Jump to content

quincy

Advanced Members
 View Profile  See their activity

  • Posts

    227

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by quincy

  1. quincy
    I would strongly recommend you get tested for Lyme Disease with the Western Blot test. The two best labs are Stonybrook and Igenix. Try not to use the 2 most common labs, their tests are not as sensitive. ALL of your symptoms are indicative of Lyme. I had many of them myself. I was dx'd with Celiac in 2010 and after 3 years on a gluten free diet I continued...
  2. quincy
    I saw my Lyme doctor and he said the flu shot is ok so long as I am not sick in the sense of having fever or overt symptoms. I still have to find an immunologist in my area. This recent bout of upper respiratory infection really knocked me down hard so I cannot afford to get the flu, I could lose my job if I keep calling in sick. What surprises me is...
  3. quincy
    thanks Laura and SMRI this has been really helpful. One thing I noticed on the LabCorp report dated October 10, there is a note below the ranges that says as of Oct 20 the reference ranges will be changing, which will put the scores I received within the new ranges. Not sure how this works. Maybe the measurement will still be the same. Once I find an...
  4. quincy
    Thank you, Laura TX much appreciated. The doctor who did the labs, at my request, said the same thing. Any thoughts on getting flu vaccines, or do you avoid them? Many on the Lyme group from another site say to avoid the flu shot. I get it because I work around college students every day. But the last few times I felt bad afterwards and had to take...
  5. quincy
    Thank you for the responses. I just got my lab work: IgG Serum is 776 and the reference range starts at 700 IgG1 below normal. It is 339 and the reference ranges starts at 422 IgG 2 is good, right in the middle of the rangee igG 3 is below normal, it is 37 and the reference ranges starts at 42 IgG 4 is in the normal range but it is 15 and the new...
  6. quincy
    I recently test for the IgG subclasses and had some relatively minor deficiencies. My doctor has not shown me the blood work so I don't know which ones. I know that since a child I would get constant upper respiratory infections, sinus infections and ear infections. anyone else have any knowledge about these issues and how they treated it? My understanding...
  7. quincy
    same here. I was still sick with fatigue, muscle pain in my back, hips and legs, body temp was off. was constantly in physical therapy for muscle knots. stab in the dark asked my doctor for a lyme test and it came back positive. been on abx for a year with alot of probiotics and am feeling better.
  8. quincy

    ARCHIVED Whole Foods

    quincy replied to quincy's topic in Gluten-Free Restaurants

    yes, thanks for the tips. I usually read all the ingredients cards and stick with plain chicken, steamed rice/veggies and salads, nothing too fancy and I try to avoid anything that is close to gluten items. I will be doing bloodwoork soon, its been awhile, so I will see where my antibodies are, hopefully close or at zero readings....
  9. quincy

    ARCHIVED Whole Foods

    quincy posted a topic in Gluten-Free Restaurants

    I eat twice a week at the Whole Foods cafeteria/buffet. Is this just too risky for Celiacs? I don't seem to be extremely sensitive since its been 4 years since my dx, but still, I don't want to be getting too much gluten exposure. I try to find the safest items such as rotisserie chicken, rice, and steamed veggies and or salads. anyone eat there, or...
  10. quincy
    I started eating the chocolate and sea salt ones after only eating the Madagascar Vanilla. I stopped completely and now I tried the Madagascar again and it wasn't as bad. Honestly, the product does not say certified gluten free, so I really don't know the ppm's of the product. Plus it does not indicate anything about oats, which would definitely bother...
  11. quincy
    I googled this topic and here it is! Like the first poster last year, I usually have a Kind bar with an iced latte at Starbucks. Lately though, I am getting like an indigestion. I eat a Kind bar every day, it's my go-to quick snack on the go. Maybe it's the cc with oats? Or maybe the Starbucks, but I heard the plain latte's are reasonably safe. ...
  12. quincy

