is gluten-free, but it is possible there could have been an issue during manufacturing.
  8. Scott Adams
    Although your blood test results indicate that you may not have celiac disease, some of them are elevated, which can still indicate non-celiac gluten sensitivity, for which there are not current tests, yet ~10x more people have than do celiac disease. Were you eating at least 2 slices worth of wheat bread per day for 6-8 weeks before the blood test? If not...
  9. Scott Adams
    GERD/Acid Reflux are super common symptoms of celiac disease and other food intolerance issues. Have you made sure your diet is 100% gluten-free (if you eat outside your home and in restaurants it may not be), and tried eliminating other common foods that may contribute to reflux like casein/cow's milk, soy, corn, eggs, etc. It would be helpful to keep a...
  10. Scott Adams
    Feel free to post the results here, and your doctor is the best person to help you understand this. We're not doctors, but may be able to understand them. Please also post the reference ranges for a positive test for any celiac blood tests you share.
  11. Scott Adams
    Kraft-Heinz lists all potential allergens on their ingredient labels.
  12. Scott Adams
    I agree, and if the roll touched your skin a simple wash would remove it. Some celiacs avoid going into wheat bakeries and get symptoms they believe have come from air exposure, but some work at them and haven't had issues.
  13. Scott Adams
    Welcome to the forum! What is your goal with the enzymes? Do you eat at restaurants and at other non-gluten-free homes? Is your goal to deal with the effects of possible cross-contamination with gluten? If so, you would need an enzyme designed for this, for example GliadinX, which is one of our sponsors. General enzymes may be good for lots of different...
  14. Scott Adams
    I thing it would be a risk because they likely make everything in the same food preparation area, including stuffing, gravy with potential wheat flour in it, pies, etc. You could go in and speak with the people who make the food and perhaps they could carefully put this together for you and avoid cross-contamination, but your best bet would be to make...
  15. Scott Adams
    It sounds like you have an intolerance to soy, or perhaps an allergy to soy.
  16. Scott Adams
    Someone in a comment on an article here just mentioned this condition: Food protein-induced enterocolitis syndrome which I had not heard of before: https://acaai.org/allergies/allergic-conditions/food/food-protein-induced-enterocolitis-syndrome-fpies/
  17. Scott Adams
    If you do retest, be sure to eat gluten daily, at least two slices of wheat bread’s worth, for 6 to 8 weeks before the test. Also, there is a condition called non-celiac gluten sensitivity that up to 10 times more people have than celiac disease, but there are no tests for this condition yet. At some point it may make sense for you to try out a gluten-f...
  18. Scott Adams
    Collagen can help leaky gut, and so can glutamine, just be sure both say "gluten-free" on the label to be safe. Also, after a few weeks you may want to try to find fresh duck eggs to see if you can tolerate them.
  19. Scott Adams
    @DeannaM, it's possible your issue could be celiac disease related, if you are somehow getting trace amounts of gluten in your diet on a regular basis, for example if you eat outside your home regularly at restaurants or at the homes of non-celiacs. Definitely follow up with your doctor about this, and make sure your kidney function is good, but also re-examine...
  20. Scott Adams
    Try out any from this company: https://sprinjene.com/
  21. Scott Adams
    Also, have you double checked your spam box to make sure they aren't going there?
  22. Scott Adams
    It's possible, as we did do an update recently. Can you go here and check what you are following and make sure there have been some new posts? Do you still have your email notifications turned on?
  23. Scott Adams
    In hindsight I could have healed much faster, but would eat out often because I lived in San Francisco and worked downtown. In the mid 90's restaurant staff was nearly clueless, and my questions around whether something had wheat in it or could be contaminated probably flew by them during a busy lunchtime rush. It took me while to figure out where and when...
  24. Scott Adams
    So hopefully your GP knows that most celiacs do not have symptoms, and you can't assume that this means there is no villi damage. Many studies have shown that people without symptoms still share the same health risks.
  25. Scott Adams
    I would only say that if I were in your shoes I'd be doing regular celiac disease blood tests and endoscopies. It's great if this works for you, however, just going by your gut feelings is a poor way to verify that this is actually working. It's a well known fact that some celiacs, after being gluten-free for a long time, go into remission and have little...
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