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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    I have often thought of people rising out of this gluten pain hell as the "phoenix rising from the ashes"...YOU ALL are the inspirational ones!! thanks for the thoughts, 'shroom and I feel your strength every time you post your thoughts to comfort others on here! Blessings on you!!
  2. IrishHeart
    "shroom" you doll Thanks once again for your kindness and encouragement. I am truly fortunate to have found this site and to know that in time, I will heal as you all have. yes, the sleep thing is a bugger. I try different pillows, wedges, foam padding, we even got a new bed!!. I try the recliner, but my neck is the sticking point. darn neck...
  3. IrishHeart

    ARCHIVED Sad

    IrishHeart replied to Brigit's topic in Coping with Celiac Disease

    Oh hon, you are not alone! You are not a failure!! There are many posts about this on here and many success stories of those feelings disappearing. Many of us have depression and anxiety and those are BOTH gluten related!! It will get better once you can stop ingesting it. I have uttered those same words, but I did not mean it. I do not want to die,...
  4. IrishHeart
    whoops, my bad, Dad! I should not have assumed. WOW a SMART GI doc!! (most of us did not have those!!) it won't hurt to have them tested and it is better to know NOW and spare them stunted growth and other diseases....this thing is not to be messed with or taken lightly. YOU DO NOT OUTGROW CELIAC. I have to wonder about your milk "allergies...
  5. IrishHeart
    Thanks, BEA! I do have many soothing tapes and use them frequently. I do some simple yoga moves and enjoy them. I am not seeing a huge difference in the mouth burning thing without SA, but I think TIME will tell. Others with burning mouth said theirs resolved post gluten-free. I hope your friend Graeme feels better soon. I learned EFT from the...
  6. IrishHeart
    GEMINI So Glad to hear your pain is gone! YAAY!! Thanks for telling me this!! I feel like I am one giant toothache sometimes. And it is directly related to gluten because when I get accidentally glutened, I swell up and feel like a giant stuffed burning sausage... in other words, it gets WORSE, so I KNOW that's what's going on. My bone...
  7. IrishHeart
    Well, sam... celiac is an inherited disease and given your daughter's food allergies, you may want to have your whole family be gluten free. You may want to start doing some reading. There are many young mothers like you on the forum that can help. best wishes...
  8. IrishHeart
    well,gemini, hypnosis is about the ONLY thing left I haven't tried... I may give it a go. I meditate and try to use all I learned in biofeedback. The rheumatologists (3 of them) and 2 physiatrists said I do not "present with typical FM" (and my best friend with FM says she doesn't feel like I do)...and I never thought I had that either. Widespread...
  9. IrishHeart
    A positive blood test means you have celiac, hon. Damage to your intestines gets worse with time and eating more gluten. So, you have been given the opportunity to stop that and avoid further autoimmune disease. As raven has said above, many of us are people who did not know we had it and suffered for years and developed so many health issues as a...
  10. IrishHeart
    Thanks, all you sweet people... I just needed to hear it will get better. YES, I had over 40 sessions of acupuncture. No change. Over 100 sessions of myofascial release. 57 chiropractic visits. 6 months of PT. A rolfer. We even traveled to a pain clinic in another state for trigger point therapy! It hurts to lay down. to sit. to stand. to walk...
  11. IrishHeart
    Thanks, hon!! yes, all my vitamins are on board and I have great levels! I supplemented for years...my D, Bs, B-12 etc....all good. I see a PT for severe pelvic pain, so some yoga is off limits for me....but I do what I can and I do love it! I agree---I think when the inflammation in the gut goes down and the muscles & tissues clear of the...
  12. IrishHeart

    Hang in there. You will feel so much better over time. It's taken a good year for me to really feel like I had a handle on my health and this darn diet...some days, it is still shaky! But at least now, when I get sick, I know it, because I know how it feels to feel great most of the time. :)