    ARCHIVED So Sick

    quincy replied to Kathyl067's topic in Coping with Celiac Disease

    I was quite ill for a while before and after diagnosis. I kept asking the Gastro doc if there could be anything else going on. It turns out several years later I was dx'd with Lyme disease. If you have spent time outdoors hiking, gardening, camping, especially in Lyme infected areas like Northeast, Mid-atlantic or Midwest, I would get a Lyme Western Blot...
  13. quincy
    many are complaining of jaw pain and neck muscle aching. TMJ and jaw pain are closely related to fibromyalgia which has a high incidence in the celiac population. I have chronic muscle and tendon pain even after going gluten-free for 3 years, though I have to say I eat out alot and I now have to curb my eating out because inevitably I am being glutened...
  14. quincy
    I am wondering if my symptoms are hypo thyroid. My latest TSH was 3.25. My functional medicine doctor got me down to 2.5 a few years ago but it has gone back up. I have been experiencing alot of muscle pain lately. I wake up with stiff muscles every morning. Fatigue and listlessness. I recently went for a trigger point massage and the therapist...
  15. quincy
    I am going through something similar. I started getting into making espresso and frothing milk. Seems my dairy intake is more than my body can tolerate, and I have been gluten-free for 3 years now.
  16. quincy
    your doctor should have checked your Vit D, ferritin, and other vitamin levels. You might be malnourished depending on your level of villous atrophy. also, your gut may be in a state of disbiosis, meaning you have an overgrowth of bad bacteria and little of the good bacteria. A good probiotic is good for that as well as eliminating all the processed...
  17. quincy
    it could be the osteopenia. I assume you had a bone density test. I had rib pain when I was first diagnosed and it took a while for it to dissipate. I had a follow up bone scan and found out my density went down in my hip to borderline osteoporosis. FInally my endocrinologist ordered a 24 hour urine collection to measure the amount of calcium I am excreting...
  18. quincy
    Hi Lady Eowyn, thank you for the advice. There was a time when I took this supplement for the thyroid and my TSH went down to 2.25, but I have continued to take this supplement (it's called thyroid synergy) but my number has crept back up over the last few years back to 3.25 I feel alot better than before when my Vitamin D and ferritin were very low...
  19. quincy
    I recently was referred to an endocrinologist by my celiac doc because my hip is borderline osteoporosis now. My results from labcorp are: TSH: 3.25 PTH: 17 Calcium 9.5 24 hour urine calcium: 560 mg (>300 is high). The endo put me on 12.5 mgs of hydrochlorothiazide which is supposed to help the kidney keep calcium in. I have never had a kidney...
  20. quincy
    My first celiac support meeting was enlightening because just about everyone was comparing which ssri they were taking and which ones did not agree with them. That was when it clicked that all us with celiac have a very common challenge with low serotonin levels due to gut damage. It is very likely that many of us require something to increase our serotonin...
  21. quincy
    Opa3, keep in mind, I went undiagnosed for probably most of my life, so the osteopenia was the result of malabsorption. You have been gluten free for many years, so it would have to be assumed that you have healed and been absorbing calcium and vit D properly during that time. You may be having muscle pain in the area.
  22. quincy
    Hi Opa, The first test I had after my diagnosis was a bone density scan. I was surprised because I always worked out and felt strong. I was shocked to find out I had osteopenia. My first symptoms leading up to a diagnosis was pain in my right hip. a score of -2.5 is borderline osteoporosis, so if my score was -2.6, for example, I would officially...
  23. quincy
    Just had my check up at the Celiac Disease Center at Columbia University. I started with a bone scan after a year and a half wait since last one. Unfortunately, my gluten free diligence, supplements, and organic whole foods diet, and exercise has not improved some of my density readings, specifically at the right hip. My GI wants me to see an Endo with...
  24. quincy
    I go to Dr Green's office at Columbia for treatment, and I can say from my experience with their nutritionist, they are very conservative about supplements. I recall just after I was dx'd I was told to bring in the supplements I was taking. I brought in a bag of them, and they said get rid of everything except the vitamin D and then said to take a basic Multi...
  25. quincy
    Is anyone doing Bob's oats? I tried soon after dx based on my GI's nutrionist advice (just 3/4 cup), but I just didn't feel well back then. I tried once more and still no good. I am doing very well now, so I thought I would give it a try again. My cholesterol situation is not good at all, and before dx, I managed to bring my numbers in line with a...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.