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kareng

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Latest Celiac Disease News & Research:

Everything posted by kareng

  1. kareng
    Bunch of nonsense - "cross-reactive" foods for Celiac. Open Original Shared Link "As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly...
  2. kareng
    If you have a problem with rice - that wouldn't be a gluten issue. I love their dressings and do well with them. Looking at the ingredients - it looks like they use apple cider vinegar.
  3. kareng
    I use Dawn. For other soap, just look that it doesn't have wheat germ oil in it. Maybe stay away from oat, too.
  4. kareng
    Sorry. I am not up on all of your history. But this part stood out to me " i ate some corn flakes ". Do you have Celiac? And were those gluten-free cornflakes? Because, in the US at least, regular ones usually have malt barley.
  5. kareng
    I don't know . I think it would be important to know why those numbers are low. Might make a difference if they are just a little low or very low. What did the doctor suggest you do next?
  6. kareng
    I broke this out into its own topic as it would be lost over on a 5 year old thread about doctors. That is why it has the odd quoted part that isn't on this thread.
  7. kareng
    This company sells primarily in Pennsylvania but does mail order. This company does not label "gluten free" but "gluten neutralized". In their faq sheet and advertising they claim it is safe for "Severe Celiacs". So far, I have not seen any info as to how they know it is safe. I see no actual testing to prove it. Gluten Free Watchdog...
  8. kareng
    I have Celiac. Its in my medical record. So I had the gene test. That told me what I needed to know about my kids' chances of getting Celiac.
  9. kareng
    The logistics on a complete GI tract transplant would be crazy! When my kids were in High School, they did FIRST Robotics. We used to joke that instead of throwing balls and lifting things, they should make robotic GI systems! But, if you can get some of these other issues under control, it might allow you to expand the range of food that...
  10. kareng
    Here is info about what is being tested. IMGX is the one that seems to do what this supplement claims - degrade gluten so it doesn't cause a reaction Open Original Shared Link "... IMGX-003 Formerly Open Original Shared Link, this oral drug combines two protein enzymes that degrade gluten. Patients who were given this medication...
  11. kareng
    This is actually an advertisement. In the US, supplements, like this, do not have to go through any federal approval process. They do not actually have to "prove" that they work. "Real" drugs must prove they are safe and that they do what they claim. Currently, there are medications going through clinical trials - working their way to being approved...
  12. kareng
    The only way to diagnoses DH is With a skin biopsy. Sometimes people with DH do not test positive on blood tests. Open Original Shared Link "...and only about 40% of them have the positive blood tests (serology) for celiac disease...." Open Original Shared Link
  13. kareng
    Bummer! Sorry this is happening to you!
  14. kareng
    I get the feeling this GI doesn't think you have Celiac and wants to " prove it" to you? If he really thought you had Celiac, you would need a much longer gluten challenge. I think I would say " I eat strictly gluten-free, if I have Celiac, that would not be the current problem. Find out what is really the problem" If you decide to keep this doctor...
  15. kareng
    Very few naturally occuring things can actually be absorbed thru the skin. Gluten cannot be absorbed thru the skin. Lotion seems like it gets absorbed, but it is really just evaporating and going into the dead skin layers. http://www.cureceliacdisease.org/faq/will-my-skin-breakout-if-i-use-topical-products-like-shampooslotions-that-have-gluten-in...
  16. kareng
    Tocopheryl is rarely made from wheat. Even if it is, it's highly refined and I see not considered a gluten problem. I have had no problems with chopstick. Also, gluten on the skin should not give a Celiac reactions. gluten must be consumed . It is possible to have an allergic reaction to an ingredient in lotion.
  17. kareng
    Mariposa is in the San Fran area. Bakery and some pizzas, breakfast, sandwiches, etc. It will show up on any search for gluten-free San Francisco
  18. kareng
    In the US, Wheat must be labelled clearly. Rye and barley will be listed as a regular ingredient. Barley sometimes is labelled as malt, but usually barley malt.
  19. kareng
    I would have to read the ingredients before I ate them. You could email the company and ask for ingredient lists?
  20. kareng
    I am sorry. I thought you were referring to Canyon Bakehouse. I have never heard of Oakhouse.
  21. kareng
    I dont know.. THe owners are very nice people. Maybe you could email them and explain the problem? Sounds like the system isn't working quite right. It doesn't sound like they are using your information for nefarious reasons. Lol
  22. kareng
    What? Are you trying to day that's if I buy their products, Whole Foods or Target gives them info about me? Otherwise, I don't see how they would know who buys the bread. If you ordered it directly from them, I guess they would need some info to get it to your house and get it paid for?
  23. kareng
    IN the US and Canada and many other countries, wheat can't hide in products. It must be disclosed as an ingredient and usually has an additional warning. It will get easier as you go along. You will need to read labels
  24. kareng
    You might check with the Children's Hospital. Some of them have support/social groups for kids with food allergies. I would think the issues would be similiar to Celiac
  25. kareng
    When you are in .sesttle, you MUST go to Ghostfish brewery. They serve food and the best gluten-free beer. You could get some to take with you.
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