  13. IrishHeart
    Thanks, everyone! You are all so sweet and uplifting! I appreciate all your suggestions, and I thought they would all help too, however...I should explain. For 3 years, I have tried MANY sessions of acupuncture, PT, MT, myofascial release, even rolfing. I spent 2.5 years with a naturopath, functional med. doc, supplements, physiatrists, saunas, the gym...
  14. IrishHeart
    I was hesitant to even post this because I don't mean to whine, but all of you have probably felt this way at some point in the beginning of your healing, too and I know you will understand. I am almost 3 months gluten-free. Some of you know my long story, so I will not repeat it here. I am having a hard time right now. I am fighting to remain positive...
  15. IrishHeart
    Soy protein is difficult for some people, not all. I only suggested it.It may not be an issue for you. If you could see a gluten-savvy nutritionist, that might not be a bad idea. Until your irritated gut heals, you may be sensitive to many things (unfortunately, like the rest of us) BUT in time, you will feel better.
  16. IrishHeart
    I did the same thing...is it this food? that food? geesh, everything that went in my mouth made me worry. STRESS, medicines, NSAIDS (non-steroidal anti-inflammatories like advil, ibuprofen)liquor, caffeine...these are MAJOR gut irritants. I know many people have to take meds because of other things going on in their bodies(I WISH I could take them because...
  17. IrishHeart

    ARCHIVED Sad

    IrishHeart replied to Brigit's topic in Coping with Celiac Disease

    I do not know if you have ever read my whole story, but the many symptoms that developed in me took years. I have a long journey to heal all that has gone awry. I am in grueling physical therapy. But, you! You are young and have been diagnosed early. This is GOOD because it will prevent you from acquiring more autoimmune disease. I am certain you will...
  18. IrishHeart
    Nuts are really difficult for an irritated tract to digest and ENSURE has soy in it---that is a major problem for me. Try to stick to plain foods. So sorry you are in pain, I truly understand. Hope you feel better soon.
  19. IrishHeart
    Honey, 1) you are healing and having withdrawal,too 2) you are working really hard 3) you've been having sleep issues --are you taking sleep meds too? 4) benedryl makes me loopy and wired (most people get sleepy)and I cannot take it--how does it affect you? 5) Advil (ALL NSAIDS) is a major gut-irritant!!! the WORST thing you can take when healing a...
  20. IrishHeart
    And Happy St. Paddy's to you! Years ago, a gastro dosed me several times with antibiotics for serious diarrhea and stomach pain. He thought "maybe giarrdia"...I was too naive back then to say no thanks or to counter that with probiotics, and ever since then, I have had the "IBS" and "GERD" diagnosis and given meds for that. (this is of course, all baloney...
  21. IrishHeart
    and gee, for something not very common and not necessarily showing up on testing, how come we are all telling the same story??...seems pretty weird to me.... then again, what part of this isn't weird??
  22. IrishHeart
    Sweetie, Keep the brownies. WE used the EnerG Egg replacer in a recipe (when I thought I had an egg issue) and it worked well!! You could try it?
  23. IrishHeart
    Gosh, I do not know what to say about your friend. What does his endocrinologist think of all this?? It does not seem right hat he has so many symptoms while on meds. I think those severe candida diets often cause nutritional deficiencies (JMHO) when someone remains on them too long. My experience was BEFORE I went gluten-free, when I was very tired and...
  24. IrishHeart
    I agree and I think your system is correcting itself. Erratic blood sugars are common, I have read, with celiac and perhaps, you are leveling off now that you are gluten free! Go with yolo's suggestion.. the dandelion tea will help clear the liver. My glucose levels used to go up and down. My thyroid panels do too...but now, they are "normal" (hooray...
  25. IrishHeart
    I think it's great hubby went gluten-free--mine did it a month ago willingly, too and I think it's best for avoiding CC issues...so hooray for both of you!!:>) Anyone's health improving--including lowered cholesterol levels--does not surprise me after one goes gluten-free!! My hubby feels better, lost the last 10 lbs. he wanted to, has no constipation...
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