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Latest Celiac Disease News & Research:
Everything posted by nikki-uk
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ARCHIVED Not Diagnosed Yet...
nikki-uk replied to lostinlondon's topic in Coping with Celiac Disease
I'm curious - how can she be sure you don't have celiac disease ?? -
ARCHIVED Does This Sound Like Celiac?
nikki-uk replied to KAG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sorry to point out that 3 weeks back on gluten after being gluten-free IS NOT long enough for you to gain a positive blood test OR biopsy - your doctor is wrong Ideally - you would need to back on a high (at least 4-6 slices of bread) a day for 6 weeks or more for a blood test. Some would say even longer for the endoscopy. -
ARCHIVED I Got "fired" By My Doctor!
nikki-uk replied to tiredofdoctors's topic in Introduce Yourself / Share Stuff
When I read the title of your post Lynne I had to chuckle to myself .... so you got fired by your doc?? (ha!! a concept inconceivable in the UK with the NHS!)...well GOOD FOR YOU!!!!!!!! I mean...it really makes you wonder HOW these people are trained physicians and had the brain capacity to get through med school ..yes, as Susan said.. 'HARUMMPHHH... -
ARCHIVED Teen - Blood Test High Gliadin Iga
nikki-uk replied to Judee's topic in Parents, Friends and Loved Ones of Celiacs
Well I know different labs can have different reference ranges but a tTg of 20 sounds awfully high (to me- usually anything above a 10 or there about's is positive). Not sure about the AGA (it was never used in my son's test) Gene testing would be a good idea. Hopefully someone more knowledgable will know about the anti- gliadin -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
nikki-uk replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
LADIES NIGHT OUT Two women friends had gone for a girls' night out. Both were very faithful > and loving wives. However, they had gotten over-enthusiastic onthe Bacardi > Breezers. Incredibly drunk and walking home, they needed to pee, so they > stopped in the cemetery. > > One of them had nothing to wipe with, so she took off... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
nikki-uk replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Allowances WILL be made for a) Gluten induced Brain Fog OR Lyme Brain Oh they are BADDDDD!!!!! -
ARCHIVED Not Diagnosed Yet...
nikki-uk replied to lostinlondon's topic in Coping with Celiac Disease
Ok, I can only tell you my hubby's experience (and he's a coeliac - NOT wheat intolerant) Coeliac disease destroys the lining of the small bowel, but it usuallly takes years before you actually get a diagnosis When my hubby started the diet we was expecting immediate results - but sadly repairing damage by celiac disease takes a bit longer than... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
nikki-uk replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Harumph!!..no-go on the link Bev -
ARCHIVED Going On Vacation Wooohooohooo
nikki-uk replied to Jestgar's topic in Introduce Yourself / Share Stuff
EXCELLENT!!! ...sounds FANTASTIC!!....and no food worries too! Enjoy the rest of your adventures!! -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
nikki-uk replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
PINCH, PUNCH, FIRST DAY OF THE MONTH!!!! Absolutely NOT!!.....dull is NOT a word I'd EVER use to describe you!! .....I mean,......a dull person would never come up with such phrase as scatalogical survey!!!! ...and can I just say what a great avatar of Stinker!! EDIT: Ooops I mean ANNIE She clearly has inherited Susan's special... -
ARCHIVED The Funny Pages - Tickle Me Elbow - The Original
nikki-uk replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
ACTUAL SENTENCES FOUND IN PATIENTS HOSPITAL CHARTS 1. She has no rigors or shaking chills , but her husband states she was very hot in bed last night. 2. Patient has chest pain if she lies on her left side for over a year. 3. On the second day the knee was better, and on the third day it disappeared. ... -
ARCHIVED Not Diagnosed Yet...
