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Latest Celiac Disease News & Research:
Everything posted by pricklypear1971
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ARCHIVED Weight Loss, Excess Skin
pricklypear1971 replied to Celiac Mindwarp's topic in Related Issues & Disorders
Yes, I do! I have tried 2 dozen bras and still looking for a good fit. I bet you do need to remeasure for bras. I like boy shorts to keep my muffin "contained". Toning muscles will help. Alas, age and experience do catch up with us. -
ARCHIVED Anyone Have Pmdd Or Pms?
pricklypear1971 replied to Marie1976's topic in Coping with Celiac Disease
I've been struggling mid-cycle lately. I am Hashis - and we're working on it, but this mid cycle thing feels hormonal - because it has happened days 9-18 for 3 months. And it is horrid. I feel like I'm having a thyroid flare - and maybe my thyroid is going a bit nuts, but oh man, it's somehow linked to my cycles. I am currently on progesterone the last... -
ARCHIVED Half-Year Follow-Up: Peristsing Fatigue Attacks
pricklypear1971 replied to Em314's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Look, there's no other way to say this. You are not like other people. You have an autoimmune disease. It stresses your body. You (an AI person) can't live well, the way you're doing it. Think of it like a weekly budget. You get $7 per week. If you spend all $7 by Wednesday you're broke. Only spend $1 (one days energy) per day). Don't go broke. Yeah,... -
ARCHIVED gluten-free Beer - What Do You Drink?
pricklypear1971 replied to squirmingitch's topic in Super Sensitive People
I've had Redbridge and another....without looking in the bar I can't remember. I'm ok with either. I don't really drink beer - I cook with it. For drinking I hit the cider, wine, or Tito's. or mimosas. Or tequila, straight. Or good bourbon. Apparently, anything but beer. -
ARCHIVED Can Celiac Reaction Change From Diarrhea/bloating, To Dh?
pricklypear1971 replied to CeliacthatsMe's topic in Dermatitis Herpetiformis
Of it is DH, Dapsone may help reduce the rash in combination with a gluten-free diet. Bit it's wicked stuff...you'll need monitoring. A good number of DH sufferers are iodine sensitive. I was successful at keeping my DH "down" by going gluten-free and low iodine (thyca.org diet) for 2 weeks - then adding iodine back slowly. Took about 2-3 months to be able... -
ARCHIVED Dermatitis Herpetiformis Question
pricklypear1971 replied to Deaminated Marcus's topic in Dermatitis Herpetiformis
You know, it doesn't have to be DH to be a gluten related rash? There are hundreds of gluten reactions - this may be yours. It just may not be DH. -
ARCHIVED Strange Rash On Neck
pricklypear1971 replied to MicheleR's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Read the dermatitis herpetiformis section of the forum. See if rings any bells. If you are undergoing celiac testing DO NOT use steroids for the rash. It will interfere with testing. -
ARCHIVED Dermatitis Herpetiformis Question
pricklypear1971 replied to Deaminated Marcus's topic in Dermatitis Herpetiformis
Completely untrue, in my experience, at the beginning. Beware - when it decides to stay, it's hellish. That said, it wouldn't disappear daily. It would stay a week or two, vanish. Then 6 months, vanish. Then, it didn't go away.... -
ARCHIVED Painless Is Problem, Who Knew?
pricklypear1971 replied to Ksee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep. Amazing what we consider normal. -
ARCHIVED Hashimoto's Syndrome
pricklypear1971 replied to kcorcoran2013's topic in Related Issues & Disorders
Well, I think the tsh is bull.- 31 replies
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- auto immune disease
- goiter
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ARCHIVED Painless Is Problem, Who Knew?
pricklypear1971 replied to Ksee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I understand your point, but you need to eat regularly. It will promote healing. -
ARCHIVED Hashimoto's Syndrome
pricklypear1971 replied to kcorcoran2013's topic in Related Issues & Disorders
We agree that tsh levels are bull. If yours is high it's great to use to get a doc to listen. Otherwise, forget it. For most patients it isn't a barometer of how well their thyroid allows them to feel.- 31 replies
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ARCHIVED Chest Congestion...
