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Scott Adams

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Scott Adams

  1. Scott Adams
    Please let us know how it turns out...
  2. Scott Adams
    It is very unlikely it contains gluten, and in the USA caramel coloring is gluten-free, but aspartame is well known to cause IBS-like issues in many people. I suspect that aspartame is the culprit.
  3. Scott Adams
    Do you have a Costco near you? They carry frozen prepared GF pizzas, two to a packages, for a great price.
  4. Scott Adams
    Just to clarify, around 9% of celiac can't tolerate the protein in oats, so EVEN, and that means that they can't have even certified gluten-free oats.
  5. Scott Adams
    I agree with @trents and just want to add that kidney stones can be serious, so be sure to get medical help for your situation, as not all stones will pass no matter what you do. Also, would you classify yourself as a self-diagnosed gluten sensitive person? Did you ever get screened for celiac disease?
  6. Scott Adams
    Please see this article, and your numbers are definitely in the 10x tTg positive level that should exclude you from needing a biopsy, however, not all doctors are on board with this newer concept in diagnosis:
  7. Scott Adams
    Eating gluten before the tests is a good thing, and eating too little may make the test results invalid. Your daughter should keep eating gluten daily until all testing is completed. Are those the only blood tests they did?
  8. Scott Adams
    I should have also mentioned that there are likely all sorts of other chemical used to make plywood, and I'd imagine that breathing in sawdust, even without any chemicals on it would not be healthy. I think you should be wearing an N95 rated mask when working in an wood shop.
  9. Scott Adams
    I just want to mention that it's a common misconception that anything labelled gluten-free contains "20ppm of gluten," and that once they put gluten-free on their label they are subject to very expensive product recalls if the amount goes over that level. This means that any company that detects any amount of gluten, for example 10ppm, is going to investigate...
  10. Scott Adams
    I checked Cedars hummus on their site and it is certified gluten-free: https://www.cedarsfoods.com/Our-Foods.aspx#hommus and so are the bars: https://www.madegoodfoods.com/ I agree with @trents that it could be the legumes or some other ingredient. If the bars contain oats around 9% of celiacs can't tolerate oats.
  11. Scott Adams
    Is there any chance that trace amounts of gluten could be creeping into his diet? For example, do you eat at restaurants? If so, there is a high likelihood that he could be getting contamination. Do you feed him gluten-free oats? If so, you might want to exclude this for a few months, as around 9% of celiacs react to the protein in oats. In my mind the first...
  12. Scott Adams
    My comment stands as posted, and is not limited to only DQ2 or DQ8...it includes all known genetic markers to date, including DQ9 and several other markers. Without any of these marker celiac disease is highly unlikely, but there are likely some minor markers that are yet to be discovered. We welcome all here, including self diagnosed people with...
  13. Scott Adams
    This time frame does seem a bit long, but we have had people mentioned that their blood test results took over two weeks to come back. Here is some food for thought about this, and hopefully they did a full celiac disease blood panel so there will not be any ambiguity with her results. I will also assume from your post that she was eating gluten daily...
  14. Scott Adams
    We know that other things can cause villi blunting, this has been known for a long time, but the type of blunting caused by celiac disease is not identical to that of NSAIDs or other meds or issues that may cause blunting. But either way, we do know that people with celiac disease, and thus have the genetic markers known to be linked to celiac disease, get...
  15. Scott Adams
    Welcome to the forum, and please see this category on our site for the various summaries we've done on the research that has been published on gluten ataxia and celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/
  16. Scott Adams
    I'm sorry to hear that you are suffering so badly. I do wonder in cases like yours where a formal diagnosis really matters, or just going gluten-free and getting better as soon as possible isn't a better approach, but I do not want to second guess your doctors. My only observation would be that even if your tests end up negative, I suspect you will still...
  17. Scott Adams
    Since you travel a lot and will eat gluten if you have to in those situations, perhaps consider the GliadinX AN-PEP supplement (they advertise here), as all studies I've seen on it indicate that it would be much better taking a few of them in such circumstances than not.
  18. Scott Adams
    This topic has come up a lot here, and this search may be helpful: https://www.celiac.com/search/?q=gerd&quick=1
  19. Scott Adams
    I was not able to find ingredients on their site: https://www.nestleprofessional.us/nestle-vitality/nestle-vitality-express-dispenser-vitality-juices but I can say that in the USA the ingredient natural flavors is gluten-free. More info about this is here: and this has been on our safe list for over 20 years:
  20. Scott Adams
    It's too bad your sister overlooked your gluten-free diet, and sorry to hear about your mother. I often eat something beforehand, or take an alternative snack or GF sandwich to various events just in case, as I've also had similar issues.
  21. Scott Adams
    This article may be helpful:
  22. Scott Adams
    Technically you should keep eating around 2 slices per day until you get your endoscopy done, so I would not go gluten-free just yet. If there is any way to postpone the gall bladder surgery, only if the doctor agrees of course, perhaps you should do that? I think gall bladder surgery is very common among celiacs before they discover they have it. It...
  23. Scott Adams
    @CBird it's amazing that in 1948 your sister was properly treated for celiac disease. In some ways I find it rather depressing that here we are in 2022, and MANY doctors still miss proper testing for celiac disease, and the average time to diagnosis is still over 5 years after symptom onset. It seems like it should be a lot easier by now.
  24. Scott Adams
    Let us know how things go. I hope all symptoms will soon improve for you! Look into a gluten-free L-Glutamine supplement, as it has been shown to speed up gut healing.
  25. Scott Adams
    I would suspect the msg or the turmeric. I'm not sure if you saw this:
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