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GottaSki

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GottaSki

  1. GottaSki
    Hmmmm.....Biggest reason for self diagnosis is failure of our Medical System! I think many people self-diagnose Gluten Intolerance and Celiac Disease because our current medical system is failing us with regard to Celiac Disease. I had been to countless doctors for over 25 years with similar versions of the same symptoms that I was finally diagnosed with...
  2. GottaSki
    Congrats on a great day indeed! So glad you posted...always wonderful to hear good news!
  3. GottaSki
    Thanks Miche---that would be great news for everyone with Fibromyalgia to have an antibody test -- so very difficult to be diagnosed with something that can't be proven.
  4. GottaSki
    Yes, I believe I was undiagnosed Celiac for many, many, many years -- yet my tTG IgA was only a weak positive at diagnosis. Many, many people including my children have negative tTG IgA, yet improve while eating gluten-free. As for my kids, I have a pair, plus a single DQ2 which means they have at least one gene and therefore the possibility of Celiac...
  5. GottaSki
    Hello Hillary- I see that others have responded to many of your points, but I wanted to suggest if you haven't seen rhuematology &/or had your SED level or CRP (C-Reactive Protein) level checked that perhaps you should. I know that many of my symptoms were very much like RA or Lupus, but these tests always came back indicating no inflamation. When...
  6. GottaSki
    I've been gluten-free for over eight months now. For me my digestive symptoms have continued to improve, but my achy/sore/painful joints, complete fatigue, fogginess and more got much worse. I was diagnosed with Fibromyalgia about a month ago. I remain hopeful that continued healing will repair my intestines, thus allowing me to obtain more nutrition to...
  7. GottaSki
    Thanks! Great idea between parchment - could have used that a time or two with gluten-free flat bread!
  8. GottaSki
    I'd vote for bringing a gluten-free version of your favorite recipe -- helps show that gluten-free is just as tasty and not a punishment, not to mention you will have some yummy cookies to eat when you get home from the exchange. As for explaining to the other cookie bakers, simple is best. You have Celiac Disease and are unable to eat Gluten and then offer...
  9. GottaSki
    Good Luck!
  10. GottaSki
    Good Morning Miche- I was recently diagnosed wtih Fibromyalgia - my stiff/achy/pain, severe fatigue, fogginess, heat intolerance and light sensitivity all became worse these past 8 months that I've been gluten-free. It is my belief that long undiagnosed Celiac Disease caused my fibro symptoms. At diagnosis I was 43 and had had more mild versions of...
  11. GottaSki
    Here are a few stores to start, let me know if you need more help. Trader Joe's Encinitas - just south of Carlsbad 115 N El Camino Real Encinitas, CA 92024 Phone: (760) 634-2114 Trading Hours: 8 am - 9 pm Trader Joe's Oceanside - just north of Carlsbad 2570 Vista Way Oceanside, CA 92054 Phone: (760) 433-9994 Trading Hours: 8 am - 9 pm Henrys...
  12. GottaSki
    Healing can be slow and for me although some digestive symptoms improved I got worse and worse from about 5 weeks gluten-free until just recently seeing some improvement. Do not dismiss those high blood tests, don't know what they mean, but make sure your vitamin/minerals have been checked. You may need extra supplements during the healing process....
  13. GottaSki
    Below is one old list I found, I know there are more lists in other posts -- plus other members will give you lots of ideas. Be sure to ask if you have questions during the learning curve. +++++++ That's really all you NEED to buy from the specialty stores. You will like the Kinnikinnick White Tapioca Bread as much as your child will. From your...
  14. GottaSki
    my post submitted twice...not sure how to remove the second copy
  15. GottaSki
    Welcome Jenny! First, take a deep breath -- it's great that you have a diagnosis and know what you can do to help your son. These first days/learning curve are the toughest. It took about a month for our house to come to grips with gluten-free and find all the hidden gluten in our home. Keep it as simple as possible for now. Grilled Meat/Fish,...
  16. GottaSki
    I've had great luck with Bob's Red Mill gluten-free All Purpose Flour - I have seen some on this forum post that they have had problems with BRM. Anyway, we've used it in all our preGF recipes and so far it's done great. I do use many Better Batter recipes, but haven't tried their flour to date. So far all the Better Batter Recipes I've used have worked...
  17. GottaSki
    Hi All- I'm purchasing gift cards from school fund-raiser and saw that Red Robin is one of the restaurants -- I remember seeing a post not too long ago that Red Robin does a good job with their gluten free menu. Just wanted to check if anyone has recent experience - good or bad - as until today, I didn't know we had Red Robin here in San Diego ...
  18. GottaSki
    Great answers! The only thing I'd add is that when I was diagnosed I mistakenly believed that once I was gluten free long enough to obtain healing, that it wouldn't be harmful to have a small amount of gluten here or there -- Boy was I wrong! I am just over 8 months gluten-free and am happy to say finally obtaining significant healing - I've been accidentally...
  19. GottaSki
    Not sure I got this right -- are you continuing to stay gluten-free while you've run these tests? The blood tests for celiac antibody won't show anything unless you've been eating gluten and you'd need to eat gluten for 4-6 weeks minimum before having an endoscopic biopsy. If your vitamins and minerals were normal - count your blessings that your damage...
  20. GottaSki
    I see that you've been gluten-free for several months. If you are not taking a good gluten-free multi-vitamin you should start. I took pre-natal vitamins for a three year period while I was pregnant-nursing-pregnant-nursing, so I'd call my OB/Gyn and or Celiac Doctor if I were you -- they may suggest starting pre-natal vitamins while you are working on...
  21. GottaSki

    ARCHIVED Confused

    GottaSki replied to twe0708's topic in Coping with Celiac Disease

    I posted on your holiday visitor thread -- just thought I'd clarify our gluten system. as for allowing gluten in our kitchen -- we have to non-celiacs and two-celiacs in our house right now -- so we evolved into the system we have now, which is...gluten eaters still eat wheat filled bread, regular flour tortillas and cereals. Everything we cook or bake...
  22. GottaSki
    Welcome Amber! I second both keeping a food diary AND get blood work for vitamin/minerals. You are likely deficient in many. I don't know if this is a complete list, just what my Celiac GI tested for during my diagnosis. Vitamin B12, D, K, Iron, Ferritin, Zinc and Copper -- all of mine have been improving steadily over the past nine months. One...
  23. GottaSki
    I don't know much about dq1 and dq3-- As for should you be test for dq1 and dq3 - it will not make any difference since you have already seen improvement in a short time - seems you have your answer - live gluten-free. That being said - your children may benefit if you know that you carry genes for intolerance - someone else will have to chime in, but...
  24. GottaSki
    That is great news! I know that my followup blood results improving every three months has meant the world to me because my healing has been very slow these past months.
  25. GottaSki
    Yes, my endoscopy showed severe villi atrophy/damage and all three biopsy samples came back indicating Celiac...I don't remember the classifications on the biopsy, pretty much only thing I remember was severe damage to my intestines! As far as starting...go ahead and start tomorrow after the procedure. Travel is never easy, so just do your best to eat...
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