LKelly8
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Latest Celiac Disease News & Research:
Everything posted by LKelly8
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Here it is. . .
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ARCHIVED Breaking News: Routine Screening For Celiac Disease Not Always Beneficial
LKelly8 replied to hineini's topic in Publications & Publicity
It's bean-counter science. Applying cold cost/benefit analysis to human life. <shudder> -
ARCHIVED Ulceratice Colitis Or Not?
LKelly8 replied to francelajoie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wow, that sounds like ulcerative colitis to me. My sister has UC, after years of on-and-off prednisone treatment she's finally in remission with a drug called 6-MP. Open Original Shared Link I went to Dr. Dahlman's website and read a few pages. To be blunt I think he's a quack . Sorry! Open Original Shared Link Celiac is the only autoimmune... -
ARCHIVED Floaters And Antibiotics And Celiac
LKelly8 replied to Byte Me's topic in Related Issues & Disorders
Here's a good reference page on retinal disorders. . . Open Original Shared Link I've had floaters for as long as I can remember. They've become more numerous and annoying as I've gotten older, once I joined the 35+ crowd. I can't imagine that cipro or flagyl would have any effect unless you have an underlying eye infection that's somehow causing... -
ARCHIVED Help!
LKelly8 replied to lightningfoot speakin words's topic in Gluten-Free Foods, Products, Shopping & Medications
Here's the link to their customer service page. . . Open Original Shared Link I looked through their FAQ too, no mention of gluten-free status. -
ARCHIVED celiac disease Mentioned On Cnn.com
LKelly8 replied to VegasCeliacBuckeye's topic in Publications & Publicity
At least the article was about allergies and the 8-must-list allergins and not about celiac disease. The author did miss use the word gluten. ". . .But thanks to the Food Allergen Labeling and Consumer Protection Act (FALCPA), any food produced after January 2006 containing one of the eight most frequent food allergens (in the linked PDF chart) will... -
ARCHIVED Soda
LKelly8 replied to Tavi2's topic in Gluten-Free Foods, Products, Shopping & Medications
Well, just as an example, here's the Publix brand soda gluten-free list from Publix grocery stores - Regular sodas: Black Cherry Cherry Citrus Hit Club Soda Cola Cream Ginger Ale Grape Lemon Lime Orange Raspberry Seltzer Root Beer Diet Sodas Diet/Caffeine free Cola Diet Cola Reg/Diet Tonic water Now you know I... -
My mother has both celiac and vitiligo. I have celiac and rheumatoid arthritis. If you have one autoimmune disease you are at a greater risk (than the general public) of developing another. Celiac is a special case amoung the autoimmune disorders though - we know the trigger, the "irritant" that causes the immune dysfunction. Being gluten-free won...
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ARCHIVED White Distilled Vingear
LKelly8 replied to skinnyminny's topic in Gluten-Free Foods, Products, Shopping & Medications
I've never used the GV brand vinegar but I believe white distilled vinegar should be gluten-free regardless. Maybe you got an older bottle, or thay haven't gotten round to the vinegar yet? Although, now that I thunk of it - they are very careful. If it's produced in a facility that processes wheat or barley they might just leave it off. Hmm. -
ARCHIVED Is A Minor Case Of Celiac Like Being Kinda Pregnant?
LKelly8 replied to Ridgeback Momma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A "minor case" of celiac is NOT possible. Perhaps he meant your celiac symptoms were currently mild or he suspected you don't have celiac but are gluten intolerant. Or maybe the covering doctor was clueless. -
ARCHIVED Positive Experience At Doctor's Visit
LKelly8 replied to susiek's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Excellent. So nice to hear something positive! What brand of gluten-free cookie did you try? I'm eagerly awaiting my amazon .com order for Mi-Del Royal Vanilla Sandwich cookies. Their faux Oreos are tasty as well. -
ARCHIVED Weight Gain And Prednisone
LKelly8 replied to penguin's topic in Related Issues & Disorders
Yes, many good vibes go with you! I was on 9mg of decadron for rheumatoid arthritis and gained 60lbs in six months. I'm also bipolar so the mood swings were unbelievable. Felt hot all the time, head sweats in the middle of the night - leaving my pillow drenched, obsessive compulsive behavior, fits of anger/irritability, "moon face", "buffalo hump"... -
ARCHIVED Spelt?
