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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    No, you are Not a coward at all!! Many people on here say they felt this same way...I have said the words, I'd rather be dead than live like this!! many times during the last 4 years....I did not really mean it because I fought hard to get well. I have excruciating muscles/joint/bone pain, my hair fell out, I felt crazed in my head... and dozens of other...
  2. IrishHeart
    Nate, You are fighting two fights---to regain your health and to have others understand why you absolutely have to eat a certain way to accomplish this. The only thing you can do is use the same resolve you used to quit drinking. One day at a time--and remembering that your life is worth saving. You're a brave guy. I sometimes think if we had cancer...
  3. IrishHeart
    I hear ya...I know where every public bathroom is within a 150 miles radius of my house. For the first time in 20 years, I am NOT carrying Immodium caplets or antacids. No back-ups in the glove compartment either. Miracles occur with healing the intestines. Whenever I think I am not making progress, I recall just how bad it was (I hardly left...
  4. IrishHeart
    It is difficult at first. Gluten withdrawal, accepting what's happened, feeling out of sorts, feeling drained from being ill, depression from malnutrition...lots of reasons why you feel this way. If you need rest, it is because your body is telling you...it needs rest!! Do not feel bad about resting. You've been ill. Our bodies are really depleted from...
  5. IrishHeart
    (chuckling) yeah, what a topic for me to be so well-versed in, eh??...poo and how to stop it...geesh.... I became a non-stop researching machine the last 4 years as I became so ill because NO ONE in the medical community was any real help...I only pass on what worked for me. (and reading and trying to comprehend it while my brain was impaired was pretty...
  6. IrishHeart
    Okay, after all our discussions, this seals it...we really ARE living parallel lives, ms. gemini...my husband makes delicious gluten-free bread too... Okay, you two...you haven't steered me wrong yet.. I'm convinced. I'll order some Canyon bread right now
  7. IrishHeart
    Wow...those are a lot of foods to go without! Sorry! In answer to your question.. I avoid soy because I had a high antibodies test result (IgG) to soy--but not to gluten or dairy/ casein (I was gluten-free and CF at the time)and was not even thinking celiac at the time. I was just really, really sick with a hundred symptoms and that was the test that the...
  8. IrishHeart
    amen, sister! without it, I might be insane or dead by now ...It's how I figured out what was wrong with me I may give that raisin bread a try...thanks again!
  9. IrishHeart
    ok...never mind, I found it!!! ...good ole internet!!
  10. IrishHeart
    and where does one find this yummy- sounding bread, may I ask??
  11. IrishHeart
    Love2-- For you--an explanation of the difference between fibro "tender points" and myofascial pain and trigger points, written by the woman who wrote the book on fibro, literally. I suspect your pain (much like mine) is not necessarily FM, which involves just muscle --not pain in shins, feet, joints, bone, ribs---but trigger points and tightened...
  12. IrishHeart
    Karen! COOOLL....thanks for the tip on the toaster bags!! those are a fabulous idea and I was wondering how I would tote a stupid toaster around this summer...LOL LOL Thanks a bazillion!!!
  13. IrishHeart
    It's okay...UDI's white bread and plain bagels are DAIRY FREE!! Otherwise, yours truly would not be eating them!! Good luck shopping!! You're gonna be okay!!
  14. IrishHeart
    I buy Erewhon Cereals and Lara Bars right at my supermarket... Hannaford (is that chain in California??) This site's Gluten free mall carries those things, but I know you need them now, so that's no help. How about a Whole Foods? Man, I wish we had one nearby. I like UDI's bagels and breads. We resorted to making our own bread, though, as it is cheaper...
  15. IrishHeart
    You can use Erewhon gluten-free crispy brown rice for your treats. Rice Krispies have malt in them. They are a no-no. Bring the cereal, fresh fruit, natural peanut or almond butter, rice cakes, gluten-free crackers or pretzels (if you tolerate soy), some Lara bars, nuts, handy cartons of rice or almond milk. You can avoid CC if you stick to real, whole...
  16. IrishHeart
    Sure sounds like a gluten reaction to me. You felt better off gluten, then you ate a food with gluten in it and you felt lousy. That's what happens to most of us--only some have worse reactions than those--lasting for many days, sometimes weeks. Hope you feel better soon. Drink a lot of water. Guess you should stick with gluten-free...
  17. IrishHeart
    Heal the inflammation from celiac, get some appropriate massage and/or PT (ask your doctor for a script) and check your levels of B-12, folate, iron and D. Proper stretches, yoga, walk... do you know a good chiropractor? get the back and pelvic muscles under control so it does not spread... okay, that's all I got! Hope you get relief soon!
  18. IrishHeart
    The prep for colonoscopy the doctor ordered for me was ... 64 oz. of something clear, like ice tea or plain broth or white grape juice with a container of Miralax mixed into it.... then, 2-4 Dulcolax tablets with water...lots of water. None of those have dyes in them, that I know of. I am not sure of the sodium content, sorry. Can you ask your...
  19. IrishHeart
    Sounds musculokeletal. Nothing on MRI or Xray, right? I have that mid-back and spine pain as well!! Many spots that hurt--they run along both sides of the spine, right? These are called "trigger points"-hyper irritable knots in shortened muscles---and they can refer pain to anywhere. I have rib cage pain, shin pain, you name it... Google "trigger...
  20. IrishHeart
    I think they are being honest in saying that they cannot/ will not guarantee that the products are gluten-free (or any other allergen-free for that matter) and that takes the liability off their shoulders. I used Clinique facial wash and face cream for years--with no problem. Once the celiac triggered for good and I was really ill, I had a pink, sore...
  21. IrishHeart
    Don't be sorry--you are not a whiner, and you certainly aren't an idiot, hon!! ((HUGS)) I have been in your shoes with this non-stop D, cramps, bloating, and pain in the past, even ending up in the ER with dehydration. Even after going gluten-free, I still had D off and on, mostly because I had trouble digesting fats. I used digestive enzymes and they...
  22. IrishHeart
    Just FYI-- "Maltodextrin, a common food additive, is a type of sugar that
  23. IrishHeart
    I thought anemia might be a factor! My Dad had low iron ---and he had no periods either (I am just trying to make you giggle ) He suffered anemia for years. Many celiacs have low iron, or B-12 or folate levels. These are 3 types of anemia. Not because you are losing blood, but because this is a disease of malabsorption in the intestines. here...
  24. IrishHeart
    Our house is totally gluten-free. I found cross-contamination too tricky to navigate. But there are ways to co-exist with gluten-eaters. People do it very successfully.Look on the site--or post yourself--for pointers on making your kitchen and cabinets a safe place for you and your "stuff" My first Thanksgiving gluten-free (also my birthday week) was...
  25. IrishHeart
    I hear you! I am coming to that conclusion. It's hard to watch though....
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