pricklypear1971 replied to shadowicewolf's topic in Coping with Celiac Disease
Neti pot. Helps me, at least. Helps soften and clean out gunk and prevents post nasal drip. Yuck. Feel better soon! -
ARCHIVED Am I The Only One Who Has Doubts?
pricklypear1971 replied to StormyWen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think we could fill a book with doubts. And a second with things we thought were "normal". Do what you need to do to figure out your health issues. Sounds like you're on the right track. -
ARCHIVED Hashimoto's Syndrome
pricklypear1971 replied to kcorcoran2013's topic in Related Issues & Disorders
If your problem is poor conversion or rt3 it won't happen. I'm not trying to be discouraging, just realistic. I think I have a serious rt3 problem - meaning I build it up and quickly from t4. I've never been on just t4 ...but in the beginning (1year?), meds really helped. Then I hit a wall. That wall was rt3, but I didn't know it. Celiac was in there too...- 31 replies
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- auto immune disease
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ARCHIVED My Health, My Choice
pricklypear1971 replied to Ksee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Bravo. -
ARCHIVED Hashimoto's Syndrome
pricklypear1971 replied to kcorcoran2013's topic in Related Issues & Disorders
Yep.- 31 replies
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- auto immune disease
- goiter
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ARCHIVED Hashimoto's Syndrome
pricklypear1971 replied to kcorcoran2013's topic in Related Issues & Disorders
Here's a dirty little secret. Find any quack who will write a script - in the US we have legitimate Naturapaths and then we have quacks - it's best to find a legit doc, but if it comes down to it, find a fool who will legally write an rx and get one.- 31 replies
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- auto immune disease
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ARCHIVED Hashimoto's Syndrome
pricklypear1971 replied to kcorcoran2013's topic in Related Issues & Disorders
You can order labs from online labs. Your bloodwork will be processed at a lab like LabCorp. You can also find a doc who treats thyroid based on how you feel, not labs. It takes alot of work and kissing lots of frogs, but it can be done. Call a compiunding pharmacy near you and ask for a reco for a doc who regularly prescribes t3 or natural therapy...- 31 replies
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- auto immune disease
- goiter
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ARCHIVED Dermatitis Herpetiformis Question
pricklypear1971 replied to Deaminated Marcus's topic in Dermatitis Herpetiformis
My Dad has a mysterious rash - had it for decades. You think he's stopped gluten since I figured out where my rash came from? Ut uh. He isn't in enough pain and may never be. -
ARCHIVED Read This If You Could Use A Chuckle :)
pricklypear1971 replied to NotMollyRingwald's topic in Coping with Celiac Disease
Yep! -
ARCHIVED Read This If You Could Use A Chuckle :)
pricklypear1971 replied to NotMollyRingwald's topic in Coping with Celiac Disease
I can't remember to take my meds - thyroid and supplaments. I set alarms on my phone and on my way to take them get distracted..... Gotta improve because I just started t3 and my body gets really unhappy if I'm not on schedule. Which reminds me, I'm about 3 hours late.... -
I wonder if they've adjusted for diet - since many gluten-free'ers eat a more "whole foods" diet? And....we tend to know about our health problems and try to fix them - so perhaps earlier indications of metabolic syndrome have been previously addressed? And finally, as the type of person dx'ed with celiac disease changes (from a person who "looks Celiac...
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ARCHIVED One Dr. Uses Wine Sensitivity As Health "gauge"
pricklypear1971 replied to babysteps's topic in Gluten-Free Foods, Products, Shopping & Medications
Interesting. I only drink reds in the winter - dehydratese and gives me a headache in ware months. Seasonal allergies have a big effect on my tolerance of all alcohol. Bad allergies=headache from a drink. Other times, I'm good to go! -
D before your period is caused by prostaglandins. If it starts up, take an Imodium. It works.
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- glutened
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