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Latest Celiac Disease News & Research:
Everything posted by notme
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ARCHIVED We might be glutening ourselves with our purses!
notme replied to Washingtonmama's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
a grandma purse lolz - i have one, too, although i call it my 'let's make a deal' purse <bc i'm also old enough to remember that show -
ARCHIVED Who knew?!?
notme replied to Mermaid's Mom's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
gem: MY BROTHER FINALLY JUMPED ONBOARD THE gluten-free TRAIN!!!!!! i think that watching me navigate the gluten-free diet gave him the conviction he needed to try it. he is amazed at how many things don't bother him when he eats gluten-free - doctors gave him every diagnosis you can think of before he went to a gi doc who connected the dots for him!... -
ARCHIVED Feeling frustrated and impatient
notme replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
this is good advice & it worked for me (i had to do it many different times as i am a slow learner) because, you really don't remember every single thing that goes into your mouth (at least i don't!! lolz) it's been over 6 years for me and i am still improving. sometimes, i need to adjust my diet to eliminate *a particular thing* for a little while... -
ARCHIVED Dental Floss
notme replied to TexasJen's topic in Gluten-Free Foods, Products, Shopping & Medications
i just use the unflavored kind. no problems -
ARCHIVED Oue teenage daughter is having issues accepting newly diagnosed Celiacs . Help
notme replied to Jmarshall's topic in Parents, Friends and Loved Ones of Celiacs
whenever i am glutened, i am cranky and mean. try not to take it too personally, mom. i can say this from a mom's point of view, having had to deal with my 19 yo son when he got diagnosed with type 1 diabetes - when he is low, he is a crab and a half. of course, he is least likely to listen to advice when he is feeling like that. it was awful to... -
ARCHIVED Are Cockroaches the Key to Gluten-free Bread Nirvana?
notme replied to Scott Adams's topic in Publications & Publicity
well, that is just disgusting.......... what is their 'ingredient name' going to be ? (all natural!! lolz) -
ARCHIVED Gluten free in Gatlinburg/Pigeon Forge Tennessee
notme replied to Corrie's topic in Gluten-Free Restaurants
we were just there in january (stayed in pigeon forge) and there are 2 mellow mushrooms in pf, one in gatlinburg. ate at both in pf and was safe (one on the island and one on the parkway <the one on the parkway had a bigger menu) margaritaville on the island was delicious and safe (the manager even came out to our table and asked if there were any other...- 3 replies
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bonefish is one of my 'go-to' restaurants as i can usually find one nearby and have had very good luck i've eaten at one in knoxville, tn, one in johnson city, tn, one in winston-salem, nc, and one in panama city, fl. on one hand, i wish they had a bigger gluten-free menu, maybe make one of the 'specials' gluten-free. on the other hand, i'm thankful i...
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ARCHIVED Fighting Upper Respiratory Infection
notme replied to notme's topic in Coping with Celiac Disease
it's flu season, here, too. they shut the schools down the week before last because their attendance was so low due to illness. two of the grandkids got it (i watch a bunch of kids) but i didn't get it. again hope you feel better! -
ARCHIVED Still losing weight
notme replied to Fbmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
for the first few years, i would freak out once a month over my sudden lack of digestion - what was i eating wronggg?????!!! but it was my hormones (pms) just something to remember in case that affects you. lolz, after i remembered, i just ate whatever (gluten-free) junk i wanted, because it wasn't going to digest well, anyway...... you are not doing... -
ARCHIVED Fiber Powder in Baked Goods
notme replied to NZions's topic in Gluten-Free Recipes & Cooking Tips
(raisins = blech, lolz) would psyllium fiber be good? the america's test kitchen 'how can it be gluten free' cookbook has some baked good recipes that have psyllium in them - pizza crust comes to mind what 6 y.o. doesn't like pizza -
gluten dude is a major whiner, in my opinion. (and shouldn't it be 'gluten free dude' ?) i believe he makes his living off of the website, so why wouldn't he continue to cry about it? after all, he's been gluten-free since 2007 - you would think he would have a handle on this disease by now, especially since he's THE gluten dude. we all mess up now and...
