
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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gluten-free British Virgin Islands Travel
Scott Adams replied to Joel K's topic in Traveling with Celiac Disease
Good idea regarding the GliadinX, and I've never been there, but it seems like they should be able to accommodate you if you take careful approach and talk to the chef before you order. Hopefully someone who has been there can comment. There are also many apps on the market for this, but I do well using TripAdvisor for such things. -
Both regrowth of villi, and destruction of villi happen at different rates in different people. This depends on many things, like age, dietary compliance, different immune systems, etc. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality...
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Wheat Germ oil in skin balms
Scott Adams replied to Baba Fats's topic in Gluten-Free Foods, Products, Shopping & Medications
The risk of getting gluten via wheat germ in cosmetic products is very low, but for those who are super sensitive we recommend avoiding such products, as there are many alternatives without gluten ingredients. -
genetic test
Scott Adams replied to Giga221's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: PS - The genetic test results don't diagnose celiac disease, but can give you what your possible risk-factor is for developing celiac disease... -
Do we have any data on factors that decide which person that carries celiac genes is at higher risk of developing celiac disease? Specifically I'm thinking of diet related factors. Nutrition, vitamins, microbiome, etc.?
Scott Adams replied to heyitsme's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The number of genes associated with celiac disease is more than two, but there are two main genes that are commonly tested for celiac disease susceptibility. These genes are HLA-DQ2 and HLA-DQ8. HLA-DQ2: The majority of individuals with celiac disease (about 90-95%) carry the HLA-DQ2 gene. HLA-DQ8: Around 5-10% of individuals with celiac... -
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests...
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The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
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Lundberg
Scott Adams replied to Courtney09's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never heard of anyone having issues with them, and they are labeled gluten-free? Any chance that it might be the high fiber content? -
B12 & choline together?
Scott Adams replied to Zonisamide's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You can definitely take them together, but with B vitamins it is best to take a full B complex as B vitamins work best when taken together. Have you ever had your vitamin levels checked? -
So gluten-free oats are tolerated by most celiacs, although around 9% also can't have any oats.
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Besides supplementation, are you getting regular exercise? You may also want to look into low carb or pleo diets, as they can help with weight loss.
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Marsh 1?
Scott Adams replied to karalisa78's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
How much daily gluten were you eating before the endoscopy? It sounds like you were not eating enough, which can lead to false-negative results (although it sounds like you may still have a positive result). Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study... -
Gluten after all?
Scott Adams replied to Femke's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If your symptoms improve without gluten then you likely have your answer. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
Gluten after all?
Scott Adams replied to Femke's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
Chest tightness only symptom of being glutened?
Scott Adams replied to Noobette's topic in Coping with Celiac Disease
Salicylic acid is a naturally occurring compound found in plants, and it has been used for medicinal purposes. It is not classified as a vitamin. Vitamin B11, also known as salicylate, is a synthetic form of salicylic acid, but it is not considered essential in the human diet. The term "essential vitamin" typically refers to vitamins that are necessary for... -
Don't understand results...
Scott Adams replied to wabjay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests... -
@Joanne Palica, sunflower oil is considered to be gluten-free, and Apple Cinnamon Straws are marked "gluten-free" on their label, so perhaps you just got too much fiber at once, or are sensitive to another ingredient? The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very...
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Texas Pecan of Dallas TX is recalling 1 Lb and 8 oz products because it may contain an undeclared allergen. People who have an allergy or severe sensitivity to( tree nuts, peanuts, almonds, brazils, cashews, filberts, macadamias, pistachios, pecans, pine nuts, walnuts, soy, dairy (milk), sesame and wheat), run the risk of serious or life threating allergic...
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Would like to gain weight
Scott Adams replied to Peace lily's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Good luck...let us know how it goes for you. We have an extensive recipe section which might be helpful: https://www.celiac.com/celiac-disease/gluten-free-recipes/ -
Am I IgA deficient?
Scott Adams replied to tummytroubles777's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you already have your answer, then why hurt your body further? Also, a formal diagnosis can lead to more expensive health and/or life insurance rates, not to mention that here in the USA it now seems to be one of the conditions listed under "Disabilities" in most job applications--so you technically need to disclose that to future employers--I can't think... -
I agree with @trents. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score...
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Is this a positive biopsy?!
Scott Adams replied to ABJ08's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree, the biopsy result suggests that there are increased intraepithelial lymphocytes (IELs) present, which is a common finding in celiac disease. The partial villous blunting indicates that there is some damage to the villi, although they are not completely flattened. This combination of findings is consistent with early or mild celiac disease. -
Am I IgA deficient?
Scott Adams replied to tummytroubles777's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In order to be tested for celiac disease you need to be eating gluten daily in the weeks leading up to your test (if you need a formal diagnosis). Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: ...