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Pac

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Everything posted by Pac

  1. Pac
    I bet on cross-contamination as the most probable source. Personally I wouldn't dare eating anything from deli. If there was mayo then it could also be source of gluten or cross-contamination. Third is the vinegar. Do you react to vodka/whisky? If so, you might react to white vinegar as well. (I do)
  2. Pac
    It depends on the definition of gluten sensitivity/intolerance. There are some articles about mortality risk in both celiac and gluten sensitivity, where gluten sensitivity means patient has anti-gliadin antibodies but not celiac antibodies. Defined like that, the risk of malignacies and over-all death rate is similar in both. One interesting fact that all...
  3. Pac
    try to search the topic here on the board. I don't remember it exactly, but someone from here wrote to some wineries and the answer was that they use rye paste to seal wooden barrels (that's the traditional wines) so yes, seems like some wines might not be safe. Look it up to see the exact info. I get sick from some wines too. (same reaction with rye vodka...
  4. Pac
    World gastroenterology organisation (WGO) writes in its 2007 guidelines that female to male ratio is 2:1 (can send a copy via email, but the whole report is too long to post it here) I've read another article, about a month ago, ufortunately I didn't save that one. It was mostly about the 4x increase of prevalence of celiac in last 50 years, but it also...
  5. Pac
    My boyfriend is eating gluten-free with me and I've noticed he avoids gluten like beer at a party, etc. more and more, even outside home. (He didn't do that at the very beginning.) Today he even returned some cookies back to the shelf saying they make him sick. He's admitted once (very reluctantly) that he feels a little better on gluten-free diet, but lets...
  6. Pac
    I'm a meat eater, but I often use just oil with water instead of milk, and crushed flax seeds (sometimes soaked in hot water) instead of eggs. I'm mostly making up my own recepies on the spot and forget them soon after. For sweet cakes, banana can do similar job to eggs - just beat it up with fork the same way you would beat up egg yolks. I make ice-cream...
  7. Pac
    I'm just curious about the answer to the original question - is rice vinegar in sushi safe? Or do you ask every time which vinegar they use and check the label? The rice vinegars I've seen in shops were all flavored, not pure.
  8. Pac
    I didn't experience exactly insomnia, but after going gluten-free and every time after major glutening I got into a kind of 'hyperactive mode'. It felt as if somebody slipped a few extasy pills into my meal. I wouldn't be able to fall asleep before 1-2am and even like that I would wake up at 5am, I wouldn't feel a tiny bit tired working all day non-stop until...
  9. Pac
    I have exactly the same experience with some celiacs and their friends. Just ignore those opinions. It's your body and your choice how strict your diet needs to be. I need to be on super-paranoid gluten-free diet in order not to get sick and honestly I prefer to be paranoid rather than sick. Most people who don't know about celiac/gluten intolerance are able...
  10. Pac
    It feels like over-training and physicaly it may be just over-training but it can be gluten-induced. The last several years before going gluten-free, I was constantly "over-trained". I went through many cycles of resting (for weeks) and then trying to reintroduce lite excercise. Each time I rested longer and started slower and still I was getting worse...
  11. Pac
    Same for me. I avoid all sugars/starches and all their derivates unless their origin is clearly stated on the label. "Better safe than sorry" is my motto when it comes to eating processed food. For the same reasons I avoid vinegars - I don't believe white vinegar is any safer than grain vodka or whisky (both make me sick). But as for the original question...
  12. Pac
    It depends on what wheat allergy your daughter was tested for. IgE allergy to wheat proteins (not gluten) IgE allergy to gluten IgG allergy/intolerance IgG reaction to gluten is very common in celiacs - up to 75% of them have anti-gliadin antibodies. (if a celiac gets sick from cc in 15-30minutes, it's because of these antibodies, true celiac reaction...
  13. Pac
    Hi everyone, I hope I can post this here. Below is a link to a petition that should help save slovak wildlife. If you can, please sign it. Feel free to send this to anyone who might care. Thanks Pavla Open Original Shared Link
  14. Pac
    Wheat starch used in gluten-free products is special deproteined one. The regular 'non-gluten-free' food wheat starch is not safe. Most czech gluten-free flour mixes based on wheat starch have about 17mg of gluten per 1kg, it's just slightly more than naturally gluten-free products and withing the "safe" limits. (except for sensitive freaks like me who react...
  15. Pac
    In full-blown celiac it's intestinal wall that gets attacked. In DH it's the skin. These are the only two tissues that can be "officialy" attacked by gluten-triggered antibodies. Other possible tissues include periferic nerves and CNS, kidney, liver, thyroid, pancreas, lungs, other parts of digestive system... (In me it is weins, nerves, connective tissue...
  16. Pac

    ARCHIVED Airborne Gluten?

    Pac replied to Mac55's topic in Coping with Celiac Disease

    I have the same problem. I've notice several times, that when I linger too long near the bakery section of our store (they have very yummy-smelling apple pie there), I get the same sharp pain in my stomach as if I drink wheat or rye based distilled alcohol. Not sure about the bakery, but grain vodka was definitely not a psychosomatic issue, I thought I was...
  17. Pac

    ARCHIVED I Want Them To Be Wrong!

    Pac replied to MartialArtist's topic in Doctors

    Not even this statement is 100% true. If you put too much gluten-containing grains to cattle feed, they have stomach problems - it changes the acidity of their stomach, (which leads to changes in the stomach flora and indigestion). Moose can't be fed wheat at all, they get sick even with their four stomachs. Wheat shouldn't be fed to easily iritated and nervous...
  18. Pac
    Open Original Shared Link - oficial webpage of Polish celiac society. Otherwise, I'd say Poland should be quite safe - they are the main exporter of gluten-free food in Eastern Europe and even their exported food that is not designated as gluten-free is very well labelled everywhere in the world (they export a lot of typical central-european food to...
  19. Pac
    Mexico is not that bad if you are careful enough. I'm super-sensitive to rye and wheat and I'm surviving here since Christmas without trouble. (Few sips of beer are ok though, so I might not be a good detector for barley contamination.) First of all - there's no labelling laws, so even when reading labels carefully, you are not as safe as you might need...
  20. Pac
    I think everybody has to find out for themselves what will work and what won't. At first I was trying not to be paranoid, even baked gluten stuff for my family, shared the kitchen. Then after 1 year of being gluten-free, I went to help my boyfriend bake a few cakes in their bakery - we only used about 1,5kg of flour and I didn't work directly with it, I wore...
  21. Pac
    I have a random collection of scientific articles about gluten&celiac. I could send it to you by email if you are interested. Also, Wikipedia has some very good articles covering the topic of gluten&wheat sensitivities.
  22. Pac
    yes, and it went away quite soon, probably like a week after going gluten-free.
  23. Pac
    Adding a bit of hope for your knee: I hurted a tendon at the back of my tight about six years ago. It looked like it's never gonna heal. I tried everything, ointments, letting it rest with no exercise for months. Every time I got back to the gym, no matter how slow I started, the injury was back within a week. Last spring, after only a few weeks of gluten...
  24. Pac
    This is exactly what kept me from getting a diagnosis. I almost always got better in summer.
  25. Pac
    I've only been diagnosed with mild IgE allergy to gluten and had slight gut inflammation and yet I had all the "atypical" symptoms of celiac (everything except constant diarhea and losing weight). The theory is that all these things are a result of malnutrition or vitamin deficiencies due to gut damage, but I just don't believe in it. If I eat or even breath...
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