LKelly8 replied to Lollie's topic in Gluten-Free Foods, Products, Shopping & Medications
{Mr. Mackey voice} "Spelt is bad, mmkay?" -
ARCHIVED Caramel Color?
LKelly8 replied to monicacpht3641's topic in Gluten-Free Foods, Products, Shopping & Medications
More than enough time. What brand of taquitos? Do they have a 1-800 number on the box? A website? I reacted to the caramel color in a grocery store brand cola. (Publix) -
ARCHIVED Why Is One Crumb Too Much?
LKelly8 replied to azmom3's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just for the record. . .Open Original Shared Link I can't remember if they ever released the actual cause of death. -
ARCHIVED Lifestream Waffles
LKelly8 replied to Chrisser's topic in Gluten-Free Foods, Products, Shopping & Medications
I can't eat any of their waffles. I don't know if it's cc or something else. I noticed their waffles are very grainy - not gluten grain, I mean it's like eating sand. Anything I can't fully digest (popcorn, seeds, nuts, corn/meal, lettuce, etc.) tends to cause me tummy trouble after awhile. -
ARCHIVED Creamies
LKelly8 replied to lightningfoot speakin words's topic in Gluten-Free Foods, Products, Shopping & Medications
Well, I'm still not sure what they are but if they're creamy and covered in chocolate, count me in! -
Yes. Do mention it. (IMHO ) No bombshells needed. It may very well not be the case for that person but that doesn't matter. Who knows who'll read your post down the line. Plant a seed and time will tell.
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ARCHIVED Is A Third Week Relapse...
LKelly8 replied to Cornhusker's topic in Coping with Celiac Disease
Your stomach might just be rebelling against the sudden increase in food volume. Any trouble with reflux? Pain/sore spot upper right abdomen? (gallbadder) During my first gallbadder attack I lost a great deal of weight, not due to poor appetite, I just couldn't finish anything. -
ARCHIVED Spelt
LKelly8 replied to Fiddle-Faddle's topic in Gluten-Free Foods, Products, Shopping & Medications
No. The grains are digested, the gluten proteins don't "survive" to become a part of the meat. That being said, my mom (also celiac) won't eat eggs from "4 Grain"(brand name) fed chickens. She knows there's no gluten in them - seeing that "4 Grain" logo just creeps her out! -
Please be careful taking any type of mood lifting herb or supplement if you have a family history of bipolar disorder, mania or recurrent major depression. I learned this the hard way, manic psychosis is un-fun.
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Amen! Any time a glutenous craving rears it's ugly head I can always come to the board and find an equally yummy and cravable gluten-free treat. (I just recently discovered Midel Oreos )
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I have age/genetic related hairloss. I was sooo sure it was vit def from celiac or one of the meds I take for rheumatoid arthritis but unfortunatly it's not, I'm just losing my hair just like my mom did, and her mom, and her mom. . .I come from a long line of shiny headed, angry women. I'm going in for "the" haircut in August, short and a lighter...
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The Cleveland Clinic definately. Any teaching hospital should be up to date on pain managment. I bounced through several rheumatologists before finding a doctor who specializes in research, he's on the cutting edge and I'm quite happy with his care. (Do be careful with steroids if you have any family history of depression or bipolar disorder.) As for the...
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ARCHIVED Villi Question
LKelly8 replied to ebrbetty's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
IMHO - You have celiac disease. I haven't the slightest idea what your doc is talking about. Is this your first scope? Doc's due consider a positive scope the "gold standard", some won't diagnose celiac without it. Yes your villi could heal in seven months - your villi could have healed after two months!