Jump to content

aikiducky

Advanced Members
 View Profile  See their activity

  • Posts

    1,033

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    As far as I know a virus wouldn't affect the results, at least I don't think so. But a low total IgA means you don't make a lot of IgA antibodies in the first place so the TTG test is kinda useless in your case like Ravenwood said. That said, negative blood tests are quite common with celiac so it doesn't mean you can't have it. If you want to have an official...
  2. aikiducky
    If your blood work indicated celiac, you should at least go ahead with the biopsy. After that you can think about what to do next. Pauliina
  3. aikiducky
    People's sensitivity really can vary, some people will react to the tiniest amount of cc, others will need a bit more gluten before their immune system wakes up. That's why with some products it's a question of try it and see. Pauliina
  4. aikiducky
    Is it made in Sweden? If it is, maltodextrin could possibly be from wheat. The modified starch is most likely potato, that's what's traditionally used in blueberry soup. Pauliina
  5. aikiducky
    Does it sound too weird to say congratulations? Of course I wouldn't wish celiac disease on anyone, but if you have it, it's nice to at least have a gold standard diagnosis... Here's to a smooth adjustment to the gluten free life! Pauliina
  6. aikiducky
    I think the person in that discussion who said all grains have some gluten is a bit confused. It's true that all grains contain some kind of protein and grain protein is commonly called gluten (we could talk about corn gluten for example), but the important thing is that only a few grains have a protein structure that is similar enough to give a celiac person...
  7. aikiducky
    I don't think it necessarily has to mean celiac related issues. Some people just might not tolerate sorghum, they might have a separate intolerance to it. Pauliina
  8. aikiducky
    :lol: This is so true. I don't even think about it but I read labels all the time. I only notice it when I go grocery shopping with someone else, and they are already done and I'm standing there reading yet another label. I guess that shows that it has become instinct. Pauliina
  9. aikiducky
    I think it might also depend on whether or not you have a gluten free kitchen or not, and other details of your life style. If I'm at home all day I don't really have to think about it. Pauliina
  10. aikiducky
    Don't quote me on this but I think the link may be genetic rather than directly caused by celiac. In other words people who have the genetic susceptibility to develop celiac may be more likely to have the genes for other kinds of problems like cystic ovaries, too. Pauliina
  11. aikiducky
    This is from the website of the American Academy of Family Physicians, it's just the first thing I found with a quick google. Any GI doc who says lymphoma has nothing to do with celiac needs to do some studying. Jules, your dad need to be screened for celiac, and he needs to be 100% gluten free. "Untreated celiac disease is associated with a number of...
  12. aikiducky
    Sounds good! I think the muscle pain and fatigue will be things that improve more slowly. Keep up the good work (at your own pace of course). Pauliina
  13. aikiducky
    I thought prawns ARE shellfish?? Pauliina
  14. aikiducky
    Or it could have been the chillies? It might be a good idea to eat a blander diet for a while if your system is still very sensitive. Pauliina
  15. aikiducky
    Keep reading this board, different people have different things that help them when they are sick. My main symptom isn't D so I can't help with that. Main thing is it sounds like you are on your way, you know what's wrong and you're adjusting to the new diet, that's good news! Would it be possible for you to talk with the school, maybe see the...
  16. aikiducky

    ARCHIVED I Want To Cry

    aikiducky replied to Lux's topic in Coping with Celiac Disease

    I've been gluten free for three years now and mostly I'm symptom free, except maybe once in two months or so I get glutened. but even then, nowadays I get over the glutenings more quickly than in the beginning, and I'm not totally incapacitated by them, just unhappy for a few days. But it did take a least a year to get there. Actually my second year...
  17. aikiducky

    ARCHIVED I Want To Cry

    aikiducky replied to Lux's topic in Coping with Celiac Disease

    One interesting thing... usually when I get glutened I have symptoms for a few days, then they start to get better... then a week later, they flare up again! But just for one day, after that I truly start to get better. I used to suspect all kinds of foods until I figured this out. So if you're feeling better tomorrow, it might have just been a flare up from...
  18. aikiducky
    Just to give another point of view - I agree that for yourself, a positive blood test should be enough to go gluten free. But for "official" purposes it might not always be enough. For example, if you ever wanted to take part in a study, they usually look for biopsy-diagnosed people so you would be excluded. Or if you change doctors they might want to do...
  19. aikiducky
    Spelt does contain less gluten than wheat. But think about it this way - if you eat a spelt cookie or cupcake or something, that's a pretty substantial amount of spelt. If a celiac has to be careful about cross contamination and even a bread crumb can make us sick - don't you think a whole cookie, even out of spelt, is going to have more gluten in it than...
  20. aikiducky
    I think if you find that the D will stop when you go gluten free that you can then say at least that gluten bothers your intestines. Then it might be a case of looking for other causes for the other symptoms, it's of course possible that gluten free isn't the final answer to everything. Pauliina
  21. aikiducky
    Well D is a classic symptom of celiac so I wouldn't completely ignore it, at least acknowledge that something did change. Did you ever have any kind of testing for celiac, I forget? One option would be to stay on gluten for the next few months and try to get tested. I think it would be a good idea to keep a food and symptom diary for a while, too...
  22. aikiducky
    I don't cook gluten stuff at all. Anyone who lives with me has to either live with that or cook themselves. But I don't have kids so that helps. You're starting to think in the right direction I think. Yeah pre-made dough would be a better idea. And if you cook both gluteny schnitzel and gluten free, wash hands plenty every time you touch anything...
  23. aikiducky
    If you don't want to go back on gluten, then that already tells you something. It means that you know you don't feel well with it. That means that you should try to be 100% strict with your diet, because you know you will feel better that way. If I were you I would also try being 100% gluten free and not just wheat free, that might just be the last little...
  24. aikiducky
    As far as I know Enterolab can't tell you anything that you won't find out simply by trying to be gluten free. That is, they don't diagnose celiac, they can just tell you that you might feel better gluten free, which is what you would find out by trying the diet anyway. I suppose the gene test might be interesting. Pauliina
  25. aikiducky
    It's a good suggestion to check that you are not eating a lot of products that are made on the same lines as gluten containing products. The risk might seem small but my experience is I get sick from that type of thing more often than from cc at home. Another thing is I wouldn't have gluten flour at home AT ALL. It fluffs up in the air and settles over...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.