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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    oh...thank you so much! I appreciate the hug! I am extremely hopeful, although some days, it is pretty bad....I have a very supportive husband, so, I never give up I have seen some improvements--obviously I can "talk" again LOL---and I am not so spacey or living in the bathroom...these are all good signs...! thank you for your sweet message!
  2. IrishHeart
    Sam... I expect your doctor has you scheduled for a re-test on those antibodies? At my worst, I cried to my sister, who --with my husband--was ready to take me to the Mayo clinic..."I feel as if someone is slowly killing me by poisoning me"....in a sense, I WAS being poisoned. Now, I look at gluten as "slow rat poison"...is a little bit of...
  3. IrishHeart
    thanks, karen!!
  4. IrishHeart
    You are neither bitter, nor self-pitying! You have every right to be sad, pissed off, and frustrated. You must be in a bit of shock. This is a life-altering diagnosis, for sure. For some like me, we are relieved to hear the diagnosis because we had so many awful, perplexing & painful symptoms and as much as the diet is "different", it is an answer...
  5. IrishHeart
    Oh boy oh boy!! I cannot wait to heal more and eat some Chinese food.....I'll keep this place in mind for later...yum uh...just one question...how do we non-soy eaters navigate around that ...??
  6. IrishHeart
    I sincerely suggest you read about celiac some more, Sam. Raven is telling you the facts---and you need to realize how the disease process can affect ALL the body systems. I know it is difficult to fathom, given that you are not having serious symptoms right now, but you have to believe that even the tiniest amount of gluten provokes the antibodies...
  7. IrishHeart
    Sam, I think we already talked about this, but I see you are a bit confused about it,so here goes! You may be in a bit of shock over your diagnosis--many people go through this. There's denial and anger and bargaining (like, why can't I just have it once and while....) and kiddo, I know you are trying to absorb it all. I am the opposite, I was so sick...
  8. IrishHeart
    Frieze raises a really good point!!!...HEALING, hon...have you had any ANA blood panels done to rule out other autoimmune diseases??...I wonder about your hip pain, etc....please, ask your doctor!!!
  9. IrishHeart
    Tammy, Gosh, I would think being gluten-free would help diminish those sore joints, not make them worse. Most people report lessening of symptoms, unless there is also an undiagnosed condition going on. My understanding (and believe me, I have read everything I could for 3 years and talked with numerous people with FM, my dear friend included...
  10. IrishHeart
    Well, ravenwoodglass has told us she had that condition that makes you purple (you may want to ask her about it) and among my 3 pages in a notebook list of bizarre symptoms, I also have had ridiculously frequent urination --but no solid medical reason--I've been checked many times (it's bladder compression from bowel swelling) and MANY people have eczema...
  11. IrishHeart
    Love2... You have moved me to tears. Thanks for sharing your story. I am so sorry you have such chronic pain. People tell me I have courage? No, YOU have courage!! I cannot imagine traveling extensively right now as even car rides are so difficult, but I have made myself go places and I do things all the time. I do try to keep a positive outlook at...
  12. IrishHeart
    wow---Gladiator gave you some great tips for protein!!! I followed his advice (even though I hate eating meat for breakfast ) and I feel much better. Too many carbs and not enough protein makes us feel weak. If you cannot make your own bread (which is what we resorted to because all the other stuff tasted awful)...we do keep UDI's bread in the freezer...
  13. IrishHeart
    DITTO what Raven just said!! It's funny, but I was thinking this afternoon, I will have the HAPPIEST birthday come November, because I will feel GREAT for the first time since I can recall...talk about looking forward to better times... YEEHAW! Gee, I hope your day was a good one, kiddo!!! (and I know you are following a strict diet, so...
  14. IrishHeart
    These sound fantastic!!--will save for when I can eat more stuff. Tummy still too tender just yet....but, these will be in the recipe book for down the road.... sounds yummy! thanks for sharing!!
  15. IrishHeart
    me too....I had an uncharacteristic pity party yesterday for myself and everyone on here came to my rescue...okay, let's stay the course, girls...we're going to be all right!! cheers!! And you feeling better today, Brigit?? Hope so!
  16. IrishHeart

    Hope today is a bit better for you. :) We all have the down days. I guess that is how we know the difference! ;)

  17. IrishHeart
    ALL of your symptoms can be connected to the celiac!! The fatigue, insomnia, depression and anxiety. All the therapy in the world won't be the entire answer to resolve those, (I know, I have been there/done that, too!)but healing your gut will!! I am going to send you some info in a private message because it may help you see that what you have suffered...
  18. IrishHeart
    well, thank you for the cyber hugs, sweet fairy!! right back atcha!! I am feeling the lovins from all these wonderful women and I have renewed confidence as a result....that "DARK side of celiac" wants to bring us down the hole...but I just AIN'T goin....(nice grammar from a former English Prof... I cannot thank you all enough for the good healing...
  19. IrishHeart
    oops, sorry I forgot about the lack of a tub ...dang it...how about a foot soak?? Sounds like you have the right attitude!!!....go, have a good day, sweetie!! yup, Brigit is pretty far away, but if we lived near each other, (I am in NY) I would have come to the party as well....
  20. IrishHeart

    ARCHIVED Sad

    IrishHeart replied to Brigit's topic in Coping with Celiac Disease

    None of this sounds crazy to me!! Depression is a major symptom of celiac. That is a fact. No doctor who is treating you for celiac will think you are making that up or will take your children away. Tell your husband that you need help right now. You both need to realize that this is not your fault---it is the disease and you need support, hon!
  21. IrishHeart
    Happy Birthday, Hon! I did not feel much like celebrating the last 3 birthdays myself. I was sick, in pain and thoroughly depressed because I did not know what the hell was wrong with me. I cried my heart out. I know you are feeling DARK...I call this aspect of our disease the DARK SIDE OF CELIAC (Cue the da-da-daaaa...dark, mysterious music)....because...
  22. IrishHeart
    Well, hon...you are mirroring my symptoms...the jaw, traps, neck and lower back and the illopsoas (that IS in the pelvic floor muscle area by the way--and controls all the others in a sense plus refers pain to the lower back) Yeah, I've done a ton of research and seen dozens of massage therapists and PTs and chiros for this pain....only MINE is so bad that...
  23. IrishHeart
    HONEY, I do not know where the humor comes from---some of this has not been very funny at all, has it?? and yet...we go on! You and I are going to get there together---one day at a time, one little victory at a time....hang tough...I'm right here for ya!!
  24. IrishHeart
    TEXAS!! Many times, your posts have kept me going!! You are a real fighter and what we call up here "a tough cookie" (meant with respect!!). Believe me, in 3 years, I have tried melatonin, 5HTP, valerian, passionflower, white willow bark, curcumin, turmeric....nothing seems to help me. No drugs or supplements have helped; I suspect they just aren't absorbed...
  25. IrishHeart
    Meat, my sweet friend!! You and I have talked many times and you have shared your story with me and I admire YOUR strength and determination to climb out of what I call "the rabbit hole" of gluten. You 'da woman!!! Thanks for being so compassionate and caring.
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