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Latest Celiac Disease News & Research:
Everything posted by kareng
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ARCHIVED Feeling Paranoid
kareng replied to nonnarae's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think the crocks should clean fine. You could even cook them full of water after you have washed them just to be sure. Then wash again. The basic idea is that if something is smooth and easy to clean- it should be fine. Colanders are hard to get the gluten out of the little holes. Something really porous like a wooden rolling pin might be hard... -
ARCHIVED Trying To Figure This Whole Thing Out
kareng replied to ThisIsMyUserName's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't think you can call your self "Super Sensitive" just yet. If you have Celiac, than 3 weeks gluten-free isn't going to cure anything. And, considering there is a learning curve - you probably aren't really gluten-free yet. Especially as you are eating things other people, who don't understand Celiac/gluten-free, have made. Maybe missing something... -
ARCHIVED Looking For A Family In The Houston Metro Area
kareng replied to hanna-d's topic in Parents, Friends and Loved Ones of Celiacs
Maybe check the local Celiac or Gluten Intolerance group? Maybe check with the Children's hospital Celiac support group? -
This thread is almost 3 years old. From what I can tell - The point of the link was to use it in the app to get re- directed back to the forum.
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ARCHIVED Does This Lab Result Mean Rule Out Celiac Disease?
kareng replied to Ringmaster's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's too bad, it probably wasn't enough time. But, if you have a wheat allergy, the treatment is similar - don't eat wheat. You might be able to get away with barley or rye. Open Original Shared Link -
ARCHIVED Going In For Surgery Next Week - Freaking Out At The Hospital...
kareng replied to arrrghMatey's topic in Super Sensitive People
Relax - Jello, Gatorade, Sprite are all gluten-free like Barty said. I don't even think Sprite has MSG but MSG is not another name for gluten. How long will you be there? Perhaps you could pack a cooler with a few safe foods? OR leave things at home for someone to bring to you? -
ARCHIVED Happy I Found You
kareng replied to canadianjem's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just some things to consider: "Is it possible to have a negative blood test, but a positive biopsy? While rare, it is possible to have a negative blood test and still have celiac disease. tTG sensitivity is approximately 98%, which means that 2% of all celiacs may have a normal tTG level. Sometimes tTG antibodies are not produced enough to show up in... -
ARCHIVED Does This Lab Result Mean Rule Out Celiac Disease?
kareng replied to Ringmaster's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Are you saying you were eating gluten free? If that is the case, then negative test results would NOT mean you don't have Celiac disease. It just means you aren't currently making antibodies to gluten. You can't make antibodies to something (gluten) that isn't there. You have to be eating gluten to get a valid Celiac blood test. edited for clarity... -
ARCHIVED Newly Diagnosed Celiac -- Grains? Or No?
kareng replied to celiwhat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The Celiac experts do not say you must eliminate all grains. For example: "A gluten-free diet means avoiding all foods that contain wheat (including spelt, triticale, and kamut), rye, and barley, and their derivatives. Despite these restrictions, you can still eat a well-balanced diet with a variety of foods, including gluten-free bread and pasta. For... -
Our farmers market, and others around the country, will swipe $25 off the food stamp card ( they aren't stamps or tickets any longer, they are like a debit card these days). They then give you $50 worth of tokens to spend in the farmers market. Years ago, they used to have surplus cheese they would give you a chunk of. Not sure if they do this any more...
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ARCHIVED Top Bar Not Working Correctly
kareng replied to squirmingitch's topic in Board/Forum Technical Help
I don't know what version of safari I am using on the iPad, but the top line where you see the envelope for messages and your name, seems to work fine for me. -
ARCHIVED Can Somebody Confirm Something For Me
kareng replied to paranoid's topic in Coping with Celiac Disease
I always like these people who take bits and pieces of research and spin it to sell thier products. Perhaps pain in your sides when going to the bathroom is how your body works? I am not sure that a little gas pain is unusual or fatal? Lol -
ARCHIVED Top Bar Not Working Correctly
kareng replied to squirmingitch's topic in Board/Forum Technical Help
Still works on the iPad - so that's good! -
ARCHIVED Test Results And Gluten Challenge (Failure) More Confused
kareng replied to meg0207's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Aha! Doorknob! That's the G rated word I was looking for! Lol :0 -
ARCHIVED Test Results And Gluten Challenge (Failure) More Confused
kareng replied to meg0207's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry but your doctor is, well, um, I am having trouble finding a " nice" word. You need to be eating gluten for at least 12 weeks prior to blood testing. Yes, some people can take a few months for the antibodies to completely disappear, but many seem to have thiers go down quicker. These are some links from actual medical doctors. Perhaps your... -
ARCHIVED Labs Coming In,rbc Etc Off...have Questions
kareng replied to tammyinwv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Let's see what your iron and ferritin are. Sometimes, if we are anemic, we actually make extra red blood cells to try to compensate. -
Maybe you could call the manufacturer and quiz them about ingredients and manufacturing practices? That's my suggestion, I don't really know much about these medications.
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ARCHIVED Question About Testing — Total Iga
kareng replied to Orinda's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
"Is an IgA result of 39, where normal is 81-463, considered deficient and could it invalidate anti-IgA tests? Any level of IgA above 20 mg/dl should make the tTG-IgA test valid, regardless of age." Open Original Shared Link Sounds like you are borderline. I would go for the IGG test. -
ARCHIVED Someone Gave Me Gluten By Mistake
kareng replied to sella's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The way I understand it - a 1 time thing won't do any big damage. It may start some antibodies and a little intestinal damage. But that should heal in a few weeks or less, once gluten free again. This is the closest I could find to that question right now: Open Original Shared Link If I accidentally ingest gluten will it show up in a blood test... -
ARCHIVED Daycare And 504 Plan
kareng replied to albauer94's topic in Parents, Friends and Loved Ones of Celiacs
I am guessing they actually have to be in school to have one. You might Google "504 state name" and see the regs. -
ARCHIVED Talenti Gelato No Longer Labeled Gluten-Free
kareng replied to Coolclimates's topic in Gluten-Free Foods, Products, Shopping & Medications
Maybe email the company? The ingredients still gluten-free? -
ARCHIVED Are Supplements Labled "gluten Free" Really Safe?
kareng replied to Rhobhan's topic in Gluten-Free Foods, Products, Shopping & Medications
But , testing for under 20 or 10 ppm doesn't mean there is any gluten, it's just the limits of the tests we currently have. If you used these same tests on the inside of an apple or potato, it would be the same result < 10 ppm or < 20 ppm ( depending on the test). -
Looks like " find content" is working again. That's what you meant?