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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Skylark
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ARCHIVED Almost A Year On Diet And No Results
Skylark replied to eazyeazy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You may have fructose malabsorption. Grapes, watermelon, and some vegetables are high in fructose. See if you can tolerate low fructose vegetables like zucchini, spinach, chard, and butternut squash. Open Original Shared Link With Marsh 2 and your stomach symptoms going away gluten-free there isn't much doubt about celiac. -
ARCHIVED Almost A Year On Diet And No Results
Skylark replied to eazyeazy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Where are the vegetables in your diet? I usually follow the Specific Carbohydrate Diet and it helps a lot with how I feel, my asthma, and my perioral dermatitis/rosacea. Open Original Shared Link -
ARCHIVED Should I Continue With Gluten Challenge?
Skylark replied to Dove314's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good grief yes. I ate one sandwich and decided challenging was not worth the misery. I was in graduate school and could not afford to get sick again. Thing is, I am now on a celiac-safe diet because I opted not to challenge. It's dangerous to be possibly celiac and lack the conviction to stay on the diet. The good news is that as Christine points out... -
ARCHIVED Almost A Year On Diet And No Results
Skylark replied to eazyeazy's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How were you diagnosed? Also, how have you determined that the wheatgrass you are eating is gluten-free? Is it independently certfied as gluten-free? There could easily be enough gluten contamination in wheatgrass to keep you from recovering. Also, diets that severely limited often lead to deficiencies that can keep you from feeling well. -
ARCHIVED Also Feeling Overwhelmed.
Skylark replied to LuLuBee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's more likely we'd agree that many doctors/clinics have not read the scientific literature. Here is some gluten challenge stuff I found from a thread a while back. -
I used to get horribly itchy, tiny blisters on my right index finger. I thought it was whitlow herpes but after two years gluten-free I stopped getting them. The third year I would get the itch if I got CC'd but never the blisters. Now it's gone. I'm pretty sure it was DH and not herpes. I only got it on my finger, it was not symmetric, and it itched...
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ARCHIVED gluten-free, Soy Free Protein Bars?
Skylark replied to dmeagan's topic in Gluten-Free Foods, Products, Shopping & Medications
Larabars have only dates and no added sugar, and they are gluten-free/soy-free. -
ARCHIVED Higher-Than-Normal Thyroxine Doses Offer a Clue to Celiac Disease - Celiac.com
Skylark replied to Scott Adams's topic in Publications & Publicity
Whoa! I told my Dr. I was certain I was malabsorbing thyroxine. I don't get all the effects of thyroid without T3, which is easier to absorb. That explains a LOT. -
ARCHIVED What Am I Doing Wrong
Skylark replied to buddhabelly's topic in Gluten-Free Recipes & Cooking Tips
I use the Bob's Red Mill wonderful bread mix. It comes out fine for sandwiches, though it's a little more crumbly than I would prefer. With gluten-free bread, you know to only do a single rise, right? A second rise will weaken the gums and give you a much denser loaf. -
ARCHIVED Also Feeling Overwhelmed.
Skylark replied to LuLuBee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you want to be sure of a relapse since you're paying out of pocket, you need three months of gluten challenge. As everyone else has said, that means a "normal" amount of gluten like 3-4 slices of bread a day. I never challenged for testing. I decided it wasn't worth poisoning myself to learn what I already knew, that I need a strict gluten-free diet... -
ARCHIVED According To Recent Data, Gluten-Free Doesn't Seem To Be Enough
Skylark replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Gfresh isn't a troll at all, and it's unfair to accuse him of such. He's young, smart, and trying to figure out why he's still sick. That article is really good, even if it is from a site trying to sell meal plans. -
ARCHIVED According To Recent Data, Gluten-Free Doesn't Seem To Be Enough
Skylark replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I take supplements by the handful or I do not feel good at all. My insomnia creeps back and I get depressed. I never understood why I needed so many vitamins until I hung around here and realized that gluten-free takes a long time and that it's not enough for everyone. I really like how I feel on SCD. My asthma goes away! I'm challenging salicylates... -
ARCHIVED L-Glutamine - Does It Work To Repair Your Gut?
