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lucia

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lucia

  1. lucia
    This reminded me: my ex-boyfriend was diabetic from the age of 9. He was really hung up about it. He'd felt like a freak his whole life. Sticking himself everyday with insulin had become this incredibly private ritual for him. When we first started dating, he hid the needles in his bathroom from me. He definitely had "the talk" with me, and he expected bad...
  2. lucia
    Uh, I had a relapse into corn. I'm eating a "no processed foods" diet and have been feeling so much better, but having cravings! Oh, such cravings! I thought, "oh, how bad can a little popcorn be?" (just a little, mind you). I'm so sick again today. I'm admitting my sins to you all. I'm kind of embarrassed.
  3. lucia
    Connie, You seem pretty resourceful and creative, so I'm sure you can do it. Check out the section devoted to "recipes" on the forum. It's got some really good ideas. P.S.: I'm jealous of your garden tomatos - yum!!!
  4. lucia
    Maybe the universe sent you to her because she's in danger of dying from cardiac disease at a young age. Seriously, think of it another way: your attention to your health is responsible and attractive. Celiac or not, I'd want a boyfriend like that. She'd be lucky to have you.
  5. lucia
    The medical community established celiac as a disease of the gut early on, so many doctors still see it that way. The GI doctor (& associate professor at a top medical school) who I saw had no idea that neurological symptoms could be connected with gastrointestinal symptoms. He was wrong. Check out this recent article, "From gut to brain" in the Lancet...
  6. lucia
    Oh, that's such a great story! She'll probably remember you her whole life, and your presence will make having this disease a lot more comfortable. As a kid, my ex-boyfriend used to go to "diabetes camp" (actually Camp Joslin after the Boston diabetes center), where all the kids were diabetic. I think it is important for kids to meet others who have the...
  7. lucia
    Here's Peter Green about the lack of research and knowledge about celiac in the U.S. Just read this and thought about this thread. Open Original Shared Link Why are U.S. physicians spotting only 3 percent of cases? Part of the problem is that celiac disease, because it
  8. lucia
    Hi everyone, I'm actually feeling better today, for the first time in a couple of weeks. If there's anything positive about this disease, it's that feeling normal is an occasion for incredible gratitude. I think it's because I made some changes preemptive to my elimination diet by cutting out all processed foods (including gluten free stuff) and limiting...
  9. lucia
    I had a reaction to your comment about finding it hard to lose weight, knowing that as a culture we're not very accepting of natural human forms. Of course, as a caveat, I don't know anything about your weight or your history with it, but I do get concerned when people start giving up avocados. I've seen too many women and men do very bad things to themselves...
  10. lucia
    Sounds like another issue - to go entirely gluten-free, or not - but there is such a thing as "wheatless" rye bread. Germans typically eat it, and it's available pretty widely in health-oriented U.S. stores. I used to eat it, and it's good. Here are some pictures of what the loafs look like: Open Original Shared Link Not that we can eat these. But...
  11. lucia
    If you ate a cannoli and didn't feel symptoms, don't think you "got away with it". Eating gluten triggers the antibodies that destroy our small intestines. Whether or not you were aware of this process going on, you made your body sicker and set your recovery back. If you continue to cheat, you'll set yourself up for all the long term effects of untreated...
  12. lucia
    Even if you can ingest gluten now without feeling any effects, you'll be setting yourself up for MAJOR issues in your future. A few beers now could lead to all kinds of nutritional deficiencies, infertility, or malignant cancers. Better to just stick with wine. Or tequila.
  13. lucia
    I had some really extreme symptoms, including headaches, when I went off gluten that lasted just under a week.
  14. lucia
    I know this is an old thread, but I thought you needed positive bloodwork to get an appointment at the Celiac Center?
  15. lucia
    I've been off gluten now for 3 and 1/2 months. My digestive issues initially cleared up pretty quickly, until I started reacting to other foods one at a time. I cut out dairy except for goat cheese and yogurt, then soy, then goat cheese when I started reacting to it too, then corn, and finally yogurt. Still, my stomach is in turmoil. I'm either newly sensitive...
  16. lucia
    Sounds like you have the classic neurological symptoms associated with celiac: brain fog, possibly depression, and what's called "peripheral neuropathy" which describes the pain and tingling in your hands. I've been asking myself the same question now going on 3 and 1/2 months gluten free, but I haven't found an answer. Celiac and the recovery process...
  17. lucia
    I started having inexplicable anxiety attacks 1 and 1/2 years before I went off of gluten. They seemed to arise out of nowhere. I started taking an anti-depressant which controlled them. Since going off gluten, I've phased off of the anti-depressant and have no more anxiety attacks.
  18. lucia
    I'm so sorry to hear about your issues - sounds horrible, but familiar. You said that you gave up wheat flour. Did you give up gluten? Gluten is found in all wheat derivatives, as well as rye and barley. Check out this list for all of the places where gluten can hide: /celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/ If you have...
  19. lucia
    “Hosts that are completely gluten-free are invalid matter for the celebration of the Eucharist.” -Cardinal Joseph Ratzinger, Prefect of the Congregation for the Doctrine of the Faith Open Original Shared Link In response, the low-gluten host designed for Catholics is .01% gluten. Not much, but even a small amount of gluten can begin the autoimmune rea...
  20. lucia
    For info see: Open Original Shared Link
  21. lucia
    If we are going to agree to use the term celiac disease, then we should acknowledge that it's quite possible that what is now known as gluten intolerance may also turn out to be a disease. Some people develop severe neurological symptoms from eating gluten with no evidence of intestinal damage. It's quite possible that they are experiencing an autoimmune...
  22. lucia
    hi Ingrid Beth, I'm so glad you found us. I hope you find that this is the beginning of healing for you. You ask lots of great questions, some of which the medical profession doesn't know how to deal with (yet). You'll find a lot of people here have had similar experiences as you with tests for celiac/gluten intolerance. Both the blood tests and...
  23. lucia
    Yeah, that's a lot of coffee. The acidity in coffee can cause acid reflux which I've heard is very painful. An alternative - if you're not ready to give up caffeine entirely - is green tea. It has a quarter of the caffeine of coffee, it's not acid, and it's got a lot of antioxidants. Even so, though, 10 cups a day of green tea would still be a lot. Maybe...
  24. lucia

    ARCHIVED Help Needed!

    lucia replied to Saz36's topic in Food Intolerance & Leaky Gut

    I'm the same nowadays as you all: no dairy, soy, and corn (as well as gluten). I definitely recommend experimenting with grains, especially quinoa (which has a lot of protein, as well as carbs) and amaranth. I don't think anyone mentioned almond milk or (my new favorite thing) coconut milk. You can even get cans of coconut milk from Goya. I like to...
  25. lucia
    If you go to the website for the Celiac Center at Columbia University and hit the "For Doctors" tab, you'll read that "Recent studies from Columbia University have indicated that it takes an average of nine years from onset of symptoms to diagnosis in the U.S." There's a reason they put that info upfront for doctors. I have to agree that in general the...
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