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ARCHIVED Newbie question- glutened by crumbs in RV
notme replied to ffyrebird's topic in Related Issues & Disorders
mleh, my mil brings gluten filled stuff to every holiday. i make her a quarrantine area where she must keep her poison and a designated area where she is to eat it (not near my food!!) i didn't make dinner rolls for the 5 course dinner i prepared for them (oh what a sin) so she makes a big deal about bringing her own rolls. pisses my husband OFF !! to... -
ARCHIVED Chapstick/Carmex/Burts Bees
notme replied to Nikki2777's topic in Gluten-Free Foods, Products, Shopping & Medications
i use plain old vasoline.......... they make little tiny to-go containers. but, eos you say? i would try that. ima google that.- 8 replies
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ARCHIVED A Christmas Story about GLUTEN
notme replied to gluten-free girl 67's topic in Coping with Celiac Disease
no one cooks for me. learned that right in the beginning when my friend made me some stuffed grape leaves. what's in them? rice & spices, etc (all gluten-free) grape leaves are gluten-free. so i said ok and took the container home. open container: sauce on the grape leaves. ask my friend: what's in the sauce. oh, some lemon juice, some chicken... -
ARCHIVED Impatiently waiting for scope results
notme replied to blueeyedapple's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i've never heard of such a hard to get a dx disease as celiac. my blood test (not the correct ones or complete panel) came back negative, but since i regained 20 lbs in a few months, my gi doc opted not to do a gluten challenge. when she did the scope, she could see the damage (25 years worth) but my biopsies came back negative. she pretty much told me...- 33 replies
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o, and almost forgot - when your body starts acting like it should because you've been gluten free for awhile, your immune system will be CRAZY good. like, better than everybody else's. i've not been sick at all, not even a sniffle, in the past 6 years. before that, i caught every cold (that would turn into bronchitis or pneumonia) every flu, etc - last...
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duuuuuuuude. you are speaking to a forum of celiacs. we *alllll* face these difficulties. are you saying my life sucks? i went undiagnosed for TWENTY FIVE YEARS. i am 6 years into the gluten-free lifestyle and have not developed any other major difficulties. in fact, all those terrible things (symptoms, tons of them) went away. you won't see...
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ARCHIVED celiac disease in East Tennessee
notme replied to Arasmas's topic in Introduce Yourself / Share Stuff
fyi - they actually DO make breadmakers specifically for making gluten-free bread - my husband found them online and has been threatening to get me one. i am pretty curious (and lazy - used to love to dump ingredients into the bin and push a couple of buttons, boom, done, lolz) and somebody on another site posted this cranberry loaf that would be cool to... -
ARCHIVED celiac disease in East Tennessee
notme replied to Arasmas's topic in Introduce Yourself / Share Stuff
noodle noodles? like egg noodles???? dooooo tellllll - stroganoff has not been the same lolz i just realized how long it's been since i made stroganoff and that's probably why i haven't - no noodles. i did find some a few years ago (on vacation, in some wierd little supermarket store in fort myers beach) but, ya know, can't always run to florida hahaha -
ARCHIVED inflammation of small intestine
notme replied to sella's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
is this a new doctor, sella? i remember you were going to switch. sounds like you better keep looking...... i feel your pain: i've been gluten-free (dx'd FINALLY with celiac after 25 years of doctors telling me i had ibs/ibd/colitis but doing no tests at all to rule out anything else!!) for 6 years, honestly finally starting to feel like i'm healing... -
ARCHIVED celiac disease in East Tennessee
notme replied to Arasmas's topic in Introduce Yourself / Share Stuff
hi, chrystal, welcome to the best club you never wanted to join lolz - i have been on the gluten-free diet for 6 plus years now - it gets easier, trust me! last friday, husband took me out to dinner at bonefish in turkey creek. they do a good job keeping things safe. i always ask for a menu, then order the exact same thing every time hahaha the red robin... -
ARCHIVED Glutened by ocean spray cran raspberry.
notme replied to Kurasz's topic in Gluten-Free Foods, Products, Shopping & Medications
aspartame gives me a horrible reaction - makes me hyper (actually, all artificial sweeteners do) - i am also careful not to overdo it with the raw veggies/fruits and there are not many juices that aren't too acidic for me. try keeping a food journal - you may think you remember everything you have eaten all day, but i was surprised ("o, yeah, i forgot i... -
winning!!!! love it when i find a 'new' treat that i don't have to fingerprint
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ARCHIVED Have any of you got anxiety problems as well?
notme replied to Zachm's topic in Coping with Celiac Disease
i also take xanax for my anxiety. very small doses and when needed. the script was easier to get than my celiac dx lolz