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kareng

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Latest Celiac Disease News & Research:

Everything posted by kareng

  1. kareng
    There is a Celiac blood panel. These are to detect antibodies to gluten. There is a separate gene test. Just because you have the gene, doesn't mean you have active Celiac.
  2. kareng
    This is from the U of Chicago website: Open Original Shared Link Call us Monday through Friday, from 9 a.m. to 5 p.m. central standard time at (773) 702-7593 with your questions. Most calls will be answered immediately, by a live person. Messages will be returned within 48 hours. It used to be email to ask questions and I got a response right...
  3. kareng
    If there is nothing obvious in the Maalox, maybe it was what you ate? You took it because the spicy food was bothering you. Could be somthing other than gluten
  4. kareng
    Is BE cheerfully peeping in front of you?
  5. kareng
    Don't you love it when they have those 2 beautiful words on something? What is in the Maalox?
  6. kareng

    ARCHIVED Maggianos?

    kareng replied to mandm11's topic in Gluten-Free Restaurants

    Forgot to say... If you go & order food, come back on here and add a comment about how it went. We would all like to know for our own selfish reasons ( I might want to eat there in another city )
  7. kareng
    This gets so confusing sometimes....whosit tested positive, what sit is negative... I think the kids are positive. If she & hub test negative, the genetic test might be an option for them. Just wiegh the risks of having a positive genetic test out there. Probably the fact that I have had my boys tested for the antibodies is enough to exclude them...
  8. kareng

    ARCHIVED Maggianos?

    kareng replied to mandm11's topic in Gluten-Free Restaurants

    I haven't been. Use the Google search in the upper right hand corner. I know this place has been discussed.
  9. kareng
    I don't think you need genetic testing if you are positive for Celiac. Its $200+ that most insurance won't pay for. I don't need genetic testing to prove I have pale skin & freckles. Usually genetic testing is done for relatives that have a negaive blood test. This helps them to know if they need to keep testing every few years. Open Original...
  10. kareng

    ARCHIVED New Experience

    kareng replied to annegirl's topic in Gluten-Free Restaurants

    I did go into a place just to ask about gluten-free food. The manager was very nice. She told me if I have Celiac not to eat there. She said that they did not have an "allergy menu". She said that the fries should only be fried in thier special fryer but, because they don't make gluten-free or other allergy claims, no one enforces it & their main...
  11. kareng
    I don't eat Kroger brand (don't have them here). I do eat other brands with those ingredients.
  12. kareng
    I just want to make sure that you realize that biopsying for Chrohns is not the same as for Celiac. celiac is an endoscopy ( top part of intestines) Chrohns is the colonoscopy. If you put her thru it ( it isn't too bad, just the day of not eating) make sure you are getting it all done at once. Something to consider- without an official diagnosis of...
  13. kareng
    My boys are 18 & 15. I had thier blood test done even tho they didn't have any symptoms. This is standard medical procedure with Celiacs (first degree relatives whcih would include your siblings and parents). The pediatrician wants to blood test the 15 year old every year. The 18 year old probably won't until he has symptoms. I did not do the genetic...
  14. kareng
    No you can't eat it and remain gluten free. That macaroni has melted a little bit of flour all in that food. Even if you pick out the big piece you can see, there will be little bits you can't see.
  15. kareng
    You can't help a drug addict until he wants help. You don't need to support him or his habits. That's hard but he isn't your problem right now. The older one that lives with you should be able to help with food and it's preparation. I don't know much about Autism. Weren't there foods he liked before that are gluten-free? Even if it's ice cream,...
  16. kareng
    Please note that the info on this thread is very old. The info may not be accurate.
  17. kareng
    Shadow Dancing - Andy Gibbs A terrible blast from the past.
  18. kareng
    I don't think there is a lot you can do about a grown man who supports him self. The 15 year old is another story. Who does he live with? If he lives with you, don't buy anything but gluten-free stuff for the house. Don't give him money to go out. take away everything but his homework and his mattress if you have to. The fact is that lots of food...
  19. kareng
    That last test has really freaked you out, hasn't it? Take a breath! The only cheese of any kind I have ever seen in the last year and half (. And I love cheese so I look) was this beer cheese my hub got in the Ozarks. There is no reason to have gluten in ricotta or any other cheese except Crazy Ozarks Beer Cheese.
  20. kareng
    What i have seen is that all grain has proteins called "gluten". For our purposes, we call the protein in wheat, rye & barley " gluten". And when we say gluten-free we mean no wheat, rye or barley gluten. The gluten in rice or corn or other grain is OK. This is not to get into the debate that we should eat no grains, ever.
  21. kareng
    At my WF, the gluten-free thing consisted of someone showing me where the main gluten-free things are. They had recently had tastings o they told me which cookies were their favorites. I have 2 teen boys & a hub. I am the only one gluten-free. They keep their bread, crackers, etc in one cabinet & use that counter space. Most food we make...
  22. kareng
    Read around on this site. Maybe the sites for the celiac centers at u of Chicago, Maryland & Columbia. I liked Gluten free for dummies book. Start your first week with the obvious stuff. Keep reading here to find out things like not using a toaster that is used for gluten bread.
  23. kareng
    This sounds a bit odd to me. What kind of test of your gastrointestinal tract told them all this? You might want to get a copy of your medical records. Maybe post it here if you want. We all love to give opinions. Maybe some others have had the test and could help you.
  24. kareng
    [quote name='elye' tim estamp='1305337356' post='699371'] You Can Call Me Al - - Paul Simon
  25. kareng
    Have you had your iron, ferritin , D, B12, etc tested? I got more energy once those got closer to normal.
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