Skylark replied to zeeclass6's topic in Coping with Celiac Disease
My bad. I plugged it into google and came up with some pretty dodgy stuff. I went and looked up Amy Yasko's work and it is impressive. Did you get the genetics testing done? I didn't see the glutamate/glutamine conversion in the stuff they're studying. It's not a methylation; it's an amidation. Also glutamine is not the precursor to serotonin. Tryptophan... -
ARCHIVED According To Recent Data, Gluten-Free Doesn't Seem To Be Enough
Skylark replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Dang, that's some impressive marketing of a 70-year old diet that's available for free. I've pretty much put that story together in my head from reading the same articles. It's really nice to see someone post it with all the literature references. This stuff about not healing is for real. I was diagnosed with vitamin D deficiency 4 years after I... -
ARCHIVED Gluten Free Deoderant For Daughter?
Skylark replied to Benshell's topic in Parents, Friends and Loved Ones of Celiacs
You could try a crystal deodorant. You could get her the rock form, or they make an unscented roll-on. Open Original Shared Link I have one of the solid ones that I got at my local health food store. It's not workout-strong but it works well enough for a day at the office and I think it would be great for a child. -
ARCHIVED gluten-free Skin/haircare And Cosmetics
Skylark replied to Giggles's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't worry about tocopherol. By the time it's a trace of gluten in a trace of tocopherol that may or may not be made from wheat germ, I figure I probably got more gluten in my occasional slice of Udi's. I avoid wheat germ oil, hydrolyzed wheat protein, and other more concentrated gluten sources in cosmetics because it seems sensible. I use salon... -
ARCHIVED Santa Maria E551 Ingredient Question
Skylark replied to dani nero's topic in Gluten-Free Foods, Products, Shopping & Medications
E551 is gluten-free so it wouldn't go on the unsafe list. As Pater says, it's silicon dioxide or sand. It sounds like they are adding flour or some other form of undeclared gluten along with the silicon dioxide. It's maddening when that happens and zaps you! Maybe you should retitle your thread to be a warning against Santa Maria products with E55... -
ARCHIVED Is There Gluten-free, MSG Free Beef &/or Chicken Bullion?
Skylark replied to squirmingitch's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't think you understood what Peter is trying to say, Pauliewog. As meat is boiled, the proteins break down and MSG is naturally formed. There is no such thing as an MSG-free commercial broth or bouillon. You can make a low-MSG broth at home that you should tolerate by boiling chicken without the skin for no longer than 2 hours, quick-cooling the... -
ARCHIVED Pernicious Anemia Caused By Gluten/celiac ?
Skylark replied to Sanjoseguy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Gluten-free diets that rely heavily on processed gluten-free breads are the big problem. Most white flour in the US is enriched with B-vitamins and iron and wheat flour has some fiber and protein. Highly refined starches like cornstarch or tapioca starch have very little protein, fiber, vitamins, or minerals. Potato starch, bean flours, and wholegrain... -
ARCHIVED L-Glutamine - Does It Work To Repair Your Gut?
Skylark replied to zeeclass6's topic in Coping with Celiac Disease
This is really great advice. There is rarely a reason to jump on a supplement really quickly. -
ARCHIVED Nature Valley Protein Bars
Skylark replied to Christine0125's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't see gluten ingredients, but I'd go with the Nature Valley Nut Crunch bars that are clearly labeled gluten-free on the package. Larabars and Kind Bars are also good gluten-free choices. -
ARCHIVED Do gluten-free Flours Really Need To Be Refrigerated?
Skylark replied to Mrs. M.'s topic in Gluten-Free Recipes & Cooking Tips
Oxidized fatty acids aren't terribly healthy to eat (which is why you perceive them as rancid) but usually the flour will have an "off" taste/smell when it starts to spoil. -
ARCHIVED Determined To Try Gluten Relief
Skylark replied to alicewa's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I keep hoping to get through to her... -
ARCHIVED Pernicious Anemia Caused By Gluten/celiac ?
Skylark replied to Sanjoseguy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
1. Celiac can trigger suddenly, though it sounds like your sensitive stomach may have been gluten intolerance all along. 2. If you are eating meats/fish, fresh fruits and vegetables, and some whole grains you will be better off than probably 80% of your countrymen in terms of nutrition. I don't think you need anything in particular from a dietician.... -
ARCHIVED Question On Testing And Being Gluten Free
Skylark replied to JaneWhoLovesRain's topic in Coping with Celiac Disease
Even more annoying, to be sure you get antibodies you need to eat a full gluten diet for three months. You can't just eat a little gluten for a week or two and get a reliable blood test when you start feeling ill. It makes it very hard for those of us who had to self-diagnose because of ignorant doctors. An unbearably itchy, bilaterally symmetric rash...