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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    This topic has only come up once, a long time ago, and it looks like nobody replied to it: I also found these two interesting research articles: https://pubmed.ncbi.nlm.nih.gov/3658806/ https://www.researchgate.net/publication/223957151_Celiac_Disease_and_Diabetes_Mellitus_Diagnosed_in_a_Pediatric_Patient_with_Hirschsprung_Disease Evidently...
  2. Scott Adams
    It seems very likely that this was the case, you probably have current and past family members who have, or had it, but were never tested and diagnosed.
  3. Scott Adams
    Have you had your thyroid levels checked? This is a pretty old thread, but may be helpful:
  4. Scott Adams
    Very interesting @mimizmamma! This category has past summaries of research articles on the topic of liver issues and celiac disease in case anyone wants to know more: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/liver-disease-and-celiac-disease/
  5. Scott Adams
    @Jefferson Adams was joking about Mick contacting us, referencing the Stones song "Brown Sugar" which is the subject of the article.
  6. Scott Adams
    If you can get a copy of your blood test results, please share them with us, along with the reference ranges for a positive test result. Also, even if your tests turn out negative for celiac disease, you could still have non-celiac gluten sensitivity, which is ~10x more common, but there are no tests for it yet. It may still make sense for you to try...
  7. Scott Adams
    Given that there is no known cure for celiac disease, not even hookworms have proven in studies to allow you to eat gluten when you have celiac disease, it would definitely make sense for your doctor to do regular blood panels and probably even an annual endoscopy. Let us know how things go!
  8. Scott Adams
    Hang in there! I'm not sure where you are in the diagnosis process, but be sure to keep eating gluten daily until all celiac disease testing is finished, otherwise you may end up with false-negative results. You also could have non-celiac gluten sensitivity, and unfortunately there are no tests yet for this. The good news is that after your tests you...
  9. Scott Adams
    We've done several articles on this topic: https://www.celiac.com/search/?q=hookworm&quick=1&type=cms_records2 and as @trents mentioned, is your doctor doing celiac disease blood antibody screenings, as well as endoscopies, to make sure the autoimmune reaction isn't still ongoing since you're eating gluten?
  10. Scott Adams
    I think it would be worth asking if they did a blood test, and if so, try to get the results and share them here. Either way, note that there is a condition called non-celiac gluten sensitivity which around 10x more people have than celiac disease, and unfortunately they have not yet developed a test for it. It may make sense to just try out the gluten-free...
  11. Scott Adams
    Hello @dixonpete, so have you noticed any issues with hookworm infection? Did you do this through a medical doctor?
  12. Scott Adams
    The two blood test results you posted for celiac disease are strongly positive, and it looks like the biopsy results are positive as well, as "mildly atrophic mucosa was found in the duodenal bulb" is the area where damage from celiac disease occurs.
  13. Scott Adams
    Your results look VERY high, not "normal high," so let us know how the biopsy goes. I will mention that in Europe you would likely be diagnosed with celiac disease on this result alone and not need to do a biopsy, as they now diagnose if your blood test results are 10x or higher than the level for celiac disease.
  14. Scott Adams
    After years of people posting here that doctor prescribed them PPI's to lower stomach acid, there have been many examples of people who actually discovered their problem was really the opposite--they had low stomach acid. The only way to know for sure would be to try it for a while and see if you symptoms improve.
  15. Scott Adams
    If made in the USA maltodextrin is generally gluten-free and made from corn, but unfortunately they don't need to disclose ingredients or allergens on medications. Hopefully this will change.
  16. Scott Adams
    Can I ask if the place you ate at also served regular gluten foods? If so, there may have been cross-contamination, which is common in restaurants where both gluten-free and regular gluten dishes are prepared in shared areas. Also, in gluten-free breads xanthan, guar, and other gums are often used to make them hold together, this article may be helpful...
  17. Scott Adams
    For me the very worst symptoms like diarrhea, seemed to improve within a few weeks of going gluten-free, but I also had to eliminate 5-6 other non-gluten foods for a couple of years as well, so it wasn't until the 2-3 year mark that I was feeling nearly normal again. After ~3 years I was able to add back many of the non-gluten foods that bothered me before...
  18. Scott Adams
    If you're 100% gluten-free, and you take supplements, the good news is that the ataxia can improve greatly over time, but it can take years.
  19. Scott Adams
    It sounds like you may fall into the super-sensitive category, and if so, these feelings may be an overreaction, but one based on real experiences you've had in the past. If the people around you are bakers covered in wheat flour, it's highly unlikely that their mere presence in the room where you are preparing your food would be risky. It's probably better...
  20. Scott Adams
    I think this can vary a lot from person to person, and I believe doctors say 2-3 times a day is in the "normal" range, so if you are going 4-5 times a day you may have other intolerance issues, or your diet may not be 100% gluten-free. Floating stools are definitely a symptom of fat malabsorption.
  21. Scott Adams
    Bad news for beer lovers! This article may be helpful, and be sure to check out the comments as well:
  22. Scott Adams
    It is very interesting, and we've done some article some articles on glyphosate: https://www.celiac.com/search/?q=Glyphosate&quick=1&type=cms_records2
  23. Scott Adams
    I know this isn't ideal, but could you attend wearing an N95 mask and just use the covid risk as the excuse for the mask, eat before you go, and just be there for the experience?
  24. Scott Adams
    23 and me should work for most of the basic genetic markers (I'm not sure about the other company, but it would likely be fine as well). He may also want to try this for a blood screening on his family: https://www.imaware.health/ Interestingly, my daughter's main symptom was the feeling that there was always food stuck in her throat/esophagus,...
  25. Scott Adams
    I also supplement zinc, and many of your posts make me wonder if celiac disease could be avoided in many people if they were to properly supplement. The different triggers of celiac disease in those with the genetic markers are not fully understood, and could certainly be nutritionally related.
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