nikki-uk replied to lostinlondon's topic in Coping with Celiac Disease
Hi 'Lost in London'! (are you in London?) It's quite possible you have coeliac disease with your symptoms and this is NOT the same as a wheat intolerance. Coeliac disease is a gluten intolerance which involves not only Wheat but Barley, Rye, and Oats. I would advise you (whilst you are still have gluten in your diet) to ask your gp for a... -
ARCHIVED I Dont Have Celiac, But Its Ruining My Life!
nikki-uk replied to littleone's topic in Parents, Friends and Loved Ones of Celiacs
Just to point out if your partner has been gluten-free for any length of time the blood test will come out negative (you stop producing the relevant antibodies once you remove gluten from your diet) BTW - I am gluten-free but not a coeliac (my hubby and son are) The gluten-free diet will not cause you any harm (or cause gluten intolerance) and... -
ARCHIVED Happy Birthday Rachel!
nikki-uk replied to AndreaB's topic in Introduce Yourself / Share Stuff
HAPPY BIRTHDAY RACHEL!!!!!! -
Hope you continue to feel better!!
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ARCHIVED Omg...i Might Be On To Something
nikki-uk replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I don't like to get political in Rachelville but at least you have 'Megan's Law' in the US allowing you at least to know if your kids are at risk. There is a huge campaign in the UK for parents here to have the 'right to know' after many, many truly heartbreaking crimes but government keeps blocking it. I need my own personal Susan!! ..sorry,.... -
Only if - you feel you might struggle sticking to the diet (it's a life long comittment!) Do you need a 'formal' diagnosis?? It sounds as if being gluten-free eases your pain, and your right... the only cure is a gluten-free diet Incidentally, my hubby was diagnosed with Psoriatic Arthritis 2 years prior to his diagnosis of celiac disease. He...
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ARCHIVED I Dont Have Celiac, But Its Ruining My Life!
nikki-uk replied to littleone's topic in Parents, Friends and Loved Ones of Celiacs
Carla has put into words exactly what I was thinking!! (good advise Carla - ever thought of being a marriage councellor??!) I can totally relate to what you are going through - my hubby was desperately ill before going gluten-free (negative bloods - positive biopsy) He went from being a very active physical man to a man so weak he couldn't even get... -
ARCHIVED Pirates Of The Carribean Anyone?
nikki-uk replied to why-is-the-sky-blue's topic in Introduce Yourself / Share Stuff
Nope, Orlando too pretty -- I like the 'rough' look -
ARCHIVED You Know You Are Having A Bad Day When......
nikki-uk replied to Canadian Karen's topic in Introduce Yourself / Share Stuff
Gotta love em!! -
ARCHIVED Pirates Of The Carribean Anyone?
nikki-uk replied to why-is-the-sky-blue's topic in Introduce Yourself / Share Stuff
...never mind Orlando Bloom ...what about Johnny Depp!!!.....very nice too!! I'm in the UK so it's not out for a couple of weeks but it looks really good and I definitely want to see it -
Are you sure he didn't mean tonsils? ...but get your bloods done anyway I think Hope your throat feels better soon
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Yerba Mate Tea?
nikki-uk replied to UR Groovy's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes!, try it you must!! Natural red bull or even a cure all??? http://www.homeherbs.co.uk/0/product/0/39-...CFQNQEgodhxTbSA Have fun!! -
Back when my hubby was (I thought) dying in hospital wasting away I used to spend as much time on the PC as possible in between visiting him. I remember I briefly touched on celiac disease but dismissed it because nothing I read seemed to suggest you could be as ill as my hubby was and of course neg bloods I'd decided (in my research) that it was...
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ARCHIVED Please Please Please Please Help
nikki-uk replied to Chris E's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Do you know Chris, - docs could never really give an answer as to why my hubby suffered terrible chest & rib pain (even took him to A+E numerous times 'cos he thought he was having a heart attack!) If I had to hazard a guess I'd say it was the 'reflux' (where stomach acid comes back up the oesophogeal tract) Hubby was also found to have a hiatus...