Scott Adams
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Latest Celiac Disease News & Research:
Everything posted by Scott Adams
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You can tell the school whatever you prefer, call it gluten sensitivity, or get the non-celiac gluten sensitivity diagnosis (NCGS, which around 10x more people have than celiac disease), as they can’t check your child’s medical records and as far as I know they are private. I’m not asking you to lie to your school, but for your child to continue eating glute... -
I’m not really sure I agree with your doctor’s approach here. Why would we be trying to get their levels up to 10 times normal? I only mentioned what they are doing in Europe just as a reference, not as a target for your child. Currently the tests confirm that your child has celiac disease and shouldn’t be eating any gluten. It’s your call how you want to...
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If you eat gluten-free oats I recommend you stop them for a while, as around 10% of celiacs can't tolerate oats of any kind. I think you're on the right track and you may have additional food intolerance issues, possibly to things like chicken eggs, soy, corn, etc., and you should keep a food diary. This article may be helpful:
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If their ttg-iga was 3 times the upper limit, then 6 times when eating gluten more often, then your 6 year old likely has celiac disease. I don't think more blood tests would be required. Children are now being diagnosed in Europe without a biopsy if they are 10x the upper limit on any blood test. Also, kids are more likely to have a negative biopsy than...
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Here is an older article on Lupus and celiac disease, and your absolute risk of having both is pretty low, but of course it's still possible: The topic of Lupus has come up over 3,000 times in our forum and articles, so clearly there is an association: https://www.celiac.com/search/?q=lupus&quick=1
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Welcome to the forum @Mandz. Your symptoms definitely sound consistent with celiac disease. Is there any way you could get your doctor to do your blood test sooner? I fully understand how you feel, but keep in mind that once you go gluten-free you can’t be tested for celiac disease.
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Here is the reference article:
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What are the reference ranges on your high test results? If you are over 10 times the cut off for celiac disease on either test, at least in Europe, they do not require an endoscopy to confirm celiac disease. You might want to at least mention this to your doctor because it sounds like you may be 10 times over on both of your tests.
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Keep in mind that if you were to induce vomiting on a regular basis it could damage your esophagus and cause other issues, as stomach acid isn't meant to go there.
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It could work, but only if you discover the mistake within a short time after eating.
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Ten Things to Try if You Accidentally Eat Gluten
Scott Adams commented on Jefferson Adams's article in Additional Concerns
I'd not heard this before, and checked Metamucil's site which does say that most of their products are gluten-free except their "Thins": Open Original Shared Link A: Yes – Metamucil powders, capsules, and gummies are gluten free, following the FDA guideline that foods that carrying the label “gluten-free” can contain no more than 20 ppm (parts per m... -
This article might be helpful. Since some people with celiac disease also have thyroid issues, the hair loss could be related:
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Problem with Snickers
Scott Adams replied to greywhale5's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The regular size are fine...here is the article: /celiac-disease/are-snickers-candy-bars-gluten-free-r4686/ -
Protein Powders
Scott Adams replied to Foggyat52's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I also just want to mention that you may also have some additional food intolerance issues, and some can be caused by the condition of your gut. Dairy/casein intolerance is a very common one. However, once your gut heals (for me that took 1-2 years, but could have been faster had I had more knowledge about hidden gluten...this was the mid-90's), some or all... -
I'm not a fan of the first site you mention, as she's never backed up her original claim that she would publish info publicly to back up her claim that General Mills gluten-free oat-based cereals contain levels of gluten that would make them unsafe. In fact, she seems to have totally dropped this claim altogether, aside from her recommending very expensive...
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Itchy rash worse since being off gluten! Anyone else?
Scott Adams replied to Gael's topic in Dermatitis Herpetiformis
I had a minor case of DH that did improve in the weeks after I went gluten-free. I don't recall it getting worse unless I got gluten in my diet. Of course the main thing is to be sure that your diet is 100% gluten-free, because even tiny trace amounts could cause you issues. Eating at restaurants, for example, could lead to contamination and flare ups. -
No Symptoms
Scott Adams replied to BrianG's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you have celiac disease you should be 100% gluten-free, and avoid even sourdough bread if it's made with gluten. Did your doctor not explain this to you? If you continue to eat gluten you run the risk of getting many associated diseases and disorders, including but not limited to intestinal lymphoma.- 1 reply
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Yes, be sure all supplements and medications you take are also gluten-free. Most celiacs do need to take supplements, especially a B-complex.
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Be sure that your toaster isn't contaminated with wheat!
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Yes, search all of your meds here: https://dailymed.nlm.nih.gov/dailymed/ Also, if you eat outside your home, and especially in restaurants, you could be getting small amounts of cross contamination which keeps the autoimmune reaction going that leads to villi damage, low iron, etc.
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Yes, unfortunately there is not test yet for NCGS, even though around 10x more people have it than do celiac disease.
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It would be great if you can share your results here, including the reference ranges, as each lab is different. From what you've described, you have a positive blood test for celiac disease, and this could explain your low iron issue. It only takes one positive test to be diagnosed, but the normal procedure would be to schedule an endoscopy to confirm your...
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The intestinal lymphoma you are worried about is still rare, even among celiacs, and the good news is that research has shown that once you go gluten-free that risk drops to near normal after a few years. The articles on this are in this category: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders/cancer-lymphoma-and-celiac-disease/
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Bread, Toast, Biscuits and PB & J
Scott Adams replied to Ginger38's topic in Gluten-Free Recipes & Cooking Tips
Yes, Franz...and here is their site: https://franzglutenfree.com/ -
Yes, you have 2 very strong positive test results, and even if just one were positive it would indicate celiac disease: Gluten IgG: 10.6 (Standard range <2.0 mcg/mL) Tissue Transglutaminase (tTG) IgA: 19 (Standard range U/mL <4 No Antibody detected, > Or = 4 Antibody detected) It's possible that your doctor may want you to do...
