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Charli61

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Everything posted by Charli61

  1. Charli61
    I wasn't celiac until after my gallbladder was removed, that was the stress that turned on my celiac gene
  2. Charli61
    I like Sabatasso from Costco
  3. Charli61
    Interesting article, hope to see more on it. My daughter suffers with Cystic Fibrosis and Celiac. She is on a CFTR modulator drug and so far it has not appeared to help her Celiac. I will be watching to see what the findings are of further studies.
  4. Charli61
    Wondering if anyone has had luck with anything other than Synthroid and related drugs for Hashimotos... I do not tolerate that family of drugs, they are talking about dessicated thyroid but my Dr. is dragging his heels and still trying to push Synthroid. Wanted to see if anyone else has a similar issue?
  5. Charli61
    I have had Raynauds for about 25 years, did not have Celiac until about 15 years ago... My Dr. at the time with the Raynauds had lovely advice for me.... "Stay warm" It still makes me smile. I live in Canada, and no, staying warm isn't really an option, and over the years the Raynauds has gotten worse, now it is most of my feet.. and my hands I try...
  6. Charli61
    I bought a bottle of Gliadin X a few months ago. I do not know that it is wonderful or is not wonderful, what I do know is that if I have to eat out, I take one. Even if I am assured that it is G.F. And, I have not been C.C.ed since doing that. I don't eat out a lot, but when I do... I protect myself. Maybe I would have been fine, but in my prior experience...
  7. Charli61
    I think 3 weeks is ample, especially if she is feeling so awful during the challenge. I am an adult and it darn near did me in doing a challenge, and mine was 3 weeks. I had been essentially off of it for several months, and then did the challenge and it was sufficient.
  8. Charli61
    Thank you, I wish I had asked BEFORE I spent $100 on the bottle. I just thought for the odd time I am out and the only choice is french fries and no dedicated fryer I would maybe cut down the risk of CC.
  9. Charli61
    Hi, I only got them for the odd time I want to eat out, maybe have french fries even without a dedicated fryer. I live in a small city in BC Canada and there aren't a lot of choices. I don't intend to take them and intentionally eat gluten. I am far too sensitive for that. I just thought that if I could take one or two and maybe just maybe not get CC...
  10. Charli61
    Hi all, I just ordered a bottle of GliadinX capsules, has anyone else tried them? I am both excited at the thought of being able to order French fries etc. without concern of CC and terrified to try!
  11. Charli61

    ARCHIVED New Dx of DH

    Charli61 replied to RNinGA's topic in Dermatitis Herpetiformis

    For me it took almost a year of being gluten-free to get it mostly cleared up also the arthritis took about the same time to go away, but I had been un-diagnosed for about 10 years - which may have made things a little more difficult to get rid of. Apparently I am an odd one, DH and the typical intestinal issues.... I had the whole works and how!! My understanding...
  12. Charli61
    Que Pasa are my go to tortilla chips, not only gluten-free but also non GMO, which is really important to me.
  13. Charli61
    I'm from Canada too, and they suggested the biopsy, but given the high numbers on the blood test they said it really wasn't necessary (also I have DH but that was never 'formally diagnosed' either, but it was seen and noted) The Dr. said the biopsy is the de facto test to confirm Celiac. So, I didn't have the biopsy. Question for you all..... Did your Dr...
  14. Charli61
    My daughter has not been officially diagnosed Celiac, but she will be, it is just a time thing. (I am and I know she is!) She also has come up with a severe systemic reaction to Sunflower anything... and there is sunflower oil/lecithin etc. in a lot of foods. Even in 'Vegetable oil' there is allowed to be (I think) 14% before they have label it as containing...
  15. Charli61
    I bought some of the ones labeled Gluten Free and have had NO problems at all. I only have a few left and since I have not found them in Canada I figure I will save these ones for treats! I have Celiac and am very sensitive. Hope this helps you.
  16. Charli61
    Has anyone else had a bad reaction with Bob's Red Mill gluten-free Oats? I had only tried a little of the oats at Christmas time and thought I was okay with them. So the other day I was craving cookies. I made awesome cookies using these oats, and then of course since I craved them so badly I ate four of them! So then I had a terrible night with DH type...
  17. Charli61
    So, was it a generic then? I just recently found out that most generic medications have a wheat based binder in them. The article I read specified Generics.
  18. Charli61
    Vegetarian for about 25 years, give or take. I do eat eggs and dairy and honey, so it's a lot easier for me than going Vegan. I support local family farms for my eggs and dairy, so it's at least cruelty free. I had it much easier before I became Celiac (probably happened 10 years ago, but only diagnosed about 3 or 4 years ago) The mainstream vegetarian...
  19. Charli61
    There are some very good naturpathic doctors, and some not so good ones. Have you done some elimination diet work? Just thinking sometimes taking away too much all at once is awfully hard on the body. Sorry I don't have any good advice for you, I hope you feel better soon!
  20. Charli61
    Well Tash... I think we are all a bit different in our reactions.. I bloat up like a blinking balloon, so bad that my skin feels like it's going to tear apart ( I look nine months pregnant)... and my ankles and wrists/hands hurt so terribly! I have a headache and just hurt and feel so lousy. I don't get 'glutened' too often, only twice in the past several...
  21. Charli61
    Thanks Lisa, and yes I do eat tomatoes, peppers and potatoes with no issues. It is definitely almonds and now cashews too... I am giving up all tree nuts for awhile and will see if the pain abates. You are right as a vegetarian I do not like losing these proteins either, but it seems necessary. I tried nuts that were from 3 different sources, supposedly...
  22. Charli61
    At first it was almonds that affected my joints... now it appears that cashews are also doing it I am so sore right now! So, I think I will just quit all tree nuts, this is tricky because as well as being Celiac I am a vegetarian, not vegan thank goodness, because I am already restricted enough!
  23. Charli61
    Have just decided that almonds are the culprit with my joint pain that has resurfaced after several months of nearly pain free joints. Rheumatologist told me that the 'celiac joint pain' could actually take years to abate. So, when it was mostly gone I was feeling pretty good, then yesterday and today major pain in hands and wrists and also ankles and feet...
  24. Charli61
    Thank you Auzzi! I hadn't even thought of making the 'failed cake' into truffles.....YUM! That will happen for sure!! And your Christmas Cake recipe looks awesome, thankyou so much!
  25. Charli61
    Hope you let us know how you made out with the kids....?
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