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Latest Celiac Disease News & Research:
Everything posted by pixiegirl
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I find it hard to believe this happened! If it did she needs a new set of friends. I've heard of people asking for a taste but never getting mad if they say, "not this time."
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I have not been to a McDonalds in years but I know the one local to me, when I was first diagnosed told me that they sometimes put wheat things in the french fry fryer.
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Ok, good to know. I was agree with your comment about the nightshade plants (potatoes, tomatoes, etc). I eat them all the time.
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I'm with Scott I eat nightshades with no problems, I've been gluten-free for 25 years and I feel great. I would not however trust McDonalds french fries. I know a lot of places we go we ask if the fries are gluten free and they say "yes." Then we asked if they are fried in a fryer with gluten things and the answer is often yes. I really only trust places...
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ARCHIVED Is a gluten free diet worth it?
pixiegirl replied to hoooperman's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My daughter was diagnosed at 14 and now at 26 I can tell you she has a full and active social life. She drinks gluten-free beer, wine, Tito's vodka (I'm making her sound like a big drinker, she isn't!) you can drink being gluten-free. I was diagnosed before anyone knew what it was. There was no gluten-free food and very few restaurants would help me... -
Ha! Maybe it is MA! I don't mean to make light of the issue, I know for someone just diagnosed it all can seem daunting but it took me 11 years to get diagnosed and by that time I was really sick. I thought, at times, that I was dying so when someone told me, "hey you can feel all better by not eating gluten." Well, that just seemed simple to me at that point...
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celiacs ARCHIVED 3 months post Celiacs diagnosis, still struggling
pixiegirl replied to JennaGF's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with the post above, getting the gluten out of your system doesn't take that long but the damage it does can last a long time. I get glutened occasionally at restaurants but not often. I have a few I trust and eat at with very few problems. At new places (if I'm traveling) I make a point of not only taking to my server but usually the manager...- 4 replies
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- any recomendations
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I was diagnosed so long ago that I didn't have any of the options that are available today. I curious about if you are trying to be diagnosed as Celiac, if you are just unsure what being on a celiac diet involves or are you gluten free and not feeling better? My doctor at the time of my diagnosis told me he was sure I didn't have it because it was so rare...
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ARCHIVED Have I discovered a cure for brain fog?
pixiegirl replied to Estes's topic in Coping with Celiac Disease
I'm a gluten-free vegetarian. That being said I was taking prednisone for 2 months (unrelated to my celiac) and got a diet a friend was doing and tried it to lose the 10 lbs I gained from the steroid. I ate eggs for breakfast, hard boiled or an omelet. I had a salad with Beyond Meat Chicken (fake) for lunch and soup I made with some veggies and tofu for... -
ARCHIVED Restaurants In Cape Cod, Ma?
pixiegirl replied to Cheryl-C's topic in Gluten-Free Restaurants
I just had dinner there myself a couple of weeks ago. They do a good job. I feel really lucky that we have all sorts of gluten-free choices ont he Cape. I was in NYC last week and had some great dinners there but it required a lot of research to come up with the right places. I guess because the Cape is smaller it's easier but I really do feel we have... -
ARCHIVED Restaurants In Cape Cod, Ma?
pixiegirl replied to Cheryl-C's topic in Gluten-Free Restaurants
Our real season is July 4 - Labor Day. We certainly do have people coming on weekends now but there is no back up at the bridges and the roads are still traffic free. After Labor Day you don't really need reservations anywhere, we do have a nice fall season but its not crowded (meaning no traffic back ups). I probably won't go on a weekend during the... -
ARCHIVED Restaurants In Cape Cod, Ma?
pixiegirl replied to Cheryl-C's topic in Gluten-Free Restaurants
They are on my list and I've not been there yet. I'm going to take my mom over there soon their menu is so nice! Susan -
ARCHIVED Restaurants In Cape Cod, Ma?
pixiegirl replied to Cheryl-C's topic in Gluten-Free Restaurants
I know this is an old topic but the Cape Cod season is going to start again soon. On the first page of this thread my gluten-free Cape Cod list was mentioned and I really appreciate it. I do charge $3. for it and I was sorry to have to start charging at all but it's time consuming and I do a lot of work to keep it up. I email restaurants all the time,... -
ARCHIVED Ugh I Got Very Sick
pixiegirl replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Hmmmm very interesting I'll have to keep an eye on this. It's always something! -
ARCHIVED Ugh I Got Very Sick
pixiegirl replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Really? Gluten symptoms with MSG... interesting. is MSG contaminated with gluten or what? I know a lot of people have very serious sensitivities to MSG. I have always tried to buy food without it but I've never really noticed a problem before. I'll have to pay closer attention. Thanks! -
ARCHIVED Ugh I Got Very Sick
pixiegirl replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Ugh, I feel for you with the leg of lamb thing. Stuffed don't do it. I got better fairly quickly so I am leaning away from food poisoning. I think it has a longer sick time then what I had. And usually with gluten I get sick for days, unless the dose was super tiny. I was still funky yesterday and feel a little mentally out of it today but... I still... -
ARCHIVED Ugh I Got Very Sick
pixiegirl replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
I thought about the lettuce too... it looked fresh but who knows. I'm leaning toward the seasoning. Thanks for your thoughts! -
ARCHIVED Ugh I Got Very Sick
pixiegirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I've been on this list for a long time but life has been very crazy (both good and bad) and I've been gluten-free for a long long time now so "mostly" I have it down pat. Last night I had made a salad for dinner. It was made with bagged lettuce. A variety of cut up veggies. I cooked a plain chicken breast and put some McCormick "new" Southwest Seasonings... -
ARCHIVED Gluten-Free Salad Dressing In Individual Packets
pixiegirl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
My daughter is going away to school in a month, she will be living in the dorms. We have a lot of favorite salad dressings that we use at home but it isn't really practical for her to carry a bottle of salad dressing in her purse every day. What I'm looking for are any gluten free salad dressings in individual packets. I once bought some Kraft packets... -
ARCHIVED Thanksgiving Alone...first Mourning Experience
pixiegirl replied to jensey's topic in Coping with Celiac Disease
I'm sorry that you have to forgo this holiday. After my daughter and I were diagnosed we started making the meal at our house. That way I know everything is gluten-free. Maybe you should try that next year.. if you don't have family nearby and are worried about eating by yourself... About a month prior to the holiday I start telling people that my turkey... -
First of all I think I might start looking for a new doctor, regardless of your decision about getting scoped. For a doctor to be so dismissive and such, not good. I didn't have a biopsy at first. I had a dna test, mild blood test and the diet helped me immediately. However, some years later I was still having very minor GI issues... I was 99% better...
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ARCHIVED Wal-mart Has Their Gluten-free List Online Now!
pixiegirl replied to DallasJayhawk's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't shop at Walmart however I hope someone as notified them about the errors in their list. Its good that they are trying... in these economic times a lot of us can't afford Whole Foods or Trader Joe's but they need to get on the ball! Susan -
ARCHIVED Eosinophilic Esophagitis
pixiegirl replied to bear6954's topic in Related Issues & Disorders
I have EGID, all over my GI tract really. I have good times with it and bad. But over all since I went thru a ton of allergy testing and now try and avoid the foods I'm allergic to (there are so many its difficult) I'm doing better. My allergist gave me an Rx for gastrocrom, its a liquid you put in water before you eat and its stops mast cells from happening... -
ARCHIVED What Is Up With Annie's?
pixiegirl replied to wschmucks's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't do Amy's any more I get sick every single time I eat them. Bummer. Susan