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Latest Celiac Disease News & Research:
Everything posted by notme
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ARCHIVED Frustrated With Co-Parent
notme replied to Christina.V's topic in Parents, Friends and Loved Ones of Celiacs
there is a high rate of false negatives with the blood testing. it sounds like he just doesn't want to make the effort........... why would you wait for your kid to be sick to correct her diet. geez. plus, if she has celiac, she is not absorbing the nutrients she needs for her body/brain to grow and develop. time for you to get armed with some... -
ARCHIVED How Do You Emotionally Deal With Setbacks?
notme replied to icelandgirl's topic in Coping with Celiac Disease
you might want to try a food journal for a little while i found it very helpful, even to identify sources of irritation other than gluten. plus, when i did get hit (alot! in the beginning) it helped me track my symptoms/to know what to expect. (for the next time ha ha) lots of water, naps........ feel better -
ARCHIVED So Skinny :(
notme replied to StephanieL's topic in Parents, Friends and Loved Ones of Celiacs
awww this made me tear up. my son has diabetes type 1 - he was diagnosed at age 19, when he was still deciding whether he was wanting to join the military. his sister is in the air force and he thinks it's awesome. when he got his dx, that option came right off the table. he is still a little wistful about it. anyways, he got his dx, and he floundered... -
whoops - she is an albany, ga - that's south ga
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The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
AMEN, girls!!! i have been calling around to painting contractors: thank your lucky stars your guys can fix stuff! holy crap. worth their weight in gold.... i had one paint contractor call me and tell me they couldn't touch the level of workmanship my husband has done (trying to get the reallllly reallllly high upper parts of the house finished... -
here's some - cross-reactivity is a myth meaning, there is no science to support this theory.
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ARCHIVED Don't Know Where To Start Or What's Going On!
notme replied to Onlyjamielynn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
well, if you hope to get an accurate test done for celiac, you have to continue eating gluten until testing is complete. you could have celiac, you also could have something else. there are plenty of symptoms for celiac (like 300) and many of them can be attributed to other disorders. your doc could start with testing you for vitamin deficiencies and go... -
my g.i. moved to georgia (i loved her, very thorough and knowledgeable) i don't know what part but you should be able to googly her - ruth montalvo or she might be using her (married?) name i think is simmons. how far are you from the choo-choo - that's a fairly large city, you should be able to find somebody there. your e.r. doc is wrong, wrong, wrong...
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ARCHIVED Target Spices
notme replied to spinsterwitch's topic in Gluten-Free Foods, Products, Shopping & Medications
how are you doing living below the line? (laura, i think fresh herbs would be too expensive. the live below the line is trying to live below the poverty line.) what is it $1.50 per day? or per meal? and that is per person, right? i saw something on tv about it and only caught part of it. it was very thought provoking -
ARCHIVED How Long Until You Declared Yourself 100%
notme replied to sweetsailing's topic in Coping with Celiac Disease
3 1/2 (well, almost 4! wow) years and i am still seeing improvements. sooo many (seemingly unrelated) health issues that i struggled with have cleared up. my skin is not an itchy mess, my vertigo is vertigone <see what i did there) i have put on 22 lbs (!) from 97 lbs to 119 and i'm still trying to gain about 5 more. in my boobs HAHA i even... -
The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
the other night, i made (without a recipe, so i even impressed myself) crab rangoons, and made my own potsticker pasta wrappers. also battered and fried zucchini (hey, did i mention we have a new deep fryer LOLZ) i can't believe my pasta turned out damb near perfect. just gotta remind myself to beat the hell out of the dough for like 10 minutes tonight... -
Frank's Red Hot - Is The Distilled Vinegar From Corn Or Wheat?
notme replied to meowndy's topic in Super Sensitive People
i use it it's gluten free. also, downright yummy! -
and thanks to irish she put it together. very helpful stuff
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ruth - alot of the info you are asking about individually can be found on this thread https://www.celiac.com/forums/topic/91878-newbie-info-101/
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ARCHIVED Captain Morgan's
notme replied to lobita's topic in Gluten-Free Foods, Products, Shopping & Medications
thank you for following up on this, myfavoritecarever, ( ) i seriously googlied this and found no answer what so ever. lots of conjecture, but nothing definitive. then i saw a squirrel and i don't drink captain morgan, so......... -
ARCHIVED Smoked Salmon & Butter Lettuce Salad (Gluten-Free) - Celiac.com
notme replied to Scott Adams's topic in Publications & Publicity
droool ! time to break out the smoker lolol a persian cucumber (in tennessee, good luck) but the yogurt dressing sounds yumz -
ARCHIVED Have I Been "glutened"?
notme replied to JosieToo's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
if your pre-dx symptoms have returned, you probably were glutened. it happens. i usually drink alot of water, rest, heating pad for muscles, hot showers, etc. but everybody is different - what works for me may not work for you. on the up side: congratulations on not glutening yourself since august! if this is the first time your symptoms have returned... -
The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
ugh - i hate that for you i have been gun shy of restaurants (any and all lolz) since october - i almost stopped at one when i was drugged and starving (almost sure that would've been a disaster) feel better - at least you have awesome heat pads made a spiral ham george yesterday, mashed taters & pineapple <counts as a veggie.......? lolz... -
ARCHIVED Small Toaster Recommendations
notme replied to BlessedMommy's topic in Coping with Celiac Disease
i woud get a toaster that is brave. and little i've not tried toaster bags but when i visit my sister or friends, i just use their oven to toast/thaw bread. put on tinfoil on the top rack -
ARCHIVED Canola Oil Brand?
notme replied to steffles's topic in Gluten-Free Foods, Products, Shopping & Medications
if it says it may contain wheat, then your finished product may contain wheat. even a little bit will make a celiac sick.- 4 replies
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- canola oil
- gluten
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(and 2 more)
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The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
that is pretty badass! cool omar part, too (REALLY cool, evidently!) AND you got some snow i'd call that a WIN day! edited to add: a win day for *you*, sweets i f'ing hate snow LOLZ -
The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
addie, i think one of my relatives invented mormon -
The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
lolz - i am on the cornstalk heights historical community organization neighborhood board. missed the first meeting thursday night down here, ms k, if you don't feel like walking, you just drive your lawnmower down the road. ya gotta try REAL HARD to get arrested -
ARCHIVED Emotionally Right Back To Where I Was 18 Months Ago
notme replied to tspiggy's topic in Coping with Celiac Disease
ps - the serenity prayer works to keep things in perspective -
ARCHIVED Emotionally Right Back To Where I Was 18 Months Ago
notme replied to tspiggy's topic in Coping with Celiac Disease
i use xanax when i am stressing. i take very little of it (i break the pill into, like 6 pieces) but it works wonders because i am a worrier, like you. but i can't think or function to solve my problem that is stressing me when all i'm doing is stressing. if that makes any sense. i was also thinking you may have been glutened. when i do, my anxiety...