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Latest Celiac Disease News & Research:
Everything posted by fran641
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ARCHIVED Pillsbury Gluten Free Pie Crust
fran641 replied to mbrookes's topic in Gluten-Free Foods, Products, Shopping & Medications
All those pillsbury products are off our shelves in N. FL too. I liked them. I wonder why. I will go check their web page. -
ARCHIVED Problems With Jelly Bellys
fran641 replied to ThisIsMyUserName's topic in Gluten-Free Foods, Products, Shopping & Medications
Thisismyusername I didn't mean to butt in on your post but I am very grateful for the licorice flavor jelly bean ideas and I do hope you start feeling better soon. Thanks everyone. -
ARCHIVED Had To Go To Er For Vomiting, Etc
fran641 replied to janew6's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I just had a CT Monday and HIDA scan Friday for vomiting, diarrhea and pain? No results yet from HIDA. Has not put me in the ER but definitely miserable. I am 67 yrs old. Hope you get some results soon. -
ARCHIVED Problems With Jelly Bellys
fran641 replied to ThisIsMyUserName's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks cycling lady. -
ARCHIVED What I've Learned Since 2007
fran641 replied to Mr. Pep'r's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have seen rice pilaf on a menu but never eaten it. Just curious what is in it? Thanks for the info about delayed reactions. My most recent toilet and trash can visit may have been exactly that but I didn't think about that. -
ARCHIVED Problems With Jelly Bellys
fran641 replied to ThisIsMyUserName's topic in Gluten-Free Foods, Products, Shopping & Medications
Oh nvsmom I am jumping with joy that you said black jelly beans are safe! I wonder about Good and Plentys? -
I have heard that some people have silent celiac. Not in my case. The Peter Green book is very informative. That is the first place I read about lymphoma associated with celiac. I have had 2 forms of lymphoma treated with chemo and radiation. I did great in 2008 until 2010 after my first cancer and I went on a pity party with food! There isn't a pill...
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Good luck Kwalsh. It isn't easy living with a non supportive partner. Only you get sick when you eat gluten so he doesn't get it obviously. My DH is supportive and sometimes asks me if I want xy or z unsafe food. I have a history of being on again, off again since 2008 so he just asks. I am fortunate and I mean this that I have progressed to extreme...
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ARCHIVED I Keep Getting Sick And Don't Know Why!
fran641 replied to mareahf's topic in Coping with Celiac Disease
After a year of gluten-free I began having strong reactions to dairy out of the blue. Turns out my gallbladder is acting up and may have to come out soon. The doc said sudden onset of dairy reaction is common when the gallbladder goes bad. The D is awful when I have any dairy. Hope you can figure out what is triggering your responses this long after being...- 6 replies
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ARCHIVED Problems With Jelly Bellys
fran641 replied to ThisIsMyUserName's topic in Gluten-Free Foods, Products, Shopping & Medications
If it is the mixed variety might it include licorice favors too? Isn't the licorice flavor unsafe? -
Thanks so much Raven and Cycling. Raven, The D does calm down with the immodium but returns the next day. I am seeing my doc tomorrow and will talk to her about it. Cycling I have just assumed it was allergies. Thanks and I will mention that to my doc too. I only suffered with this mucus in the bowel before I was diagnosed with celiac. Hopefully the...
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Four weeks ago I started with allergies that brought on a small wet cough, sinus drainage then the big bomb hit. My bowel has been torn up with all the mucus. Using over the counter Musinex and it has helped sinus and cough but nothing seems to calm down the bowel. I take Immodium and drink lots of water to no avail. I am gluten-free and very careful...
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I am so happy for you. It is wonderful to see someone improving. When I went gluten-free I began to lose the weight and feel so much better too.
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Murphy it is hard and anyone who says it isn't obviously doesn't have celiac disease. I hope some of these issues will get better and that you will stay gluten-free for your own health. It can be an isolating disease until the pieces fall into place. Unload here like bartfull said. We have been there and done that.
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ARCHIVED Anyone Else With Lymphoma?
fran641 replied to fran641's topic in Related Issues & Disorders
Colleen my dance with C pales in comparison with your on going fight. It is hard to keep that smile going at times. Glad you are going on vacation and hope you have a blast even if it is a slow stroll. Thanks everyone for your kind words. All of you have to keep putting one foot in front of the other to get to the other side when dealing with celiac and... -
I was DX with celiac in 2009 (undiagnosed for 30 yrs) then in 2010 fNHL was found in colon during colonoscopy. PET scan showed it had spread to most of my body from ribs down. In 2011 After chemo and 3 month follow up testing it had returned in more aggressive form of DLBC lymphoma In my pancreas. Chemo again and radiation beat it back. I was wondering...
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ARCHIVED Is The Endoscopy Even Worth It?
fran641 replied to kabons's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For me the endoscope with biopsies gave my definite diagnosis of celiac. You might ask if you have to be gluten-free for that test since the damage to villi happens over time. At least that's my understanding. Good luck with whatever you decide. -
Do you use a particular brand of toothpaste? I have never purchased a brand looking for gluten-free.
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Monkey girl (cute name) I get that. I have heard info on Dr. oz show that led me to discuss something with my own Dr. I don't base my health decisions on his show but on my own healthcare providers advice.
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Please don't be offended by what I said. The guest doctor did say it doesn't apply to celiacs and I appreciated that. it is the clumping together all gluten-free folks get from friends and some family that creates frustration. If I couldn't have ask lots of questions around here I would have been lost so I hope you won't stop participating.
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At a church supper today a few friends were all excited to tell me I don't have to be gluten free forever. When I arrived home I searched the OZ show they heard this info on. Right in the first few minutes the guest doc giving the advice stated that this does not apply to people with celiac, Only those with sensitivities, not autoimmune diseases. My...
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ARCHIVED Please Help...feeling So Discouraged!
fran641 replied to tcla2013's topic in Food Intolerance & Leaky Gut
I have been gluten-free for 6 months and just recently cut out all dairy like you and also corn. Everything has corn!!! Like your husband the longer I am gluten-free the harder it hits me when something is contaminated. It is also how I began eliminating the dairy and corn. One by one I have to be a detective but it is worth it. When I have good days... -
ARCHIVED Why Why Did I Do It>>?
fran641 replied to MycasMommy's topic in Food Intolerance & Leaky Gut
Just began eliminating corn and dairy and it is challenging. I just read that at my age, 67 it will take longer to heal than a young person. I was undiagnosed for 30 years so my gut was a mess and it makes sense that healing will take a while. I was gluten-free for a few years then got off track and now have 6 months clear. -
ARCHIVED Dairy Intolerant...any Success In Adding In Goat's Milk?
fran641 replied to BlessedMommy's topic in Food Intolerance & Leaky Gut
I don't know about goats milk products but I would try about anything to see if it works as a sub. I am just starting to deal with the dairy issue. After months of gluten free and feeling much better but I notice I have nasty reactions to all dairy. I was still having bad days and was trying to pin it down to gluten. Since I don't use much dairy It took...