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LKelly8

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Latest Celiac Disease News & Research:

Everything posted by LKelly8

  1. LKelly8
    Last I heard the apple caramel flavor was NOT gluten-free.
  2. LKelly8
    In your new gluten-free diet were you making sure you were eating a well balanced diet too? Enough protein? Fatigue and flu-like exhaustion are common symptoms of autoimmune diseases, although I don't know if/why going gluten-free would cause those symptoms to peak. Where online did you find a "home celiac kit" and what on earth is it?
  3. LKelly8

    ARCHIVED Eerrrrrrrrrrrrr!

    LKelly8 replied to hannahsue01's topic in Doctors

    As long as you're feeling better - and you continue to improve - on the gluten-free diet, then tell that Doc to take a hike. That being said though, those blood tests are yours, you can simply demand a copy. And you never have to submit to a test without knowing exactly was it's for. If you already asked questions and got the "pat on the head"...
  4. LKelly8
    Exactly. I do my best not to eat anything with gluten in it but the fact is that it's everywhere and tiny, "silent" glutenings happen. (Ninja Gluten. ) It means I work harder not to knowingly injest gluten. (And try not to worry so much about the ninjas. )
  5. LKelly8
    How much was the original dosage for? It sounds like such a small amount, .05mg. It may be Open Original Shared Link though. The link is to a Loyola Univ. page on St. John's Wort, ativan and St. J might not play nice together.
  6. LKelly8
    I agree. While I like his ideas, (I hope he's right) the fact that he hasn't published - and hasn't he been saying for years that he's "about to publish"? - and he's taken out a patent, which means $$$ for him. That makes me nervous.
  7. LKelly8
    I'm 37 and I was diagnosed June of '05 by biopsy after five years of mis(sed)diagnosis and negative celiac blood panels. My mother's 69 and was diagnosed in 1938.
  8. LKelly8
    The only candy company I can think of that's both ingredient-and-facility gluten-free is St. Claire's Organic. Open Original Shared Link They make mints, hard candies, etc. I tried their ginger snaps, they were very good. There must be others , maybe Tropical Source chocolate? What about Newman's Organics?
  9. LKelly8
    My mother makes a fantastic stuffing with gluten-free cornbread. Every year it's the first dish to disappear from the table, popular even with the gluten-eaters.
  10. LKelly8
    You know, we can't win. Try to be brief and simplistic and they'll interrogate you like a spy; try to politely educate and be truly informative like you did and they call you a "missionary".
  11. LKelly8
    Yup I just got mine! (6) Arrowhead Mills Organic Buckwheat Flakes, (6) Nature's Path Rice Crispy cereal, (12) packages of MiDel Royal Vanilla Cookies. With the free shipping and ten bucks off it turned out to be only $2.07 per item. Delivery can take awhile, especially if you're waiting by the front door the entire time like me! I have new respect...
  12. LKelly8
    Open Original Shared Link I was diagnosed with celiac last year but as a kid I remember being thrilled when I found a whole mcnugget in with my fries, it was like winning a prize. I don't eat fries at restaurants because of the cc risk. However, my mom, gluten free for 35+ years, does eat the fries at McD! So I think it really is a personal...
  13. LKelly8
    Marshmallow Fluff! I baked a chocolate cake with Pamela's brownie mix and used marshmallow fluff as the frosting. Yummy.
  14. LKelly8
    I take 500mg twice a day for my rheumatoid arthritis. I've taken it for 2-3 years with no problems. I do take pepcid for acid reflux but that started before I went on the Lodine. I think Lodine is a good middle-of-the-road NSAID. It's old enough to have a good long track record yet new enough to provide better stomach protection. I've taken over two...
  15. LKelly8
    After coming home from the hospital she stayed on the banana diet for another 2-3 years, then her parents slowly introduced other foods - including gluten - this was the official "diet plan" for celiac back then. Although her disease was silent for many years she started having fairly typical celiac symptoms again in her thirties - she believes the disease...
  16. LKelly8
    I was diagnosed just last year but my mother was diagnosed as an infant in 1938, at Yale New Haven Hospital in CT. She almost died - starved to death - before they realized it was celiac sprue. We have a pic of her and her nurse on the day she was released from the hospital, she was almost three but because of the malnutrition she looked like a limp rag doll...
  17. LKelly8
    My mother was diagnosed in infancy - way back in 1938. This one screening doesn't mean some kids won't develop celiac later in life, I think they're just trying to catch the "early bloomers". Also I doubt the cost of testing is as high as it is here in the States.
  18. LKelly8
    Nature Made is labeled "No Artificial Colors, No Artificial Flavors, No Preservatives, No Chemical Solvents, No Yeast, Starch or Gluten." They also have a points program Open Original Shared Link I've gotten two free bottles of vitamins so far! (They'll send you a 7$ coupon after you reach 500 points.)
  19. LKelly8
    Just to make things even more complicated . . . Gall bladder disease and celiac often coincide. I was diagnosed a year ago with celiac and now I'm having typical gall bladder attacks. (Nausea after high fat meals, pain/sore spot in the upper right abdomen, etc) Here's a page from this site on gall bladder and celiac
  20. LKelly8
    I think of it like this, everybody's immune systems are different - if we were both in a room and somebody who had a cold sneezed, which one of us would get sick first? How long would we be sick? And how badly would we get sick? Alot depends on our individual, unique, immune systems. How each of us would react to being glutened would also be a "unique...
  21. LKelly8
    Exactly. Or no symptoms at all! Silent celiac. I believe my grandfather, who died of colon cancer, had the "silent" type of celiac. He used to say he had trouble occasionally with "lactose intolerance" - that was the only clue. The past five years I've been having "trouble with lactose intolerance" until I was diagnosed celiac last year! My mother, who...
  22. LKelly8
    (I don't think the Kettle brand chips are gluten-free .) Amy is not my friend. I don't like her brother Van or their dad, General Mills. Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.
  23. LKelly8
    From the 2004 study : "Three of the four patients who had reported problems after eating oats showed intestinal inflammation typical of celiac disease, and Sollid and colleagues studied intestinal T cells from these three patients. Two of the five patients who seemed to tolerate oats also had oats-reactive intestinal T cells. Functional study of these...
  24. LKelly8
    Sounds like a descriptive, colloquial expression - like "banana babies". Besides the apple shape, it might also refer to what eating one too many apples can do to the digestive process. I don't think it's a medical term.
  25. LKelly8
    I don't eat oats, or anything cc with oats. I haven't seen any data, any hard science, that says oats are ok. What I have seen is a mixture of conjecture and hopeful thinking. And I'm hoping that oats are ok too! I just haven't seen any evidence that would prove oats safe. One of the big celiac doctors, I can't remember which one, suggested people...
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