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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I narrowly missed landing in a suicide ward from my bipolar. After ten days of not sleeping my doctor gave me Seroquel and I settled back down. Heck yes going off gluten can fix all those things. Welcome back from the rabbit-hole of gluten intolerance, Alice. It's a scary place down there.
  2. Skylark
    That your hunch is probably right? Any word on the celiac panel results?
  3. Skylark
    OMG, you poor thing. That sounds awful. You're gluten sensitive for sure. Get the test, because if it's positive you'll have some really good information. Yes, it may be a false negative, but it could be a false negative no matter how much gluten you eat. Then go off the stuff and get well!
  4. Skylark
    I'm starting to think about collecting all this info into a book. It's just so much work.
  5. Skylark
    Methylcobalamin (or methyl-B12) is one of the two forms of B12 your body uses; adenosylcobalamin is the other. Vitamins often contain another natural form called cyanocobalamin that is cheap, stable, and absorbed reasonably well. Almost everybody can convert cyanocobalamin to the active forms. (There is a rare disorder where people can't convert B12 but...
  6. Skylark
    Thanks! You have such a sensible approach to nutrition. I love reading your posts.
  7. Skylark
    I had a laser laproscopy and a course of lupron in my early 20s because the pain was bad and my Dr. wanted to be sure it wasn't a pelvic infection. Now I keep it quiet with birth control pills. Pregnancy is supposed to help, but that's not gonna happen for me.
  8. Skylark
    Because a lot of jerks wanting to get rich deceptively labeled spelt products "wheat free" for a while. The FDA cracked down on them, confiscated a bunch of "wheat-free" spelt breads as mislabeled, and now spelt products have to state "wheat" as an allergen. There are still a lot of confused people running around because of the deliberately deceptive labeling...
  9. Skylark
    I would have gone hillbilly too! They have procedures in place for letting customers know they got safe food. It's not my problem if they can't follow their own rules!
  10. Skylark
    There are wheat allergies as well as celiac. Perhaps she is allergic? Allergy meds do not help with celiac but they are helpful for people with a true IgE mediated wheat allergy. You are right that there is really no such thing as "mild celiac". Thing is, there are people who can't tolerate wheat but don't have antibodies or villous damage. Labeling...
  11. Skylark
    Open Original Shared Link is the NCBI entry for human DPP-IV, and it explains the function right in the listing. Like many enzymes, it is quite specific and there is no way it could break down the problematic gliadin peptide. DPP-IV from other species and bacteria has the same function. The "gluten defense" products are slipping in under FDA nutritional...
  12. Skylark
    That sounds familiar. My grandmother switched to cornbread when she was feeling ill. Said it was "easier on her stomach" than wheat. To be blood tested, You need to be eating gluten for at least a month. The common recommendation around here is four slices of bread a day worth of gluten. It can take as long as three months of eating gluten to get a...
  13. Skylark
    Really, the gluten defense enzymes are useless. They will NOT relieve you of the need to be vigilant about your food or save you from a glutening. They DO NOT cleave gliadin peptide. They only cleave di-proline at the ends of peptides, not in the middle where the di-proline is in gliadin. They don't "slightly lessen" the toxicity of gluten, only "slightly...
  14. Skylark
    I was thinking the same thing. It almost sounds like you have a script worked out in your head. Stop thinking so much, enjoy her company, and do what you need to take care of yourself. Besides, maybe this time your tests will come out better since you're feeling OK.
  15. Skylark
    I hope you feel better on the diet!
  16. Skylark
    I'm so bummed because the Science Translational Medicine issue isn't online yet. I wanted to read the article.
  17. Skylark
    Fructose can make you very sick. My mom can't touch onions or watermelon. She got so sick eating figs when she came to visit that we had to take her to urgent care because we thought she got food poisonied. She gets stomach aches, painful cramps, bad diarrhea, gas, feels sick all over, can't sleep, her reflux goes crazy and triggers heart palpitations. ...
  18. Skylark
    Whiskey is made from gluten-containing grains, but the alcohol is distilled off the grains. The gluten stays behind with the mash. Whiskey has no detectable gluten and most celiacs can tolerate it fine. I think there are maybe one or two people on the board who mentioned they can't have distilled vinegar or whiskey but that's really rare. Now, I...
  19. Skylark
    An estimated 10-15% of celiacs react to oat aveenin as if it were gluten. Oats of any sort are definitely not safe for newly diagnosed folks. The recommendation I've seen is to avoid oats until antibodies are gone. Then add them and get re-tested after eating gluten-free oats for a while to be sure thy haven't done any damage. Starbuck's is supposed...
  20. Skylark
    You give up the chance for a subsequent biopsy if she's off gluten. Normal response time for diarrhea to go away gluten-free is 1-2 weeks. Raven's right that this sudden onset sounds more like Giardia, Salmonella, or some other GI infection though.
  21. Skylark
    Isn't an 8 with a cutoff of 10 a negative result? That means no evidence of gluten sensitivity. Did you ever have a positive result that is outside the "normal" range of the test? If you have fructose malabsorption, yes it could be the fructans in wheat making you sick and Enterolab tests will not detect it. Have you tried a low FODMAP diet?
  22. Skylark
    Welcome. Entirely possible this is celiac. You have to be eating gluten for diagnostic testing, so the best thing to do would be to go to a doctor and ask for a celiac blood panel. Once the testing is done I would try the diet no matter what the outcome as the testing has a high false negative rate.
  23. Skylark
    I'm so suspicious of testing services that refuse to establish (or at least provide) sensitivity and specificity measures for their tests. You do realize allergists say the gold standard for food allergies is elimination, right? None of these tests "diagnose" food allergies or sensitivities. They can only guide what foods might be problematic if you...
  24. Skylark
    4-6 hours for me usually. I have had anxiety reactions as long as 24 hours later.
  25. Skylark
    I'm not diagnosed. I had to figure out why I had "gastritis" and "IBS" (plus a dozen other problems) on my own. Some people find the gluten-free diet too restrictive or really want a diagnosis. Don't sweat the doctors if you don't need a piece of paper to follow the diet you need to be healthy.
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