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GottaSki

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GottaSki

  1. GottaSki
    tarnalberry -- no sleep study yet -- definitely see the correlation between sleep, exercise and improvement. Have seen info about Malic...going to read some more and try soon. Also looking at coq10 -- all the other supplements you were taking I'm already on. I think you said you were taking during the time your fibro was worse -- how long did you take...
  2. GottaSki
    Thanks Skye-N and sixtytwo...very interesting to hear stories fromothers with fibromyalgia. Savella Update: At one week I am still on the first dosage 12.5mg twice a day. Couldn't tolerate the 25mg twice a day due to extreme irritability. Am holding on this lower dosage until I see doctor next week. Don't think I'll be able to tolerate moving all the...
  3. GottaSki
    I've found the brownie mixes take longer to bake...with any new gluten-free product we usually start at the minimum time and work our way up...corn pasta seems to take a few minutes longer than the longest specified time. Favorite Chocolate Sinful Cake...It's my gluten-free son's 16th bday today, so I'm about to go frost one now. We make them semi-regularly...
  4. GottaSki
    Thank you so much for sharing! Been difficult - after the joy of finally being diagnosed with Celiac - waiting for improvements that just didn't happen. I did have major improvements with gastro issues and am finally absorbing nutrients! Blood work has improved for B, D, K, Iron, Copper and Zinc. YET major fatigue, insomnia, fogginess, stiff, achy...
  5. GottaSki
    Was just diagnosed with Fibromyalgia - Have had many symptoms that have not improved, in fact have gotten worse since going gluten-free with Celiac Diagnosis. I'm wondering if there are any other Celiac / Fibromyalgia's out there that are on Savella -- there is a lot of info regarding side effects during the first weeks of Savella -- I'm looking more...
  6. GottaSki
    Steamed cauliflower is another add-in to mac-n-cheese...in fact it is the only cauliflower my kids eat regularly.
  7. GottaSki
    Wow is right...I pay 6.70 at Henry's here in San Diego.
  8. GottaSki
    B1, B2, D, K, Copper, Zinc, Ferritin were others that my Celiac Doc ran during diagnosis. All were low on me.
  9. GottaSki
    oops that was for taco seasoning
  10. GottaSki
    Couldn't find anything on the "spices" McCormick's website, but here is another post about their chili powder. https://www.celiac.com/gluten-free/index.php?showtopic=62283 and McCormick's is good about listing wheat...not sure about gluten.
  11. GottaSki
    Welcome! The good news is many, many things are gluten-free. We have successfully replaced or replicated all of our favorites. As mentioned simple is best (meat, eggs, vegetables, fruit, rice, potatoes) until you get the hang of reading labels...which can be frustrating at first...but will become easier with time. Besides the many gluten-free...
  12. GottaSki
    Thank you Ahorsesoul! I could see your answers when I selected show results...hope others can view the results.
  13. GottaSki
    Everyone has a different healing time. We've got several different ages in our family currently healing so I'm curious...how long did it take you? If you have more than one member in your family, feel free to answer for them too! Hope I set this poll up correctly -- Thanks!
  14. GottaSki
    We use Ancient Harvest Quinoa Pasta for baked macaroni and cheese along with all their pastas...we've had better luck with these as they are a bit firmer - more regular pasta-like than all the rice pastas we've used. We purchase in packs of 12 boxes on Amazon with free shipping as it is a bit cheaper than our local markets.
  15. GottaSki
    I suppose it will be awhile before you'll try chocolate cake again... it is the favorite treat in our family since going gluten-free. We use Bob's Red Mill Chocolate Cake Mix and add a cup of choc chips to the batter. Frosting is 2 cups choc chips, 1 can sweetened condensed milk and 2 teaspoons vanilla (melt together in saucepan) - it's very smooth...
  16. GottaSki
    Negative blood work for Celiac can not rule out Celiac. Even endoscopic biopsy can be negative in a Celiac. Your dietary response seems the strongest reason to give strict gluten free a chance. If you have a positive response to gluten-free you can have gene testing done. Some doctors will diagnose if you have genes and positive dietary response....
  17. GottaSki
    Sounds like you are doing everything correctly. Is she old enough to wear make-up -- could it be lipstick/lip gloss or other personal care items? 9 weeks is still healing...maybe someone else can answer how quickly tTG should come down.
  18. GottaSki
    I'm not clear...was it your Doctor or only his nurse that made the statements about not having Celiac based on the biopsy performed on you while you are 3 years gluten-free? If it was only the nurse, ask to speak directly to the doctor. If it was the doctor, he knows nothing about celiac - my understanding is that a gluten challenge must be for at least...
  19. GottaSki
    Here's a link for a good starting point to understand Celiac Disease: Open Original Shared Link Blood tests are the first step toward an official diagnosis.
  20. GottaSki
    Here's a link to a good description of Celiac Disease that answers your question. Open Original Shared Link Hope this helps, Lisa
  21. GottaSki
    Blood tests are the starting point, for which they need to go to their doctor. They need to let the doctor know they would like to be tested because of your diagnosis. If their doctor is unfamiliar with Celiac Disease they may need to explain that Celiac can cause damage before obvious symptoms. People may dismiss early symptoms because they can be...
  22. GottaSki
    Add me to the slow to heal group...had some improvement with gut issues within two months. I continue to have major fatigue, fogginess, joint and back pain. Hang in there! -Lisa
  23. GottaSki
    Don't be too hard on yourself...eating completely gluten-free is tough - especially the eating out part...I've had many cravings for gluten filled items, but resisted because I've been sick for so many years that the thought of becoming more sick scares me into keeping strictly gluten-free. When those nasty cravings are strong - try to remember how much...
  24. GottaSki
    I picked up a package of T&J's Mild Italian Sausage the other day -- received an email confirmation of gluten-free -- thought I'd post: Yes, our mild Italian Sausage is Gluten Free. They are also manufactured without any MSG, Preservatives, Nitrates or Nitrites. If you have any further questions, please feel free to contact us at anytime. Thank...
  25. GottaSki
    My blood tests were barely positive (at 43 yr) for Celiac, but endo showed severe damage to villi and all the biopsy samples confirmed Celiac. My children (26, 15, 14) and grandson (2) have all tested negative on blood work, but all have various celiac symptoms...three have had positive response to diet (14 year old still eats gluten). Positive results...
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