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Roda

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Roda

  1. Roda
    People around me think I've become obsessed. I've had too. Even without cheating my IgG gliadin antibody is still very positive. The good news the tTg and IgA gliadin have been negative now for a year. I think it was cross contamination or low levels in seeminly safe/gluten free stuff. I encountered a lady last fall who was celiac as were two others...
  2. Roda

    ARCHIVED Enteroscopy Biopsy

    Roda replied to Susie A's topic in Doctors

    If you want the scope and biopsy don't go gluten free until it is over.
  3. Roda
    If you really want to try and persue the biopsy you could have her doctor write a letter explaining why they feel the need for the exam and petition the insurance company to cover it. IMHO it would cost them a whole lot less in the long run to find out now than many years of doctor visits etc if you were to not choose to go gluten free. My insurance does...
  4. Roda
    I'm kinda in the same boat. I recently did give up most all processed items even gluten free ones. I discovered I react now to sesame. I did not give up the condiments but I did give up all Bob's Red Mill products because of the potential of contamination from the certified gluten free oats. I react badly to the certified gluten free oats so I quit eating...
  5. Roda
    Well I'm here to report that the creon is helping significantly. I accidently tested that theory(missed two doses in one day) and was completely miserable. I also have discovered that I can not tolerate sesame now. I also believe alot of processed products are affecting me. Since eating "South Beach" I have felt pretty good. The more I make fresh, the...
  6. Roda
    Check into this. I don't know if you suffer from diarrhea, but Habba syndrome is a condition of the gallbladder in that it is dysfunctional and produces excess bile resulting in diarrhea and other symptoms. Here is the website. Open Original Shared Link
  7. Roda

    ARCHIVED Flour

    Roda replied to Rowena's topic in Gluten-Free Recipes & Cooking Tips

    My favorite is a sorghum blend and substitute cup for cup for regular flour. Since I mix it myself I have to add xanthan gum or guar gum to whatever I am making.
  8. Roda

    ARCHIVED Tactless Boss

    Roda replied to gleegan's topic in Coping with Celiac Disease

    I don't know if they would let you do that or not. But, I once tried get an ice cream place to fill my gluten free ice cream cone and they would not do it because of rules set forth by the health department. They gladly served me the ice cream in a dish and I put it in my cone myself instead. I was allowed to bring it in the facility they just would not...
  9. Roda
    Chicken should be safe. From my understanding, and someone correct me if I am wrong please, is that any grain has to be listed in a meat product if it is added, thus can not hide in the "natural flavors". If it it isn't listed then it isn't in there. But do watch out for stuff that is marinated or broth and read the lables, because those things could have...
  10. Roda
    I don't know if the baby could have celiac at his age, but foods you eat can be a trigger for reflux and colic/gas. I breast fed both my boys till 14-16 months. I inadvertently was gluten light when I was breastfeeding my youngest (not because I suspected, just happened to be what I ate) because he had so much trouble with certain foods. I eliminated all...
  11. Roda
    I'm finding now that I quit eating most prepackaged anything (including gluten free) that I am having trouble with more things when I do try them again. I really hope I'm not turning into a super sensitive celiac, but I do think I am on the right track though. Thanks everyone.
  12. Roda
    I've made cookies, muffins, quick breads and cakes with substituting my gluten free blend for the amounts of regular flour. I've had to experiment with the amount of xanthan gum, but other than that the recipes I have made have been really good.
  13. Roda
    I got excited when I found Crunchmaster multi-seed crackers. I bought one bag, the rosemary plus olive oil. I have been following the fist phase of the South Beach Diet, so I have not been eating any grains. Tonight, although not supposed to till next week, I ate some of these crackers and boy did they not agree with me. I don't know what is in them...
  14. Roda
    Before I was diagnosed I tried otc and Rx supplements but they either didn't work or made my stomach worse. After diagnosis I concentrated on iron rich foods and gave myself time to "heal" but it wasn't enough to bring it up. I was looking at iron infusions, but decided since I was so much better I would try otc supplements. My GI recommended the slowFe...
  15. Roda
    Before I was diagnosed I tried otc and Rx supplements but they either didn't work or made my stomach worse. After diagnosis I concentrated on iron rich foods and gave myself time to "heal" but it wasn't enough to bring it up. I was looking at iron infusions, but decided since I was so much better I would try otc supplements. My GI recommended the slowFe...
  16. Roda
    My vitamin D level was 17. Most Rx vitamin D in in the form of D2(ergocalciferol). The consensus is that the D3(cholcaliferol) form is more bioavailable. So If you are going to resume it you can look for the D3 kind. There was a study that suggested that the D2 is just as effective, but has met with hot debate. I don't have the source right now, but...
  17. Roda
    I would continue taking vitamin D. I was extremely deficient and I was prescribed 50,000 iu weekly. I am still taking that amount and I started taking it in Jan. 09. Low vitamin D can cause fatigue. After about a month + of taking it I was amazed at how much better I felt. Also have you had your ferritin checked? Mine was also chronically low and again...
  18. Roda
    There are quite a few of us here that can not tolerate the certified gluten free oats.
  19. Roda
    I've managed to to do two batches of orange marmalade and have canned 16 pints of stewed tomatoes. Not too shabby for plants from the flower bed!
  20. Roda
    Welcome to the board. Here is a link a ran across looking something else up and I thought of your post. It gives a lot of practical advice. Here is to better health for all of you! Open Original Shared Link
  21. Roda
    Ditto on what she said. I am one that cannot even tolerate certified gluten free oats. I get horrible heartburn, bloating, severe abdomen pain and I even broke out in a very painful blistering rash on my back side! That was enough for me to realize they did not agree with me.
  22. Roda
    Make sure you rinse the quinoa before you cook it. It has a bitter coating on it you need to rinse off. Also take it slow at first. A little quinoa goes a long way and has ALOT of fiber! If I eat to much it *clears throat* looks the same on the way out as it went in.
  23. Roda
    Depending on your lab values you may benefit from a combination of levothyroxine (T4 medication) and cytomel (T3 medication). My current endocrinologist put me on the cytomel because of me still having hypo symptoms despite a normal TSH. She said my free T3 was too low and that was causing the symptoms. I have been a different person since I started it...
  24. Roda
    If you tolerate oates may I suggest you try certified gluten free oats? I saw Udi's gluten free granola at the store. It was in a bag and is made with certified gluten free oats. Most other sources of oats are cross contaminated. I am envious of anyone who can eat gluten free oats. Even those I react badly to. Kind and boomi bars are my favorite and...
  25. Roda
    I was diagnosed with hashimotos disease in 2000 before my celiac diagnosis. I think it contributed to my two miscarriages. Looking back I believe I had a celiac then but just didn't know. I would bloat up and get constipated that I would lay in bed and beg my husband to rub my belly. Silly me thought that was my normal. I've been on thyroid replacement...
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