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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    So, we thought we'd try this stuff suggested in Jules Shepard's book called Expandex (which is tapioca starch). She suggests using it to make bread more "gluteny" and it did seem to work. The loaf rose well--quite high actually-- and the bread was "squishy" and tasted good. But, half a sammy in.... and I started to have heart palps and feeling sort...
  2. IrishHeart
    :lol: :lol: OMG! Thanks for that!!!!....I think I peed my pants a little...... Our first few loaves were like sponges....but now, really quite good!!
  3. IrishHeart
    Personally, I'd wait until it was PROVEN in hundreds of celiac patients for MANY years before believing it would work. I am skeptical, too. It's intriguing, but ....I could never be sick the way I was again.....not even for a taste of a gluteny bagel or pizza. Actually, the ONLY thing I cry over is....my Mom's apple pie. That IS the BEST damn thing...
  4. IrishHeart
    Oh DEE!! I am so happy you are feeling better--gimme a cyber-space high five, girl!! yeehaw! I have the most amazing husband, too. I simply would have gone stark raving mad had it not been for his unconditional love and support these past 3 horrifying years. He even went gluten-free with me and bakes our gluten-free bread and knows how to read labels...
  5. IrishHeart
    My trouble all started with my gall bladder (25 years ago). Impaired gall bladder function is associated with celiac disease and at least the doctor was bright enough to do the biopsy. A yeast infection of the GI tract--also celiac disease related. Biopsies are considered the "gold standard" for diagnosing celiac disease, but people often report that...
  6. IrishHeart
    I read that Vitamin K deficiency is linked to nosebleeds and easy bruising. Maybe that's why? Just thinkin....!
  7. IrishHeart
    I had to laugh because that is the exact phrase I use about myself...I was "one sick puppy" on gluten! Fran, You sound like a strong woman. You can do this. Attitude is key, for sure. As the quote in my signature says..."you may have to fight a battle more than once to win it"...but you WILL win! Best wishes to you!!!
  8. IrishHeart
    I use Now Brands D-3. (I need my vitamins to be soy fee, too) I had to do the 5000 IUs at first and it boosted my D levels right up. I will move to the 2000 in time.
  9. IrishHeart
    I just told my whole family about my genetic testing and since one cousin had lymphoma and another, melanoma, I felt I should tell them about my test results. I am thinking they had better be tested for celiac disease...And pronto! When I learned the genetic combo I had accounts for only 1-2 % of the (diagnosed) celiac population, my first thought was...
  10. IrishHeart
    Fran, Just want to say...you faced down cancer and you are a warrior, girl! You can beat the "gluten-jones"! Just get back on track ASAP! Hang tough and I hope you get good news from the test results. Let us know! All the best, Irish
  11. IrishHeart
    talking about poop doesn't bother me anymore....it is what it is... I'm cool with it....LOL!! Well, I am interested in what type of anemia they are treating you for , but honey..... do not find out for ME, find out for YOU! YOU need to know what the heck is going in your body. You need to know what anemia was created by the celiac..... so you can...
  12. IrishHeart
    ASK what they are giving you intravenously as it is important and I am curious! And YES!!! probiotics to the rescue!!Yaayy!! Hooray and I hope your bowel issues continue to resolve. You do "sound " better
  13. IrishHeart
    Let's see...hmm.....I'm 4 1/2 months in and if I was a 10 (on a scale of 1-10 for several years, with 10 being "just kill me now, I'm half dead anyway" ...) .......I am about a 7 now. And I'm thrilled by my progress! Best I can project, given the dozens of nasty symptoms I have, my age, the muscle wasting I endured, etc... and the fact that I...
  14. IrishHeart
    My sense of humor kept me alive. Seriously. Without it, I surely would have gone stark raving mad. Glad I could help by making you smile. Nothing about this is very funny at all, yet for some reason, we all find a way to laugh. Self-preservation, perhaps! My gut instincts (pun intended) told me you might be anemic. What KIND of anemia is it?...
  15. IrishHeart
    I stand corrected and humbly apologize. I thought cheddar had lactose...well, it does, but it is very low, I see. wow!I did not know that! Good to know ...as cheddar cheese is one of my favorites and as soon as my stomach allows, I'll be having a big ole chunk! I MISS my cheese!! I miss that more than gluten. I keep learning every day!! YES...
  16. IrishHeart
    From one "normally level-headed and methodical person" to another ....let me say this. Constant D, fatigue and frustration, inflammation from celiac, loss of nutrients and (I am sure) anemia, etc. (have they checked you for that, by the way?) will make even the most sane, calm person feel overwhelmed, scared and frantic. Been there, hon. Stress will exacerbate...
  17. IrishHeart
    I'm with you....the thought of refractory celiac scares the bee-jeepers out of me...
  18. IrishHeart
    Dee, You don't need to drink that solution all the time! Just when you feel a bit spacey--when your electrolytes are off. You are not whining, hon! You're venting and it is so hard to feel "cheery" when you've got nothing left inside. No apologies! As for cross contamination, well, that may be an issue. Check your kitchen, etc. carefully. Make sure...
  19. IrishHeart
    that's okay, Marilyn. I can't drink OJ right now anyway--I have a burning mouth & throat. Hopefully, that will go away in time.
  20. IrishHeart
    DITTO!
  21. IrishHeart
    Good one! :D
  22. IrishHeart
    I agree---the more ingredients, the more trouble, I find!
  23. IrishHeart
    I agree. Some people with celiac disease are asymptomatic--yet have completely flattened villi. They are stunned to learn they even have the disease! When hard pressed, they will say they did have headaches or some heartburn or reflux, but they did not associate it with celiac disease. Most people think it is a disease that is all about "smelly stools...
  24. IrishHeart
    Really...I'd like to see that article...what the heck is soybean oil doing in OJ??!!
  25. IrishHeart
    I am thinking the same way! It seems whenever I try a "gluten-free packaged product", I feel sick. If I stay "whole foods", or make my own bread, I keep making progress. Hope you figure out what's getting to you. I found my husband going gluten-free with me (entirely on his own) so no gluten filled bread or other food was coming in the house... and...
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