Jump to content

aikiducky

Advanced Members
 View Profile  See their activity

  • Posts

    1,033

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by aikiducky

  1. aikiducky
    Cane sugar is sugar that is got from the sugar cane which is a plant. Table sugar is either cane sugar or beet sugar. I don't think it needs to be specified on a label, so you'll need to contact manufacturers to know which products are ok. Fresh fruit only have their own sugar in them so fruit is ok. I don't know about artificial sweeteners. I...
  2. aikiducky
    Thanks for the update! I know what you mean about being glad to know even if it means you have to be sick for now. I guess the fact that you reacted both to wheat and barley does point to gluten. Good luck with the doc on Thursday and I'll look for your post then! Pauliina
  3. aikiducky

    ARCHIVED Red Lobster

    aikiducky replied to jmd3's topic in Gluten-Free Restaurants

    To me this actually sounds more reassuring than not! The most important thing is that they seem to be very well aware of the sources of cc. I would be much more suspicious of a restaurant that said "sure we know the gluten free diet, you'll be fine" or something like that. I would always be wondering if they just didn't understand how difficult it is to not...
  4. aikiducky
    Gluten-caused depression has been discussed here quite a lot. You're not the only one! When you do get glutened, remember that it's not you, it's a chemical reaction, and that it will pass. I find that taking a vit. b supplement helps me, don't know if that would help or if it's just me. Oh, and when I know I have been glutened I don't make any...
  5. aikiducky
    Do I read your signature right that you've only been gluten free for a few months? It can take up to two years for all the antibodies to disappear from your blood as far as I know, some of them are more long lived than others, and of course it's normal to make some mistakes with your diet in the beginning. It would make more sense to look at your initial...
  6. aikiducky
    Dealing with multiple intolerances can seem impossible in the beginning. I'd second the suggestion that you start with a list of what he can eat and go from there. Don't worry about letting him try foods you think he might not like - if he starts to feel better, he might surprise you, kids are sometimes amazingly practical about food. Pauliina
  7. aikiducky
    Have your vit. B12 levels been checked? That could account for tiredness and poor concentration though maybe not the bloating. Some of the other B vitamins can also play a part... what you could do on your own is try a vit. B complex supplement and see if that helps. Someone mentioned digestive enzymes, if the problem is that your stomach has a hard...
  8. aikiducky
    I'd say if you still feel horrible at the end of the week though that you should start to consider other possibilities. But lets hope that won't be the case! Pauliina
  9. aikiducky
    Karen, thanks for the update! I had wondered how you were doing. Pauliina
  10. aikiducky
    If the last biopsy was a year ago, he still has symptoms, and he's still on gluten, I think it might be a good idea to have another biopsy. It might be that in this year the celiac has progressed enough to be detectable. Pauliina
  11. aikiducky
    Yes that's possible! The way my reactions go I usually feel really bad for a couple days initially, then I start to feel somewhat better, then exactly one week later I get a "peak" and after that I really start to improve. In the beginning I always thought I had glutened myself again until I figured this pattern out. Pauliina
  12. aikiducky
    I think it might be worth the trouble to avoid all dairy even just for a couple weeks to see if it helps. So yes even things like dry products with milk ingredients. Then if you start to feel better you can eat some again and see what happens. I sometimes cook rice (or nuke some microwaveable rice) and mix in some coconut cream and a banana. Yum. I also...
  13. aikiducky

    ARCHIVED Hello

    aikiducky replied to gfp's topic in Introduce Yourself / Share Stuff

    Nice to hear from you Steve, glad your doing well! Pauliina
  14. aikiducky
    I'm glad your planning to test your son as well. Of course it's not something to wish on a child but IF he has celiac it's much better to know it now, so that he has a chance of absorbing all the nutrients he needs while he grows up. Do keep us updated when you see your doc will you? Pauliina
  15. aikiducky
    Medical consensus in Europe is that maltodextrin and glucose syrup made from wheat are safe for most celiacs. There are however people who react to them, I'm one of them. The only ways to find out that I know of is to cut them out completely for a while and see if anything improves, or have follow up biopsies to see that your intestine is healing. I get...
  16. aikiducky
    How are you doing Dru, any change? Pauliina
  17. aikiducky
    Mattj, if you are in the UK, labels DON'T have to say what maltodextrin or glucose syrup has been derived of. All other ingredients, like natural flavours or spices, you can trust to be gluten free unless the labels says otherwise, but maltodextrin or glucose syrup can be from wheat. THE ABOVE APPLIES TO EUROPE ONLY PEOPLE, don't get confused. Did...
  18. aikiducky
    Pea protein would make me gassy all buy it's own without gluten helping, but do you normally eat peas without problems? Pauliina
  19. aikiducky
    I guess by now you might have made up already, at least I hope so. Anyway, I'd side with the simple apology camp... don't try to bring up a whole discussion of all your fears about the move at the same time. Save that for a time that you both are feeling comfortable. Pauliina
  20. aikiducky
    Just one tip - any symptoms that you have from your last glutening - don't hide them from your boyfriend! That is eventually the most effective way to convince him. Pauliina
  21. aikiducky
    The doctor can't really tell you whether or not you should go back on gluten and get tested- that's up to you. The two choices you listed are the two I'm aware of, so basically you already know what your choices are. Assuming that you indeed have celiac - being gluten free for a while like you have and then having as much gluten as there is in two servings...
  22. aikiducky
    It's quite possible that vit. D deficiency is rare - in healthy individuals. People with celiac are in a different situation though. Sometimes doctors seem to forget that. Pauliina
  23. aikiducky
    Another kind of approach - how about shopping & cooking together? That way you could explain things as you go, and also feel confident that there isn't any accidental cc. Dunno if that would be practical? Pauliina
  24. aikiducky
    To the original poster - I would second the idea of getting a biopsy of your rash/blisters, if you still have them. Try to find a dermatologist who is familiar with dermatitis herpetiformis because the skin biopsy has to be done a certain way to be accurate. If you have DH there's no doubt or question, you have celiac, need to be gluten free, and you don...
  25. aikiducky
    Your doctor sounds like a really good one! I hope the specialist is going to be as nice. What are you planning to do in the meantime, are you going to eat gluten free or go back on gluten? Pauliina
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.